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1desperateladysaved

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by 1desperateladysaved

  1. My functional medicine nurse told me that H-Pylori is a organism that lives mainly in the stomach and causes ulcers.. Dee
  2. My son has pancreatic insufficiency and is being treated with prescription digestive enzymes (Brand Pancreaze ingredients: Lipase, Amylase, Protease). I have celiac and I am being treated with over the counter enzymes, but I wasn't tested for official insufficiency. My functional medicine nurse told me that when one suffers from celiac disease the villi...
  3. Congratulations and have fun! I have an extra size 2 soccer ball if you need it! Dee
  4. One year later: Back to those foods I didn't have antibodies to again. I am really feeling better again. It is so strange, I didn't have my fatigue and mind fog, but other symptoms like inflammation just seemed to increase. I am thankful for the help I have from a functional medicine nurse. She sometimes admits she was wrong! BUT I am recovering after...
  5. I basically haven't worried about what to say, because nobody asks me!
  6. I believe flattened villi is a definite diagnosis. Perhaps you could consult with another doctor, or ask more questions of them. Dee
  7. This diet list, or a similar one helped my bladder issues. Unfortuneatly, I did not know to also cut gluten. I still have issues with my bladder on occasion around my period. This is a list I found on the internet. Sorry I lost the link. I saw another site that mentioned gluten, but lost it when I needed to leave google. 1: Cranberry Juices &...
  8. I am struggling with food prep. How many times lately have I had the family sit down to eat, before realizing that I forgot to prepare my meat or vegetable! Oops.
  9. If you buy local honey, check to be sure of where it was processed. I had some trouble with honey I bought and had not checked to see if they process it in their personal kitchen.
  10. My current plan to eat no foods that I had antibodies to is still going well. I haven't been sick. My swelling is going down.
  11. Clover is supposed to be the mildest flavor. I have read this because my family has a couple of hives. Dee
  12. I didn't have an endoscopy two years ago when I was diagnosed. My MD doctor (at the time) didn't think it was necessary. Since than, I have been improving and having issues seeming to be related to celiac. I have had my nutrient levels go up. I decided to do the endoscopy (along with colonoscopy) now. I refuse a gluten challenge and likely the damage...
  13. I am amazed at the intensity of your symptoms. I always thought that if I had had such visible symptoms, I wouldn't have spent at least 30 years with undiagnosed celiac. Still I am here to happily say that I feel much better, have some energy, and am glad to give up many foods I really liked in order to gain health back. The BRAIN FOG is gone! I hope...
  14. Were you eating all of the foods tested for? Whatever you are not eating, could be a false negative. Glad to hear the yeast and other deletions seem to be helping. I only eat foods that I had zero antibodies to and new different foods, and that is allowing my inflammation to go down. Dee
  15. Have you been tested for fructose intolerance? I try to avoid sugar to stabilize my blood sugar. For this reason I usually use bites of fruits rather than whole fruits and have them with meals. A GI doctor told me last week that they tell people with fructose intolerance to eat it using this bite method..
  16. It is used in natural medicine. It is an oil derived from a helichrysum plant. My essential oil book says that a couple of drops can be rubbed on the skin above the cramps to help ease them. I use this with a hot water bottle. I purchase these at local health food stores and even my local grocery store sells some common oils. Dee
  17. I try to realize what the feelings stem from and that they will leave in a few days. Dee
  18. Hay is GRASSES. Often it is clover or alfalfa and other grass. Straw Is oats or wheat. I find it easy to breath in the dust of these- if I work with it. It may depend on the make up of what you are calling straw. I learned this from 7 years of farm life.
  19. ww.happyhealthyteeth.com/wpt/blog-docs/jcda-oral-manifestations-of-celiac-article.pdf I think I like this article that I think it was Irish Heart posted the best of all as it is so detailed.
  20. https://www.celiac.com/articles/23367/1/Dental-Enamel-Defects-Indicate-Adult-Celiac-Disease/Page1.html Quoting the article "From this study, the team concludes that enamel defects are common in adult celiac disease, and that the observation of enamel defects offers a way to diagnose celiac disease. This item was posted by the administrator on August ...
  21. Open Original Shared Link This is telling dentists to watch for it (Cananda) and ask patients to see the doctor. It wasn't the one I was looking for, but I found this one so far.
  22. About 1 1/2 years ago I did a food antibody test to see if I could find some safe foods for me to use and any I should not use. The tests searched for Igg and IgA antibodies made by the body to combat foods that it evidently thinks are invading it. The tests showed me several surprises: Buckwheat threatened my body the hardest! (I was already off gluten...
  23. I am so glad for you that you made this discovery even after being gluten free for 4 months! Dee
  24. I have become more sensitive over time. Also the character of my reactions have changed. I don't think of this as always a bad thing. I think of it that my body is better able to tell me what it doesn't like! It is also better able to get rid of it! Some reaction is a good thing, so that one learns to avoid it. My health practitioners feel that my...
  25. GREAT NEWS TODAY It is a miracle. I had 5 children and nursed for 12 years straight one time. You can read more above. I also have thin back bones in my immediate family. My sister and Mom have back bone trouble. I was expecting the dexa scan to show thin bones. However, after 2 years gluten free and an even greater amount of years on supplements...
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