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mouse

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Everything posted by mouse

  1. mouse
    Oh Judy, I am so sorry. No wonder you did not email me today. I was going to email you after I did the forum. Of course my prayers are with you as they have been daily thru all you are going thru. I have to agree with Karen as to the IV. I know you don't want to be in the hospital, but you need to address this now. When I had whatever it was called...
  2. mouse
    My understanding is that you can have a false negative, but NOT a false positive. So, yes, you have Celiac. Welcome to the board and you will find so much info here that will make it easier for you to navigate thru this disease and how to buy food, etc. I learned online with about 300 hours of looking everything up. I joined the board late last summer...
  3. mouse
    You guys are wonderful nut cases . They say that laughter is great for stress . Glad things are still good for you and pray it remains so until it all passes. BTW, you make a great reporter!!
  4. mouse
    On the Clan Thompson site they have now posted that this frosting is NOW gluten-free again. I hope I read that right, but who knows with the way I have been feeling.
  5. mouse
    O negative.
  6. mouse
    Floridian, my prayers are with you and your family. That it misses you and that you all stay safe. I am going to bed soon and I hope when I get on the computer tomorrow that you will have posted "All are well". Take care.
  7. mouse
    After your trip and testing, there is a gluten-free soy sauce. PF Changs has a gluten-free menu and they use the gluten-free soy sauce on those dishes. Don't forget to take the anti-D stuff on your trip. You don't want to spend all the time in the bathroom instead of enjoying the trip. I would just take it all the time and not wait for the D to hit.
  8. mouse
    I am so sorry that you guys have to or had to put up with that kind of abuse. I guess I am lucky, we only have one of my husband's brothers' living near us and they (husband and wife) are totally supportive of my diet. I do know that two of them (that live far away) would not be supportive nor would their spouses. My husband has seen me almost dead and...
  9. mouse
    Welcome to the forum. As far as the testing goes, you can never have a false positive, but you can have a false negative. So, yes you have Celiac. And yes, if you do not stay on the diet, then you can end up with multiple problems. Even tho you do not feel so really terrible you are still doing damage to your small intestine. I was diagnosed at age ...
  10. mouse

    ARCHIVED Fiance

    mouse replied to nicole123's topic in Gluten-Free Restaurants

    I read this a few minutes ago and did not know how to respond. Lovegrov said it very well and I happen to totally agree with all he said. You are at a turning point here and need to make an unwelcome decision. Good luck.
  11. mouse
    I am glad that it all went well and you handled it like the pro you are. Thank you for sharing such a positive experience.
  12. mouse
    This is so nice of you to share all the places that people can eat or buy gluten-free food, if need be. I am glad your trip was so fantastic. I am not able to get further then Las Vegas, anymore. But, you wrote everything so elegantly that I tasted the food and also traveled with you. Thank you for sharing.
  13. mouse
    I understand why you need a firm diagnosis. Has he only been gluten-free for about a week or so. Call the doctor tomorrow and see if they can do an endoscopy on him ASAP. Then put him on gluten until then. I know he is so young, but his villi might show up with damage and then you get your diagnosis. As far as the speech, I have read on this forum that...
  14. mouse
    My understanding is that the gluten challenge consists of you feeding your son gluten, to the equivelent of 3 slices of bread a day, for 3 months. And then they do the blood works, which are NOT totally infallable (sp). You can have a false negative, but not a false positive. I would wait the 6 months and keep him totally gluten free and then convince...
  15. mouse
    If she decides to go the route of the Celiac tests thru the doctor, she needs to INSIST that the full panel of five tests gets done. I can't remember what they are called, but I am sure that someone will post it.
  16. mouse
    I am allergic to casein. But, I can eat hard cheddar goat cheese, but not the regular goat cheese. I don't remember who posted that the hard cheddar goat cheese does not have casein (Rachel?) But, I find that I can tolerate the hard cheddar. Of course I really have it very seldom, like maybe once a month.
  17. mouse
    My family loves the Ora-Ida Fast Food Fries and that is now the only fries I buy. They do have soy. I am allergic to soy and thank goodness that one has stayed mild. Probably because I try not to use anything with soy on a regular basis. I only have these fries about twice a month. We think they taste better then McD's.
  18. mouse
    If you are staying at one of the resorts, then talk to the head chef and see what they can provide. Then talk to the concierage (sp) and see if they can do some advance calling for you at the in town restaurants that everyone likes to go to. If no concierage then talk to the mgr. I went there for a convention (before diagnosis) and had such a wonderful...
  19. mouse
    Your a lucky devil Mike. Let me know what you think about the taste. I have never been a beer drinker, but am down to that as I can't find a B & J wine cooler in AZ without the malt. I would just like one when I sit on the patio on a hot day. I can no longer drink whiskey with diet coke because of the corn. And I have never been a Vodka drinker,...
  20. mouse
    I am not a Soprano fan, but my husband and neighbors are. So, all of us sat around the TV and watched the finale. We all four thought the finale was a huge disappointment.
  21. mouse
    You might try taking him off of dairy. I have read that the small intestine sometimes reacts to dairy, just as it does to gluten. After he is healed, you can then add it back in. I am sure that others will post about this. This is the weekend and the forum activity is not as great as during the week.
  22. mouse
    I remember that we would be playing Scotch doubles in the company golf outing (I hate that game he he) and my face would get as red as a beat. We all assumed it was medicine I was on. The reason I did not add it below my signature is that it has faded enough that I completely forget that I have it. I don't remember how long you have been gluten-free, but...
  23. mouse
    Glad you found something that works for you Jen. I remember when I got the diagnosis of Rosacea. I had to be in my mid 50's. The doctor at Loyola gave me this lovely phamphlet to read and on the way home I totally lost it. Never got past those awful pictures. My dentist I had at the time, had an extreme case of Rosacea and all I kept doing is look at...
  24. mouse
    After being bedridden before I finally got my diagnosis, I was so happy to finally have exoneration that I was not a nut case, not bulemic, etc. I fought almost 40 years for someone to hear me and all they would really address was when I had pneumonia or an upper respiratory infection. They had me on so many meds, I could have started my own pharmacy. ...
  25. mouse
    CONGRATULATIONS. I certainly remember the days, months and yes the years that I fought to lose weight. So, I do completely understand how happy you must be feeling. I used to hate to get on a scale and now I weight myself everyday, just to make sure that I have not lost anymore. When I drop 4 pounds, I litteraly panic in trying to put it back on. Why...
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