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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    After a year, it won't taste the same anyways. Soooo not worth it. Think icecream or m&m's or caramel popcorn or nachos with salsa, cheese and guacamole. Who needs the wheat!!
  2. nvsmom
    Shelley Case (Gluten-Free Diet) mentions the symptoms and tests here: Open Original Shared Link This article discusses "c" in the clinical presentations, as well as the various tests, but the author is largely pointing out that blood tests can make the endoscopy unnecessary. Open Original Shared Link This site discusses lab tests: Open Original...
  3. nvsmom
    I don't think I became obsessed... I saw the symptoms more often in people but I could be right. Right? I saw GI symptoms in 2/3 of my kids. I made them gluten-free and those symptoms have largely improved. I think the only way to know if your kids are celiac is to test them, and likewise the only way to know if they are non-celiac gluten interant is...
  4. nvsmom
    Hi all. I was going through my recent medical records in an effort to better manage my hypothyroidism (not going great yet but getting better...at this point, I think the gluten-free diet is easier for me to manage than hashi's ). My hormone levels aren't responding to thyroid hormone therapy like I think they should so I started going through my other...
  5. nvsmom
    Your daughter sounds like a combination of my fiveand ten year old sons. My youngest would often go go bathroom 5 to 8 times a day; I know this for a fact since he is still at an age where he requires some assistance with wiping. He didn't get stomach aches often but my 10 year old did frequently. My oldest usually got his stomach aches while eating, vomitted...
  6. nvsmom
    Lisa gives great advice. The upper endoscopy is how many celiacs are diagnosed, besides the blood tests she listed. I think a minimum of eight biopsies is recommended for accurate testing. For the blood tests, if you are eating gluten at all, even periodically, I would request getting those labs done this week; the longer you are off gluten, the more likely...
  7. nvsmom
    I believe that is your total serum IgA, and it looks good to me. I think you've tested positive... Bloating and constipation, along with stomach aches were my main symptoms ... I thought. A few other things resolved (like my migraines) after going gluten-free. If you start on the gluten-free diet, you might be pleasantly surprised by how your health improves...
  8. nvsmom
    (Hashimoto's) Thyroiditis can cause some of the symptoms you listed as your hormones swing from hyper to hypothyroidism. It could be worth checking out...beyond the food issues. Best wishes.
  9. nvsmom
    Oooh! Me too! I fell below the normal range for our labs... no idea why, and my doctor is clueless too.
  10. nvsmom
    Just be careful if you are working around others who are using wheat flour; if they dump in their flour a little forcefully then POOF - There's a flour cloud for you to ingest. I'd wear a face mask if you are working around it at all. Best wishes.
  11. nvsmom
    I too thought I might be gluten intolerant before I tested for celiac disease too... turns out I actually had celiac disease... You'll never know until you are tested if you are a celiac or not. I haven't read all the posts, so I'll ask: Is there any reason you don't want to be tested? If not, do it now while you are still eating gluten so you'll have...
  12. nvsmom
    ((Hugs)) I'm sorry to hear about your mom. Best wishes to you. I think you may be right. It's a shame celiac disease wasn't well known a few decades ago... I guess there are benefits to having the latest "trendy" disease; it's easier to identify it. Take care.
  13. nvsmom
    I can't see anything in your tacos that had gluten in it. Perhaps the spices were bothering your inflamed gut? It's possible that your trial of gluten-free eating caused a false negative on the celiac test. I think it is also possible that you suffer from Non-celiac Gluten Intolerance, which in my opinion seems worse because you have all of the same...
  14. nvsmom
    Sorry you are not feeling well, it can really wear you down. Ynot is right in suggesting the sublingual B12 tablet. B12 is best absorbed in the mouth; that goes for D3 vitamins too. I take 1000-4000UI of sublingual D3 throughout the day. It's a good idea to take calcium a few times a day along with the D3 because a body can only absorb a certain amount...
  15. nvsmom
    We do 1000-2000 UI per day in supplements on top of whatever is in the food and multivitamin. We're in Canada so I KNOW thery're not making any D now. LOL Sublingual D3 tablets, or D3 drops, are usually the best way to go because the D is better absorbed from your mouth than your gut. This is generally true for vitamin B12 and zinc as well. Best wishes...
  16. nvsmom
    Good luck with the transition.
  17. nvsmom
    I would say if the endoscopy will help with your denial, then get it done but be aware that there is a chance that they will miss damaged areas if your intestinal damage is not yet excessive. The intestines have a really large surface area so if the damage is patchy, and the endo doesn't take enough samples (or isn't lucky) there is a chance that you'll end...
  18. nvsmom
    Mushroom gave you great info. I just wanted to add that my youngest son, who tested negative for celiac, used to have to run to the bathroom during every meal, as well as a few more times during the day. Going gluten-free has almost entirely cured him of that after a couple of months. Good luck with your testing. Remember to keep eating gluten until...
  19. nvsmom

    ARCHIVED Help Please

    nvsmom replied to AZGirl's topic in Coping with Celiac Disease

    I personally felt really poor the first few weeks gluten free. Really poor. I think it was a withdrawl of sorts. It took awhile before I felt good. Hang in there. Many folks around here didn't feel better for months, or even years, depending on how their body heals. Patience seems to be a big factor when dealing with recovery, Best wishes.
  20. nvsmom
    I lost 15 lbs after going gluten-free without eating any less. In fact I ate more treats to prove to myself I wasn't being deprived of anything. I'm certain it wasn't fat I lost (darn it) but was bloat and water; I could see a real difference in my face and midsection, not to mention my ankles. I believe gluttening could cause water retention... but I...
  21. nvsmom
    I agree with the advice that the others gave you: unless you are waiting to dofurther celiac testing, I can't understand why you should wait to go gluten-free. There's nothing risking about going gluten-free except you might consume more sugar if you choose to buy substitute baked items rather that eating more whole foods, otherwise it's a perfectly healthy...
  22. nvsmom
    Below is from Lab Tests Online ( Open Original Shared Link ): Common tests for celiac disease include: IgA class of Anti-tissue Transglutaminase Antibody (anti-tTG): Tissue transglutaminase is an Open Original Shared Link that causes the crosslinking of certain proteins. Anti-tTG, IgA is the most Open Original Shared Link and Open Original Shared Link...
  23. nvsmom
    I agree with the others, get tested while you are eating gluten. It's a good time to do it. I'll be the doom and gloom... I am pretty sure that I have had celiac my entire life but I did not feel sick my entire life. I had years where I was lifting heavy weights and had energy (minimal gut issues), and there was another year where I was in marathon...
  24. nvsmom
    TTG IgA usually correlates to celiac but it can indicate other autoimmune diseases like diabetes, autoimmune hepatitis, and thyroid issues. A positive ttg IGA is usually from celiac disease though. I don't beilieve it correlates to a dairy problem, but celiacs are often lactose intolerant. When I was tested for celiac, they did not test for other food...
  25. nvsmom
    Oh geez... that sounds awful. I hope your appointment goes well with the gastro... with symptoms that bad, it needs fixing fast. My advice would be to try and eat only whole foods (nothing processed), try an probiotic (or a bunch), and perhaps try L-glutamine for healing and nettel tea for inflammation. Ibuprofen takes away som pain and can reduce...
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