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mmaccartney

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mmaccartney

  1. mmaccartney
    $500 ?!?!? That seems expensive. I had my genetic testing through Enterolab, their cost was $149 and my insurance still covered 80% of that!
  2. mmaccartney
    I do agree, but I do feel good that at least this doc is more aware now, and is now screening more people for Celiac then he used to. He has ALOT of patients, so the impact will be there! I'll be curious when I see him again in August how many people he has had come up positive!
  3. mmaccartney
    I've seen compunding pharmacies mentioned in other threads. Do the (basically) receieve the drug in a "pure" form and then make the pills in the appropriate strength with ingredients that are "safe" for the customer?? Are these generally more expensive?? Do insurance companies cover it, generally??
  4. mmaccartney
    To all those that are intolerant to Casein, or anyone with an opinion on the matter: My Rheumotologist is recomending that I take Celebrex versus what I normally take as an NSAID for arthiritis and fibromylagia symptoms. The trouble is that celebrex does contain Lactose. I know that I am casein intolerant, so the question is: Can someone who is casein...
  5. mmaccartney
    Only pure maple syrup. Most "pancake syrups" are mostly just sugar and liquid with flavoring. Nothing tastes better then pure maple syrup. I just picked up some yesterday at an annual maple festival they have in Chardon Ohio. Good stuff...they even had cotton candy made with real maple syrup! Yummy!
  6. mmaccartney
    Yeah, their chili makes my stomach hurt. It passes after about 45 minutes and doesn't move on to my normal gluten reaction. I've had gluten reactions to Amys products.
  7. mmaccartney
    due to the fact that it is a cooking supply product, and not a food product, I would also specify that you wnat to know whether it contains any wheat, rye, barley, or oat products or their derivitaves!!
  8. mmaccartney
    I saw my GI Doc yesterday, he seems to be one of the good ones. He led me to a website that has great info. Check out the posting I just put out about it: Open Original Shared Link
  9. mmaccartney
    I saw my GI doc yesterday, who at first didn't know much about celiac, but has been doing some research and educating himself. I give him some credit, he is now testing many more people for celiac after my mystery case! He mentioned 15 people last week he tested whereas before me he rarely tested anyone!!! Anyhow, he gave me info on a guidline published...
  10. mmaccartney
    If you find out, tell me! I am fatigued all the time. It is rare that I have energy to go do something...
  11. mmaccartney
    My grandmother had digestive problems when I was young. She had her gall bladder removed, but that didn't help...in fact it seemed to trigger more problems. Before she lost her mind to dimensia and altzheimers (sp?)...which I think were contributed to by celiac...she would only eat very plain, very basic foods, no sauces, no breads, etc. She was a private...
  12. mmaccartney
    My absolute favorite gluten-free, CF, and Egg Free pancakes are from The Cravings Place Open Original Shared Link try their other mixes too, they are yummy and so easy BTW: I have no interest in this company except for them staying in business so I can eat their stuff!!!! I've been trying to come up with a good recipe using rice flour, egg replacer...
  13. mmaccartney
    I think gf4life hit the nail right on the head. I will add no further to it. Actually, my GI doc surprised me. He didn't know a whole lot about celiac until he met me, in fact he had only had one other patient with celiac before. He indicated to me that he would learn more about it. Well, he sure did. He gave me a report from a recent study, and we...
  14. mmaccartney
    Yes, for anti-gliadin IgA, malabsorption, and anti-casein IgA you need stool samples. I *think* they only need about 1 cups worth. As far as D, they ask that you "seal" the sides of the container, and freeze the "contents" prior to shipping back to them.
  15. mmaccartney
    Casein is a life-long intolerance, sorry. As far as Enterolab, the only comment I can make is that I am seeing my GI doc in about 25 minutes and am presenting those results to him. I'll let yuo know what he says...
  16. mmaccartney
    I'm not sure, you're beyone me on that one! I speculate that it is what the Doctor is willing to use for diagnosis. Some people are given a Celiac diagnosis based on one blood test out of the panel being positive, and a positive response to the gluten-free diet. Some doctors will only diagnose with positive panel, and intestinal biopsy being positive. ...
  17. mmaccartney
    Well, people seem to associate Celiac with the HLA-DQ2 gene, and villous atrophy. IMHO, it appears that you: 1) Certainly have gluten sensitivity, the IgA, TTG tests show you have an active immune response to gluten; celiac or not. 2) The malabsorbtion score you have is indicative of intestinal damage. Villous attrophy or not, I don't know I'm not...
  18. mmaccartney
    While your doctor missed the ttg test, he/she did get 3 important ones. The IgG test is more sensitive then the IgA, meaning there are less false positives and false negatives. However the IgG test is less specific, meaning Celiac is not the only cause of a positive IgG test. With a neg IgA and a pos IgG, the next thing is to see if you are IgA deficient...
  19. mmaccartney
    I would have severe cramping type pain throughout areas of my lower abdomen, both above and below the belly button. Also the cramping would be just where my gall bladder is, just below the sternum. Press on that and it would make me vomit too. This type of pain would come when I was contaminated, and pass after many hours. It was very intense, most of the...
  20. mmaccartney
    Lipton makes a dry mix, you add sour cream and milk to it. The mix is gluten-free AND CF!! It jsut depends on what you add to it. I use soymilk and soy sour cream. If you can tolerate milk you can use "regular" stuff too. You had to make sure you get the KOSHER kind. It is usually in the "ethnic" section of the supermarket. Name: Lipton Kosher Recipe...
  21. mmaccartney
    Sounds like they are showing signs. Get them tested. I have DQ2 and DQ3 genes so I'm in a similar position. Further, my children have lots of allergies! I had both of them tested through normal serology (celiac panel) and only one of them showed a postive test and it was on the IgE test. But then, my testing was funny too, until I went to Enterolab. I do...
  22. mmaccartney
    Both of my children have egg allergies. I don't know their exact symptoms. They had some CC early on when we had eggs in the house, but it could have been milk CC too. Their allergic responses have generally been hives, tummy ache, coughing, and a few times difficulty breathing. Not sure if that is the egg or milk though. We had the oldest allergy tested...
  23. mmaccartney
    as you put it, welcome home! It sounds quite probable that you have some form of gluten intolerance. If you are already feeling better and the only change was the gluten-free diet, it sure does sounds like it!
  24. mmaccartney
    I get gluten dreams too. Not very often, but once in a while. Just like everyone else I'm in some situation, chewing away on some gluten type food when OH SH*T I remember I can't eat that stuff!!!! Then my mind starts racing, I get anxious, my heart starts racing (maybe for real I'm not sure!), and I really start freaking out as I start thinking about...
  25. mmaccartney
    Wow, I am shocked at your interpretation of this article. The article does not indicate in any way that soy is "bad for you"! Quite the contrary it indicates that earlier claims of the benefits of soy were incorrect. In fact the article points out that soy is good for you!!
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