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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ken, Thanks for posting this......I think ?. I subscribed and am now appalled at the amount of recalls for allergens (FDA and USDA). . Glad there are recalls, but still...... Maybe ignorance is bliss!
  2. cyclinglady
    More about testing...... Open Original Shared Link and....learn about the gluten free diet, but do not start it until all testing is done (lab results in your hands!)
  3. cyclinglady
    Those chickens on your avatar? Are they yours?
  4. cyclinglady
    I was never b-12 deficient, though I did have tingling legs. Instead my levels were off the charts! My doctor thought I had been supplementing, but I wasn't. However, I was drinking Soymilk which has B-12 added (non-methylated cobalamin). When my lactose intolerance resolved from being on a gluten free diet and healing, I stopped the soymilk. It took...
  5. cyclinglady
    Welcome! Yes, loose bowels can be a symptom of celiac disease (but it could be something else too). All celiac testing requires that a person be on a gluten diet. So, do not change his diet!!! Learn more from this reputable and well-written celiac site at the University of Chicago: Open Original Shared Link I hope he feels better...
  6. cyclinglady
    Get sublingual (under the tongue), verify gluten free and maybe...methylated (I personally can not absorb/process the cheaper version). Look for food sources.
  7. cyclinglady
    Welcome! I am not a doctor, so you should discuss your results with her/him. But....you have a positive. It only takes one on the panel. You are not IgA deficient (your 224 result). This is a control test (in this case) to determine if the TTG IgA or EMA IgA test was valid. This means the testing worked! Keep eating gluten. The next step...
  8. cyclinglady
    Thank you for taking the time to update your story. If on the gluten free diet, did your anemia resolve? Mine did within three months (ferritin level specifically) and anemia was really my only symptom when my GI suggested the possibility of celiac disease.
  9. cyclinglady
    What is a gluten challenge? A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for t...
  10. cyclinglady
    While Gateraid is gluten free, I prefer Nunn tablets for my long rides. Good for marathons too. Easy to transport. Just add water.
  11. cyclinglady
    I agree with JMG! There are other things that can cause villi blunting other than celiac disease. Open Original Shared Link But did your doctor order a complete celiac panel or just the standard screening TTG? EMA and DGP tests should be ordered, if not. I personally test positive only to the DGP IgA. Keep in mind that some celiacs do test...
  12. cyclinglady
    @tambrown When was your last celiac disease follow-up with your GI? You current problems might not be related to celiac disease at all. Learn more about follow-up care: Open Original Shared Link I hope you feel better soon!
  13. cyclinglady
    Welcome! You may have found the reasons for your fertility issues! You only need one positive on the celiac panel to move forward. Now, keep eating gluten and get a referral to a GI doctor. The next step is an endoscopy to obtain intestinal biopsies. Open Original Shared Link Why not just try going gluten free without a diagnosis? I think...
  14. cyclinglady
    Having celiac disease is like being in a roller coaster ride, when you newly diagnosed. You will have good days and bad days for a while. It takes a while to heal (weeks, months or years depending on damage). It takes time to learn the gluten free diet and to learn how to avoid cross contamination. Best to stick to Whole Foods instead of processed gluten...
  15. cyclinglady
    Welcome! Adhering primarily to a gluten free diet will probably resolve many of your other food intolerances. Focus on fresh foods and avoid wheat, barley, rye and oats. Here is more information about the gluten free diet: Open Original Shared Link Open Original Shared Link Open Original Shared Link It does take time to heal...
  16. cyclinglady
    The challenge is much shorter....two weeks for the biopsies obtained by endoscopy.
  17. cyclinglady
    Me too. We eat all their corn products. I never worry about a glutening from them, but nothing is impossible, just unlikely.
  18. cyclinglady
    The genetic test will not diagnose celiac disease because some 30% of the population carries the genes that could trigger celiac disease. Only a FEW actually go in to develop it though. Start with the TTG IGA and the IgA deficiency test. (The IgA deficiency test tells you if the TTG IgA test is valid/control test in regards to celiac testing. You need...
  19. cyclinglady
    I am sorry that your child is unwell! From my research, in as little as two weeks, antibodies can reverse or become undetectable. This does not happen to everyone, but it is possible. Kids too, tend to heal fast. Researchers recommend 8 to 12 weeks of consuming gluten daily (one slice of bread or equivalent). Just doing a two week challenge? I...
  20. cyclinglady
    I just had one positive on the celiac panel (DGP IgA), yet I had moderate to severe intestinal damage. Consider getting a GI consult. An endoscopy may be in order and usually confirms a diagnosis. I wish your child well!
  21. cyclinglady
    I am sorry that you are not feeling well. It could be cross contamination. Hard to say. I avoid grains because I have diabetes (carb really spike me and I might as well have some ice cream), but I feel good about purchasing corn tortillas for my family (marked gluten free) and I do indulge every once-in-a-while. It might be made in a shared giant factory...
  22. cyclinglady
    I would start with your doctor and get a prescription for an antibiotic. Amoxicillin is usually a first-line antibiotic for dental issues. Then, I think you will need to go back to the dentist. Your root might have cracked allowing for bacteria to enter. You will need an x-ray. You may need to have an Endodontist look for the crack. This happened to...
  23. cyclinglady
    Consider trialing the diet for six months and then get the celiac panel again. It's your DGP result drops, you have your diagnosis -- celiac disease or Non-celiac gluten Intolerance (or whatever they are calling it these days!). But find out the cost of the pill camera first. It might not be bad at all. While the pill camera might catch it, at least...
  24. cyclinglady
    Oh no! I am so sorry. No advice. I hope you recover FAST! Hugs!
  25. cyclinglady
    Oh, Skittles or other gluten-free candy, are good alternatives too for class parties.
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