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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
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  2. cyclinglady
    I am a Girl Scout and my daughter is a Senior. I am active in the troop and attend most meetings and events. We have one troop member since Daisys who has a severe peanut and milk allergy. We have always done our best to accommodate this girl. We have taken the time to educate ourselves (epi pen) and keep her safe. When we camp or have sleepovers...
  3. cyclinglady
    Glad that you found us! Here is the complete celiac blood panel. -Tissue Transglutaminase (tTG) IgA and (tTG) IgG-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG-EMA IgA -total serum IgA and IgG (control test)-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken...
  4. cyclinglady
    Did that granola bar contain gluten free certified oats? Even if it did, some celiacs do not process oats well at all. This has been a topic discussed for years by the celiac community. For some it does trigger gluten like reactions. Many of our members have strange food intolerances. Others are more common (soy, corn). I have issues still with Xanthan...
  5. cyclinglady
    No, the University of Chicago stated stool tests or otherwise: "Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex?We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support. ...
  6. cyclinglady
    Getting tested is your best bet on staying on the gluten-free diet. It is possible to go gluten-free on your own (like my hubby did) but it is hard. Not just the diet, but the possible lack of support from medical family and friends. Ask your doctor to test you vitamin and mineral levels. No need to guess. Next time notify the the bride to see if the...
  7. cyclinglady
    Jane Andeson on about.com usually has good tips for celiacs. I ate lots of yummy gluten-free things in England based on her advice and did not get sick! This article was published in August 2015 and talks about chocolate. I buy Endangered Species which is certified and delicious! Am a diabetic so I savor one square at a time. Open Original Shared Link
  8. cyclinglady
    You can always test the zinc for a short period of time. Make sure it is gluten free! You are probably right that you could be low in other minerals and vitamins that your doctor did not test for. I have Rosacea (even the ocular (eye) version. I noticed that foods can cause a flare-up (e.g. red wine, garlic, etc) Try keeping a journal.
  9. cyclinglady
    Here is an old link to a 2011 posting about this very subject: I can not offer personal advice. I am have an intolerance to onions and garlic so pizza is out! Dang! This linked strangely. Anyhoo......go ahead and click on it and it will open to the entire posting. Lots of great tips to avoid soggy gluten-free pizza.
  10. cyclinglady
    But you said you do have symptoms: fatigue and low HB (I assume this is low hemoglobin which makes you anemic). I would encourage you to research the impacts of anemia! I have two anemias. One is a genetic anemia called Thalassemia which in my case is mild (hemoglobin just slightly out of range) But the other is iron-deficiency anemia brought on by celiac...
  11. cyclinglady
    Shannon, I tested positive to only the DGP IGA when I was diagnosed in 4/2015. My biopsies revealed moderate to severe damage (Marsh Stage IIIB). Since my hubby has been gluten-free for 14 years, I knew the diet well. I never went back for celiac disease testing because I was feeling well and my anemia (main symptom) was resolved. I got glutened this...
  12. cyclinglady
    Glad things are improving! Rest as much as you can this weekend. Go ahead and have some coffee or tea -- just do not overdo it. I can not give advice about the flu shot. Last year's batch was a dud and was not effective. Hopefully, they'll get it right this year! They select three strands when they are many strands of the flu virus. So, it's a crap...
  13. cyclinglady
    Well....welcome to the forum! Unfortunately, there is a lot of controversy as to whether the Cyrex test is helpful in diagnosing celiac disease and there is no known test for detecting Non-Celiac Gluten Intolerance or sensitivity. You can read about it here a the University of Chicago's celiac website (leading U.S. researcher): Open Original Shared Link...
  14. cyclinglady
    Did you look up EoE? Try researching Mast Cell Activation Syndrome. It has allergy symtoms like face and throat swelling, hives and anaphylaxis, abdominal pain and other symptoms but you test negative on allergy panels. EoE is linked to Mast cell Activation syndrome. Those two diseases require epi pins.
  15. cyclinglady
    There are over 300 symptoms of celiac disease and some people display NO symptoms! You should make sure you get copies of all your lab tests. It is your right! Only you can be your best health advocate (or your Mom!). You need to really make sure your test results indicated that you have an issue with gluten. You do not want to give up gluten if that...
  16. cyclinglady
    I agree with Knitty Kitty, you should consider testing for celiac disease (gluten challenge) after you get tested for a wheat allergy (there is no such thing as a gluten allergy per my research). Another thing to research would be Eosinophilic Esophagitis. A few of our members have this issue. I hope you figure it out!
  17. cyclinglady
    Getting glutened can happen to the best of us! There is no quick fix. Everyone heals at a different pace. Remember, Celiac disease is not an allergy but an autoimmune response that is triggered by gluten. It sets off a "flare-up" of symptoms. It can last a few days, weeks or even months! I was glutened at the beginning of July (unknown source) and...
  18. cyclinglady
    Your question? This link to the University of Chicago says it all. Read the entire website. They are one of the leading researchers in the US. http://www.cureceliacdisease.org/archives/faq/what-is-an-ema-blood-test
  19. cyclinglady
    Daisy, I am so sorry that you are sick! Your doctor........what can I say? You should ask for a complete celiac panel since you have what seems like one positive. I would get copies all of your lab tests. You should completely rule out celiac disease before going gluten free. I had Hashimoto's for the past 20 years. It often goes hand-in-hand with...
  20. cyclinglady
    It sounds like you did not get confirmed for celiac disease with an endoscopy which is the normal protocol. Be sure to tell your GI that you have been gluten-free for a month or longer. He can check for SIBO, colitis, H Pylori, etc if he orders an endoscopy. In the meantime, eliminate all dairy. Celiacs are often temporarily lactose intolerant. Hang...
  21. cyclinglady
    I use Neutrogena mineral powder, but I have used it for years, long before my diagnosis. I just like it! Clean your makeup brushes. It should clean out any gluten, but my brushes really don't get near my mouth. I use sponges to apply my foundation on the now rare occasions that I use it. Now that I am old and long married, a quick swipe of lipstick...
  22. cyclinglady
    I agree with Barty. You might not be healed yet and that's why I pointed out our Newbie 101 thread. It never hurts to brush up of gluten free basics. Something might have slipped through the cracks. This cramping 24/7 does sound odd and should be investigated by a doctor. You sound young and usually younger folks with good dietary gluten-free adherence...
  23. cyclinglady
    If you are considering the celiac blood panel (convince your doctor), you must be consuming gluten daily for 8 to 12 weeks or chances are, your test will be negative. Research the University of Chicago's celiac website. They are one of the leading researchers in the U.S. Also check the Gastroenterology's organization in Great Britain for symptoms and protocol...
  24. cyclinglady
    I use one of those powder/mineral foundations. No gluten there. Physicians Formula has a few products that do not contain gluten and it states it on the label, but always read the label as products change. I use their concealers. I use Gabriel lipstick found in Sprouts which is like a cheaper Whole Foods. It is certified gluten-free. It is also on Amazon...
  25. cyclinglady
    I am so sorry that you are struggling to get a diagnosis! It is all too common. I do not know about the Biocard, but we have had some members use it, and hopefully they'll respond today. I can give you the complete list for the celiac blood panel: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG-EMA IgA...
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