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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I agree with Ennis. Did you get ALL the celiac blood tests? If my doctor had just ordered the screening TTG IgA, my diagnosis would have been missed. I test positive to only the DGP IgA, even on repeated tests.
  2. cyclinglady
    Anxiety is common when you have celiac disease. Remember, it is systemic and effects so many different parts of the body, including your brain! And who would not be anxious when you are feeling awful, probably not sleeping well, and having to think constantly about every bite of food you consume (at least in the early days of diagnosis). I agree...
  3. cyclinglady
    Okay. If you trial the diet, make sure you are really gluten free. Read through the forum for tips and advice like avoiding processed Foods and not eating out until you see results. Good luck and I wish you well!
  4. cyclinglady
    It only takes one positive to get a referral to a GI. You have several positives, but that does not mean you have more damage or any damage at all. The blood tests are only a part of the diagnostic process. Researchers thought they would actually be enough for a diagnosis when they were developed, but lately they have agreed that the biopsies are still...
  5. cyclinglady
    Before you go gluten free, please ask your primary care physician to run a celiac disease blood test on you. Going gluten free for a person with celiac disease is very hard. Make sure you need to do so. Just because you might have a genetic issue in your family, does not mean that you will get that disease. 35% of the population in the US has...
  6. cyclinglady
    Hi! Know that we are NOT doctors, but you (or anyone else) can see several test positives. That means that you are likely to have celiac disease. The next step is to consult with a Gastroenterologist. Celiac disease is usually confirmed via an endoscopy to obtain intestinal biopsies. It can also assess the damage and create a benchmark for future...
  7. cyclinglady
    Thank you! ?
  8. cyclinglady
    Hi! Only you can decide whether or not a gluten challenge is right for you. One to two slices of bread (or equivalent) per day for 8 to 12 weeks for the blood tests. If you are going to do it, please insist on the entire celiac blood panel (TTG, EMA and DGP). Why? Because I tested positive to only the DGP IgA and that includes several follow-up...
  9. cyclinglady
    Maybe, but clarify with your GI. In any case, there is not much you can do. My strategy is to reduce inflammation and slow down or stop the autoimmune process. Good dietary practices, relaxing and exercising are good coping strategies for me. Healing from celiac disease is critical. I am doing well. It has been over a year since I pulled out...
  10. cyclinglady
    Here is where your true friends are identified. They either accept you and your new way of eating and are supportive. If not, they are not really friends. Most of my friends get it after I have explained celiac disease comparing it to lupus or MS. They are accustomed to eating at my house. They bring wine, drinks, or dessert (like clearly labeled...
  11. cyclinglady
    I am glad that you are seeing some improvements. When you were diagnosed with Gastritis, was it just based on a visual observation made by your GI or was it identified by the pathologist? I ask because you can have inflammation in the stomach from undiagnosed celiac disease (causing GERD, indigestion, etc.) or you can have autoimmune gastritis which...
  12. cyclinglady
    My cholesterol increased after my diagnosis. It used to be very, very low and my doctors were happy about that. Now I know that it was probably due to the fact that I was not absorbing my foods properly. I do not worry about cholesterol. I worry more about my blood glucose levels which might just contribute to heart disease rather than cholesterol. ...
  13. cyclinglady
    I think you need to more time to heal after that last gluten exposure. I am talking months! Focus more on a gluten-free diet with less processed foods (easier to avoid gluten and healthier too) and not eating out. Know that everyone is different. It is always good to keep and food journal and note symptoms. This will help you identify any foods...
  14. cyclinglady
    I wholeheartedly agree with NNowak! I could have said it better. ?
  15. cyclinglady
    GFinDC is absolutely correct. All celiac disease testing requires you to be on a full gluten diet (1 to 2 slices per day or equivalent. Based on two slices of toast in six weeks, it is no wonder that you received negative results. Did the GI or your GP know that you were gluten free or light? Maybe you can do a gluten challenge and re-test if you really...
  16. cyclinglady
    Welcome! I was diagnosed with celiac disease (Marsh Stage IIIB) about six years ago. No gastritis, no H.Pylori. About two years ago, I suspected a celiac disease flare-up. I struggled to recover. I tried to figure out how I had been exposed to gluten (DGP IgA antibodies off the charts). I had with theories, but no proof of my gluten exposure....
  17. cyclinglady
    If he had a low positive on the TTG IgA and he has a low iron level, you should see a Gastroenterologist for further evaluation. Anemia (low iron) is common in celiacs. I would not wait three more months. Why make your son suffer? Get another opinion is my best advice.
  18. cyclinglady
    I think we all know (active forum members) that washing eating utensils in soap and water (rinsing with running water and not dunking) makes it safe for celiacs. That includes hand washing or in a dishwasher. I am living proof (biopsy-confirmed healing) that washing non-porous surfaces works. What is not clear is using a knife that had previous cut through...
  19. cyclinglady
    Welcome to the club that you never wanted to join! ? At least take comfort knowing you have a diagnosis. So many people do not know. ? Research is your best defense.? Learn all that you can about avoiding gluten.
  20. cyclinglady
    Sorry, but the study you referenced was about anti-gliadin and cross reactively with “neurological transmitters” (Synapsin I proteins). https://en.m.wikipedia.org/wiki/Synapsin The dispute is whether foods like coffee, milk or orange juice can “cross react” and cause a celiac disease flare-up which is NOT true. I consume oranges, milk and cof...
  21. cyclinglady
    How about this very little processed gluten free pancake recipe? 2 eggs, 1 ripe banana, a dash of cinnamon, fry in butter. My kid likes to add chocolate chips. I like the fact she is getting egg protein/fats instead of mostly carbs. Maple syrup is not needed!
  22. cyclinglady
    Ennis gave great advice. When your doctor measures your iron, be sure she checks ferritin (iron stores). How you process iron might be just fine on a lab report, but you could have low iron stores which can slow you down. That happened to me. Also have her check you for thyroid antibodies since you have celiac disease (commonly linked). Just...
  23. cyclinglady
    Next year! Hubby will be delighted.
  24. cyclinglady
    Glad that Golden provided an answer. I want you to be able to sleep. The endoscopy is easy. Eating gluten to purposely ramp up an autoimmune reaction after being gluten free is not! Most people get pretty sick (and that would be me). My Internist handles my annual check ups now. But I ran into a problem two years ago, so I went back to my GI...
  25. cyclinglady
    Please do not take offense. I was comparing a dollar to an expensive hospital visit or missing work. I was trying to look at the big picture. ? I called home once when I was out on my own for food advice. One of my roommates had a jar of mayonnaise in the refrigerator. I did not know how long it had been there. My Dad answered. He asked me of...
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