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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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	Fish?? Gosh, that's a new one! My dermatologist's nurse also gave me the "well, it only matters if you ingest it" to which I replied "well, if I get it on my hands and then touch something in my kitchen..." She told me that I should be washing my hands after applying... Which is good advice, but we'd just discussed how I touch my face way too much and...
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				ARCHIVED Is It Possible To Absorb Meds Differently When Starting Diet?
kbtoyssni replied to jesscarmel's topic in Coping with Celiac Disease
Apri is gluten-free, and yes, it's possible that you're absorbing more of the meds so getting more of the side-effects. It's certainly worth trying a different brand. And now that you mention it, I've been getting odd headaches behind my eyes ever since I started taking Apri again... - 
	
	
				ARCHIVED Someone Reported Me For Using Toaster Bags
kbtoyssni replied to floridanative's topic in Coping with Celiac Disease
I love my toaster bags! I got mine online; here's an ebay link: Open Original Shared Link I find that story pretty amusing! Thanks for sharing! Was she worried that you were going to set the place on fire??? Maybe she should have asked you about it before running to management. - 
	
	
				ARCHIVED Travelling To England And Scottland
kbtoyssni replied to LRgirl's topic in Traveling with Celiac Disease
I love going to England - they have the best-tasting gluten free sweets! The Free From brand is amazing. Gluten free is very well labeled there so you shouldn't have as much trouble. What airline are you taking? I always fly American Airlines, and I'm a little leary of the gluten-free menu. Twice they have given me four-grain crackers - two of the... - 
	
	
				ARCHIVED Update/ To Brother In A Heap
kbtoyssni replied to winki4's topic in Parents, Friends and Loved Ones of Celiacs
I'm so sorry to hear that. You will be in my thoughts. - 
	
	
				ARCHIVED Cant Stop Eating Gluten
kbtoyssni replied to TiffTiff's topic in Coping with Celiac Disease
It will be hard at first. Your body is likely addicted to gluten which means you're going to crave it and want to eat it. That's my best guess as to why you're having trouble giving up gluten. The only way this craving will go away is to go cold turkey for a week or two. You have to trust that the cravings will go away and stick with it. - 
	Hi everyone. I've been having a lot of problems with stiff and painful joints when I work out. One day it will be my knee that hurts, the next my elbows. It's like the pain just rotates from joint to joint. I do have occassions when it stays in one joint for a prolonged period of time, too. I'll admit that I do choose higher-impact sports like gymnastics...
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	I would also talk to the cooks before you go into the hospital. You might also want to print up some informational cards for the nurses (kindof like the Triumph) dining cards that emphasize the cc issue so you won't have to explain it all. You might have to recruit your husband to do the talking for you in this case.
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				ARCHIVED Just About Out Of My Noodle.. Help?
kbtoyssni replied to MissBlueJ05's topic in Coping with Celiac Disease
You could try asking the manager at your local grocery store if they ever sell the "ugly" fruit or dented cans for cheaper. Usually they'll just throw this stuff out. Local farmers markets are good places to get cheap produce, too. - 
	
	
				ARCHIVED Thank You, And Hello
kbtoyssni replied to UR Groovy's topic in Introduce Yourself / Share Stuff
Welcome! - 
	
	
				ARCHIVED Hello From A Newbie!
kbtoyssni replied to playtowin123's topic in Coping with Celiac Disease
Welcome! - 
	
	
				ARCHIVED Nearly Convinced My Son Hasn't Got Celiac!
kbtoyssni replied to Peta's topic in Parents, Friends and Loved Ones of Celiacs
I've heard of a lot of people who have negative blood tests and postive biopsy and vice versa. I don't think doing the biopsy is completely without value here. I've missed your background - why do you think your son has celiac? Would you consider trying the diet after the biopsy? - 
	Sorry and good luck finding a new doctor. I try to look for someone younger. They may not know a lot about celiac, but they tend to be more willing to learn and try non-traditional things. They would probably still be on the "accepting patients" list just because they're new. I'm not sure if the reason doctors don't believe you is because you don't have...
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				ARCHIVED Just About Out Of My Noodle.. Help?
kbtoyssni replied to MissBlueJ05's topic in Coping with Celiac Disease
I try to use baked potatoes, rice, eggs, and corn tortillas (the mexican-style that come in packs of 36) as a base for my meals. It is much cheaper than bread and pasta. I also shop the sales big time. If something non-perishable is on sale, I buy a lot. Buying frozen veggies is often cheaper than fresh, too. - 
	Some brands are "safe" - if the flavourings have gluten they will label that. Kraft is one. One thing that helps now is that in the USA, companies are required to label the eight major allergens which includes wheat.
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				ARCHIVED Celiac Girl Scout Campout
kbtoyssni replied to kschell's topic in Parents, Friends and Loved Ones of Celiacs
I went on an overnight with my girl scout troop last year and I brought all my own food. I was an assistant leader and there was no way I was going to trust a bunch of nine-year-olds not to cross contaminate my salad! We did have access to a kitchen. I tried to bring similar food (like a sandwich for lunch rather than a sub). Didn't want to make the girls... - 
	
	
				ARCHIVED Enterolab Tests In For Daughter
kbtoyssni replied to sore joints's topic in Parents, Friends and Loved Ones of Celiacs
You may not even realize some of the effects gluten is having on her until she goes gluten-free (I know I found a tons of health issues that cleared up after going gluten-free that I never expected to go away). And even if she only has a few mild symptoms now, I suspect they will get worse the longer she stays on gluten. I think it would be best to take... - 
	
	
				ARCHIVED Update On Mom Accused Of Msbp
kbtoyssni replied to concerned-mom061's topic in Parents, Friends and Loved Ones of Celiacs
Congratulations - I'm so happy for you. You must be so relived to have your daughter back. - 
	I also question what is causing the stress. Is it your job? Personal life? Newly gluten-free status? Simply too busy to get everything done? I think you really need to identify what's causing you the anxiety and try to change that part of your life. Adding more "me" time to your life can help, too - like working out, vegging out in front of the TV for...
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	I do not eat at buffets because of the risk of CC. When my friends go to a buffet, I bring my own food. Sometimes I'll get the waiter to heat it up for me. Since this is a work function, I would try calling the place and explaining your situation and ask if they can make you something separate on a plate.
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				ARCHIVED Birthday Treat Succes!
kbtoyssni replied to aikiducky's topic in Coping with Celiac Disease
Happy (slightly belated) birthday!!! - 
	
	
				ARCHIVED Some Urgent Questions.. Please Help
kbtoyssni replied to a topic in Coping with Celiac Disease
Is it true that celiacs crave things? (pasta, pretzels, etc?) If so, how do you get over this?? I've visited before telling everyone my dilemma to which the reponses were a good & solid agreement that I would indeed be a celiac, etc. (not that anyone posed as a doctor & that was completely understood) However, I have searched many places & dont... - 
	
	
				ARCHIVED Mad At Grandmother For Glutening Baby...
kbtoyssni replied to zachsmom's topic in Parents, Friends and Loved Ones of Celiacs
Some people just won't listen. When I was a kid dairy and sugar made me extremely hyper - like off the walls for three days. My mother would tell people not to give it to me, but they would anyway. And then they'd get scared when I started going wild and call my mum and she'd take me home and deal with me for the next three days. They were never the... - 
	
	
				ARCHIVED Not Sure Where I Belong?
kbtoyssni replied to Rook's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
There are lots of other good pastas out there, too. I always get DeBoles brand (I think that's how you spell it - it's in a blue box). I think I must be the only person on this board with this opinion, but I don't think Tinkyada is better than other pastas. DeBoles is just as good to me. And feel free to post where ever you think the topic fits best... - 
	
	
				ARCHIVED Hair Growing Faster?
kbtoyssni replied to ReneCox's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Huh. Now that you mention it, mine has been growing faster. I used to get it trimmed every 3 months or so and now I'm getting an inch or two cut off every 6 weeks. Just got a haircut today, in fact!