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LauraTX

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Everything posted by LauraTX

  1. LauraTX
    Time to change doctors. Also, if your insurance does not require formal referrals to specialists, you can make an appointment yourself with a pedi GI and allergist. If your insurance requires referrals you can still do this, but they will not pay for those visits. However, probably the best route is to change her primary care doctor ASAP, because if a...
  2. LauraTX
    I got the sandwich bread, which does have dairy. But from a few things I read on places like yelp, tripadvisor, urbanspoon etc, they have been around a long time and have a lot of good, perfected recipes. Got 8 loaves of that, 2-2packs of pizza crust, an order of 2 chocolate whoopie pies, and an order of chocolate donuts. Tried it all except the pizza...
  3. LauraTX
    Ah yes good point by Addy... deli meats and ham do freeze really well. I freeze everything since cooking for two without waste can be a challenge.
  4. LauraTX
    Adhesive sensitivity is definitely a real problem and not umcommon. There are a few things you can do. If you find out a kind of tape/bandaid that doesn't bother you, buy a ton of it and bring it to appointments and have that noted on your chart. Also, when you get things like blood draws and they use a bandaid or make one from tape/cotton, have them wrap...
  5. LauraTX

    ARCHIVED Guilt

    LauraTX replied to skelly247's topic in Coping with Celiac Disease

    I totally understand how you feel here. I am normally a very giving person and don't like attention to be on me. So when people do special things for me, it sometimes makes me feel guilty and uncomfortable. Just remember they are being genuinely nice and helpful to you, and try to teach yourself to relax and let it happen.
  6. LauraTX

    ARCHIVED Whole Foods

    LauraTX replied to quincy's topic in Gluten-Free Restaurants

    It may be helpful to talk with the kitchen staff, like GFinDC said. If they put out gluten-free food next to gluten food on the hot line, they maybe could get you some from the back, or you can call in your order ahead of time and have them get it from the main container before they put it out on the line. You can also ask them to change their policy to...
  7. LauraTX
    Today for dinner is crock pot red beans and ham. I was super excited today because I got in my order of stuff from Gluten Free Creations Bakery. Their Sandwich bread was the "omgomgomg this is the best gluten-free bread ever" I had in the hospital and I ate some today and was in heaven. Threw in a chocolately treat or two to go with it as well, lol. I...
  8. LauraTX
    Hormel Cure 81 is really good, I think that is their premium line. Hormel products seem to be labeled gluten-free on the label when they are, I want to say all their hams are but of course, double check. Jones dairy farm hams are all certified gluten-free and really good, but Im not sure if they have big spiral sliced ones. Like Addy said, it is more common...
  9. LauraTX
    Very Interesting, Thank you for posting.
  10. LauraTX
    I was thinking of picking some up now that I have my gallbladder out... for when I reintroduce some foods that I couldn't eat before, especially fatty foods. I need to look into it as well!
  11. LauraTX
    Woe to anyone who trusts a non-expert store clerk with health advice.
  12. LauraTX
    That sounds good, may need to try johnny carinos! I think I had read they had a gluten-free menu but never heard any opinions on it.
  13. LauraTX
    Some doctor somewhere told me... "There is a reason it is called 'practicing medicine'- it is not an exact science." Just think of what house does in every episode! I bet a lot of us (myself especially included) are those weird mystery patients with all our many conditions... LOL
  14. LauraTX
    If you feel, in good faith, that this doctor is dangerous and should not be practicing medicine or needs remediation, you can report them to your state medical board, and they will investigate and determine if something should be corrected. I don't think that is the case here. Either way, given the prevalence of uninformed medical professionals about celiac...
  15. LauraTX
    That looks like a spammer got ahold of that account to me. Their "good" tactic on message boards is to throw a bunch of random S--- copied and pasted from random sources together to make it look like something and include links and hope people will click it. Edit: either that or many errors made with copy/paste or drunk posting... lol
  16. LauraTX

    ARCHIVED Lupus

    LauraTX replied to Celiacandme's topic in Related Issues & Disorders

    A little less often now. I think its been months, my doctor is going to test them when I go in may. When you are in a flareup they will test regularly, but when not in flareup, they will test every so often. My doctor seems to go more by how you are feeling as an indicator of control. I suppose that is what matters the most!
  17. LauraTX
    Addy, I grew up with Nun's Puffs being called Nun's Farts. Catholic family thing I guess, LOL
  18. LauraTX
    I eat popcorn all the time. I have a cheap air popper and I can make however much I want and control what goes in. I eat a lot of bananas, lately I have been making fruit smoothies as a late night snack for the husband and I. I am also a fan of the Snyders gluten-free pretzels. They are one of the few direct replacement products I buy. I buy the Van...
  19. LauraTX

    ARCHIVED Lupus

    LauraTX replied to Celiacandme's topic in Related Issues & Disorders

    In 2012 I was having GI problems related to my gallbladder and GERD, and on Dec 31 I had an upper endoscopy at which they discovered an abnormal biopsy by accident. That led to them doing bloodwork and in Jan they diagnosed celiac. Also in Jan I was having a lot of joint problems and my doctor found a positive ANA and CRP in blood tests, sent me to a rheumatologist...
  20. LauraTX
    The person you are questioning has already said they have the symptoms of wilsons disease, just not the currently known genetic mutation. We all consume copper in our everyday diets, which usually isn't a problem unless you have a problem eliminating it, like they do. So they likely did not have an overexposure, just a natural buildup over time without...
  21. LauraTX
    Hi Raisin, Sometimes with issues like these where you are torn between actions and having problems with self control, talking with a professional can help. A psychologist, social worker, or therapist can talk through these issues with you and won't prescribe meds like a psychiatrist does. If you lack health insurance or the financial resources for this...
  22. LauraTX
    Today for dinner I threw in a pre prepped and frozen recipe of Apple BBQ pork tenderloin in the crock pot that I had thawed out. I modified this recipe: http://homegrownandhealthy.com/crock-pot-apple-bbq-pork-tenderloin/ to use just smooth applesauce, more seasoning, and added some water because my BBQ sauce was thick. Turned out really really good. When...
  23. LauraTX
    Just stick with it for at least a good 6 months before you give it up. With a celiac there are a lot of ups and downs as the gut heals. I hope going gluten-free gives you relief in the long term. Read through the forums here and make sure you are being super strict with it, because if gluten is the problem it is an all or nothing kind of situation... one...
  24. LauraTX
    Oh, I will do that! I should see him at my next IVIG infusion on the 17th. Sometimes I don't get to see him but I think I didn't last time so I should see him this time definitely. I am kind of like you, I can't just let things lie if something may possibly be wrong. That led to me finally getting everything properly diagnosed so I could treat the problem...
  25. LauraTX
    If you want to keep reaching out for answers, you may consider a doctor with a specialty in Allergy, Asthma, and Immunology. If you can, get someone who is a "Fellow of The American Academy of Allergy, Asthma and Immunology (AAAAI) who has FAAAAI after their name. The only reason I know this is I have an immunodeficiency and see an immunologist who is...
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