Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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Just FYI, the dairy components of the diet are often omitted. I started out on SCD, but without the dairy, and then realized it was virtually the same as a "paleo diet" but with a lot more fussing over food. So I switched to paleo. I've since found there's things other than dairy and gluten that cause me issues. It seems like foods like nuts and seeds...
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Aw, sorry you're having withdrawal symptoms. I never had any at all, at least that I could identify.
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ARCHIVED Does Anyone With Celiac Disease Hear Their Pulse?
Nancym replied to jackay's topic in Coping with Celiac Disease
That can be a symptom of thyroid issues. When I was hyperthyroid I heard my heart beating at night. Very unsettling. -
ARCHIVED I Swear I Have Celiac Disease...but....
Nancym replied to ktnhsv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, you're in luck. This is one disease you can test yourself and treat yourself if you put your mind to it. Just get up to speed on the gluten free diet. I suggest eating foods as whole and natural as possible, eliminate the manufactured stuff so you don't have to worry about cross contamination. If you have to spend more than 2 seconds looking at... -
ARCHIVED Help With Enterolab Results
Nancym replied to Jaxella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
People can be intolerant to casein (protein) or lactose (sugar). You're probably lactose intolerant, but not casein intolerant. Food intolerances are not allergies. They work differently. -
ARCHIVED Sores In Mouth - Symptom Of Gluten-intolorance As Well As Celiac?
Nancym replied to Lynayah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used to get canker sores a lot. Started as a kid, continued into adulthood but not as frequently. AFAIK I am gluten intolerant, none of my testing for celiac came back positive but I didn't test until after I went gluten-free. -
ARCHIVED Is Positive Genetic Test Enough For Some Of You To Go Gluten Free?
Nancym replied to Newbyliz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me the decision was pretty simple. Make a temporary change in my diet to see if long standing issues went away or continue to suffer and put myself at the mercy of current medical practices constantly which weren't doing me a bit of good, and were quite possibly making things worse. I had my answer very quickly after going gluten free. -
ARCHIVED My Family Is Insisting I Get Tested
Nancym replied to positivenrgfairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you don't have health insurance then I'd do a dietary trial and call it a day. If your symptoms get better, then you know what you need to do. There's no guarantee that testing is going to resolve all your questions anyway. Lots of people go through many painful, very expensive tests and never get an accurate diagnosis of anything. I had one doctor... -
ARCHIVED Can I Get A Description Of A 'brain Fog'?
Nancym replied to soulcurrent's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For me brain fog meant terrible memory and poor mental performance. I felt like someone had replaced my brain with a lot of wool. -
ARCHIVED Bone Scan Results
Nancym replied to Tigercat17's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't know if there's any answers here for you but I've been following this doctor's blog and his post today is about Celiac disease and bone loss Open Original Shared Link -
ARCHIVED Health Care Reform And "unnecessary" Tests
Nancym replied to knittygirl1014's topic in Doctors
Right now the way things are you could lose your health insurance because you failed to tell them you had a stomach ache 10 years ago and they could refuse to pay any bills you racked up at all, deciding that you were trying to get covered for a pre-existing condition. And your recourse is basically to find another company to cover you which now you have... -
ARCHIVED Day 1 Of The Kitty And The Air Mattress Has Been A Success
Nancym replied to The Fluffy Assassin's topic in Introduce Yourself / Share Stuff
Trim her nails? I keep my kitty's nails clips. Just the tips. I wait until he's sleeping, gently get a paw, push out a nail and quickly clip off the tip. Over the years he's gotten really used to it and I can usually do it while he's awake. I just fuss over him a lot and he loves the attention. On a lark I even tried to file his nails once and couldn... -
ARCHIVED Feel Like I'm Going Crazy...
Nancym replied to Angi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I remember seeing an episode of Mystery Diagnosis, a lady with something wrong that was causing excess cortisol hormone production. She gained a ton of weight, had changes in her mood, and she had that buffalo hump. Cortisol is a stress hormone linked with adrenaline and such, could this be a possibility? -
ARCHIVED Tiredness On Onset Of Period
Nancym replied to gracesmom's topic in Coping with Celiac Disease
I get dysmennorhea (Open Original Shared Link). Which is loads of fun! Tiredness is all just part of it. It has gotten worse as I've gotten older. -
ARCHIVED Im 13. Gluten Free 7 Weeks And Still Get Bloated
Nancym replied to runningcrazy's topic in Coping with Celiac Disease
You might try to cut out dairy and see if that helps. -
ARCHIVED Gluten Free, Soy Free Soy Sauce?
Nancym replied to BeckyW's topic in Gluten-Free Recipes & Cooking Tips
They have wheat-free Tamari in about every store I've been to. Tamari is virtually the same as soy sauce. -
ARCHIVED My Vent....
Nancym replied to Amyleigh0007's topic in Parents, Friends and Loved Ones of Celiacs
And they wonder why even kids are joining the obesity epidemic and getting non-alcoholic fatty liver disease and type 2 diabetes and ever younger ages. Schools shouldn't be fostering an environment where kids are getting sweets all the time. They could easily do this project with clay. -
ARCHIVED Allergic To All Grains -- What To Do For Carbs?
Nancym replied to AndrewNYC's topic in Food Intolerance & Leaky Gut
Starch turns into sugar very shortly after eating it. In fact, the process starts in your mouth as you chew, there's amylase in your saliva that turns starch to sugar. It continues on through the digestive tract. Essentially when you're eating starch, you're eating glucose. There's no requirement for starch in the human diet as we're able to create all... -
ARCHIVED Raw Food Diet For Cats
Nancym replied to Jestgar's topic in Introduce Yourself / Share Stuff
There's a lot of groups on the internet with tons of info about raw feeding. I don't do raw diet right now, but I do feed my cat only meat sources, mostly, and 0 grains. I think grains are horrible for cats, probably dogs too. Evo makes a great canned product. I have cooked food for my cat and added extra vitamins (some things are destroyed when you... -
ARCHIVED For Everyone Who Is A "self-diagnosed" Celiac...
Nancym replied to glutenmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To myself I call myself gluten intolerant but it's just easier to describe myself as celiac to others than having to recite a lot of abstracts and papers and explain things to people whose eyes glaze over if you get too technical. As far as I know, gluten intolerance can be just as bad, or perhaps sometimes worse, than celiac disease. I'll be happy... -
ARCHIVED Too Many Potatoes!
Nancym replied to Juliebove's topic in Gluten-Free Recipes & Cooking Tips
I suppose you could pre-cook them and freeze them then add them to stews later on. I've found frozen mashed potatoes too at Trader Joe's, another way to pre-process them. -
ARCHIVED What Do You Do When Your Starving?
Nancym replied to UnhappyCoeliac's topic in Coping with Celiac Disease
I think you can find nuts easily at most convenience stores. You might want to check out various brands but probably most just salted nuts are ok. Lara bars are available at a lot of places now, but tend to be more common at health food stores. They're smallish, so you could fit them in a pocket easily. There's lots of junk food that is supposed... -
You should grapple with any issues you have being specific about what you order. You can't assume anything, especially in a Chinese restaurant. Just tell them to make sure there's no wheat or soy sauce (which they use freely). Even better, get some English/Chinese dining cards like they make for gluten sensitive people and use them. I usually hand them...
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ARCHIVED What To Do If You Can't Cook
Nancym replied to ranger's topic in Coping with Celiac Disease
I'd probably see about getting a personal chef familiar with gluten free cooking. Not sure how much that would cost though. Another thought is finding a restaurant you trust and having their meals delivered. Another thing that might help would be to just eat once a day. Then at least you don't have to worry 3x a day! Or perhaps I'd try to live on protein... -
ARCHIVED Should I Allow Myself To Get Glutened For My Trip To France?
Nancym replied to jasonD2's topic in Coping with Celiac Disease
You might want to invest in a diner's card that is written in French/English. I bought a set of them from Triumph Dining. Very useful. Anyway, from what I hear Europe is light-years beyond the US in recognizing and dealing civilly with Celiac disease sufferers, so I doubt you'll have any issues. I think maybe guys suffer a little more from the social...