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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Nestlé GoFree Corn Flakes Now in UK
cristiana commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
Oh no... when does that start? I can still see them online but perhaps all the supermarkets are selling their remaining stock?- 5 comments
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- corn flakes
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
I'm totally with you - hard work indeed! If you can book an u/s before your appointment, I'd probably go down that route even if I had to pay for it privately just to eliminate that. However, one other thing I forgot to add - I suffer from a weird pain which one doctor has said is pudendal neuralgia (worth looking up) and another has said it is...- 65 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Hi Aussienae I'm so glad I saw this as I'm not on the forum much at the moment due to work and family commitments. I am in a bit of a rush so forgive me for not reading all this post if I am repeating anything but when I had pain return I noticed that I was overdoing the dairy somewhat and cut back and that helped. Also worth checking if gluten is...- 65 replies
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I get bleeding gums but find interdens brushes help, plus Corsodyl spray. I was talking to my dentist about this the other day and he gave me another good tip - before brushing your teeth, run your toothbrush under hot running water. Apparently it helps soften the bristles, remove old toothpaste and food particles and should help. For sensitive...
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24 /48 hour fever, vomitting and sweating galore
cristiana replied to Mathew's topic in Related Issues & Disorders
TBH, since my diagnosis I find my own symptoms come and go. I often google this forum for help, find an old thread that is really helpful, packed full of relevant advice to my current set of symptoms, and then find that no wonder it is so helpful, as I started the old thread in question! Just goes to show that gluten must also affect my memory! Do... -
24 /48 hour fever, vomitting and sweating galore
cristiana replied to Mathew's topic in Related Issues & Disorders
One thing you might wish to do - sorry if this has been suggested already - is to keep a food diary of everything you are consuming, including drinks and medication, just to see if there is any pattern emerging. I note you are on SSRIs and I've had a quick google for you on NHS. I see that sometimes they can cause some of the symptoms you describe... -
24 /48 hour fever, vomitting and sweating galore
cristiana replied to Mathew's topic in Related Issues & Disorders
Last week gluten-free cheesecake was on offer at my friend's birthday tea, and I felt really rough after that, and haven't felt at all good since. I think I was glutened, a very small amount, not enough to vomit, but to feel sick on and off for days. I try not to eat out anymore because this nearly always seems to happen to me. Yet I have friends who... -
24 /48 hour fever, vomitting and sweating galore
cristiana replied to Mathew's topic in Related Issues & Disorders
Don't worry ..... I've seen quite a few mentions of this reaction online, it does take a bit of searching, but we are defintely not alone. Personally, if I am ever glutened again like I was with that cake I'll be heading straight for the bathroom to be sick, and then to bed. I can't imagine being able to do anything else. In the past I have... -
24 /48 hour fever, vomitting and sweating galore
cristiana replied to Mathew's topic in Related Issues & Disorders
The only time I've vomited badly since I was a child was a couple of Christmasses ago when I was given a slice of glutenous cake. The flour was Dove organic, not Dove gluten-free, and had been put in the wrong aisle at the supermarket. Grrrrrrrr. I had extreme chills, hot/cold, hot/cold and felt so dizzy I thought I'd pass out. My heart seemed to... -
Genius Multi Seeded Bread
cristiana replied to Joe Phillipson's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Joe, How funny you should post this. I bought a loaf of that very bread from Waitrose a couple of hours ago and I thought I was seeing things. I noticed this phenomenon first a while back when Tropicana seemed to shrink. I think it used to come in 1 litres and 2 litres, I could be wrong?? But now it's 900 ml and 1.7L. I think it's called... -
Leg pains that come and go all night
cristiana replied to Attanett's topic in Related Issues & Disorders
Hi there, @knitty kitty. Yes, I totally agree with you. Sorry, I expressed myself badly - what I ought to have written was that I was wondering if the sometimes severe sensations that RLS can bring about might be expressed verbally as pain by a three year, whereas an older person would say it was an unpleasant creeping/crawling feeling. It was the fact... -
Hello there TB93 I hope you do feel better soon. I do get chills where my face gets red, and I feel hot and cold throughout my body, about 1-2 hours after glutening but I don't think I've ever experienced it after a day. I don't suppose there is a chance you were glutened after the wedding? I suppose as well it could be a viral infection? ...
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Leg pains that come and go all night
cristiana replied to Attanett's topic in Related Issues & Disorders
I also wondered if perhaps she could be experiencing restless legs? I think children can be affected. I have something similar periodically, in my case I have wondered if it is to do with some sort of deficiency. As @knitty kitty says, not all deficiencies are tested for - more's the pity. -
Leg pains that come and go all night
cristiana replied to Attanett's topic in Related Issues & Disorders
Hello there, I am so sorry for your daughter, and for you all, it is heartbreaking to see one's children in pain. I would certainly look at dropping gluten-free oats (as well, obviously, as regular ones) for at least 6 months to see if that makes a difference. That is the advice coeliacs are given in the UK when first diagnosed. I think... -
Hi Katie225 I'm a British coeliac and read your posts. I'm so sorry you are going through all of this especially it can take a very long time to be referred at the moment. I know a few people who had all the symptoms of coeliac and for whatever reason decided to just go gluten free. Completely understandable if you are feeling very unwell and...
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Blindsided by positive test results
cristiana replied to Fairy92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello @Fairy92 Thank you so much for your update. It is great to hear that after coming off gluten you are feeling better. That is certainly good news. However, re: your biopsy results, how frustrating not to have a straight forward "yes" or "no". I am glad you have your appointment with the gastroenterologist set up in less than a week... -
If you are from the UK and reading this, I wondered if you have noticed a reduction in your local supermarket's gluten-free offer? The other day I sent my daughter to our local convenience store to buy something for me. It is a small branch of one of the major supermarkets and normally dedicates the end of an aisle to a small range of gluten-free essentials...
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How Much Sugar Do You Eat?
cristiana replied to Max I's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My answer: Too much! So I'm trying to cut back radically for health reasons, and I'd like to be slimmer than I was last summer. Finding it incredibly difficult, though. Interesting about the coffee link @plumbago, I've read that before somewhere. At the moment I feel hungry and have a bit of a headache. I can't say I've ever felt fantastic... -
Slightly elevated result
cristiana replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are more than welcome, Anne. Also, bear in mind you will need to give up a few gluten containing treats if you are diagnosed, although increasingly there are good gluten-free substitutions on the market. In my case, although I kept eating bread, I left space for some McVitie's Penguins! -
Slightly elevated result
cristiana replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"I never knew coeliac disease was serious." Well... it certainly needs to be taken seriously because, if untreated, it can lead to a lot of issues. But the good news is that following a strict gluten free diet is the answer, and most people respond well to a gluten free diet.🙂 That said, don't adopt one yet. You will need to continue eating th... -
Slightly elevated result
cristiana replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Anne Firstly, cellulitis, yes, I had it when I was in my mid-teens. A nick under my arm turned nasty and I had to have a boil lanced, and the tissue around it was very itchy and painful. The doctor didn't mention cellulitis at the time, I'm sure, but I was reading some old medical notes recently and saw it. I do wonder if I had it a few years... -
Slightly elevated result
cristiana replied to AnneMcM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello AnneMcM and welcome to the forum! Interesting that you say you weren't being tested for coeliac disease - I wasn't aware when I was tested ten years ago, also! Like you I'd had some gastrological issues in the past, which in my case I'd put down to a nervous stomach. They got a lot worse, though, prior to my diagnosis, which was what prompted... -
Hello GeordieGeezer and welcome to the forum Very interesting to read your discovery. I am afraid I can't find anything on the internet to help, either, but I'm hoping someone on the board might have come across something in the past and be able to help. Out of interest, have you ever been tested for any intolerances or Coeliac Disease, and...