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jerseyangel

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Everything posted by jerseyangel

  1. jerseyangel
    Hi Deb! Haven't talked to you in a while! I don't have the same level of brain fog as I did pre gluten-free, but I think I may have like a permanent low level of it. When I get some gluten, it comes back accutely, but even when I have no other symptoms and am doing fine, I still have to "reach" for words, forget why I'm in a particular room for a few seconds...
  2. jerseyangel
    D--First let me say how sorry I am to hear of what happened to your Dad. You won't get any disagreements from me about your stance on Drs. I did finally find one that would listen to me and do the appropriate testing, but it took 20 years and a lot of misdiagnoses and inappropriate medicines that have left me with many long term side effects in addition...
  3. jerseyangel
    Hi Laura--Welcome! and congrats. on getting through the first 2 weeks! I would add that 2 weeks is still a relatively short time to expect to feel great changes. The cramping and pain are improving, that is a positive sign . At this point, I agree with Kevsmom. Make sure that all the gluten is out. Toaster, collander, wooden utensils, countertops, personal...
  4. jerseyangel
    I'm female, age 49. Nantzie--Ha Ha on the gluten free Easy Bake Oven mixes! I have read that Celiac affects slightly more women than men, but it could be as celiac3270 said, that more women are DX. Women, in general I think, tend to go to the Dr. more often. So many people are not DX as it is. In our little world here, though, the women do seem to...
  5. jerseyangel
    Boy--This discussion is really helping me out. I hate that all of us have to experience these things, but it helps so much to know that I'm not alone. Like the palpitations--until recently, I never thought they were connected to Celiac. Also, the belching (sorry!)--I never used to belch even when I was sick. But now, it will come out of nowhere and so...
  6. jerseyangel
    This is what I used to frost my cookies this year: 1/2 cup butter or margerine at room temp. 1/2 cup shortening 4 cups 10x Sugar 1 tsp. vanilla enough milk (reg., rice, soy, whatever) Cream butter and shortening and vanilla. Beat in sugar. Add milk as needed. Delicious, easy and enough to frost 2 lg. batches of cookies.
  7. jerseyangel
    Also try here--Open Original Shared Link Oops--thats what happens when I try and do 2 things at once! This is correct (I hope) Open Original Shared Link
  8. jerseyangel
    I love the McCain Smiley Fries! They're like little fried mashed potatoes
  9. jerseyangel
    Thanks Thomas--That was really interesting. I've recently been thinking about additional testing for other sensitivites. I would think it would make it so much easier to make choices. Merry Christmas to you
  10. jerseyangel
    Thanks for posting that! I was wondering how and when it would be put into effect.
  11. jerseyangel
    I wanted to add that Thermasilk Shampoo and Conditioner is gluten-free. I verified that by phone last summer.
  12. jerseyangel
    Renee--Unless I'm missing something, if your blood tests were positive that tells me right there that you should be off gluten. The biopsy being neg. can't rule out Celiac--especially with the pos. blood work. Did you tell the Dr. about the positive response to the gluten-free diet? The diet chalenge in and of itself can be used to DX Celiac. I agree...
  13. jerseyangel
    I'm noticing that I now get heart palpitations, too, when glutened. My reactions now are more clear cut--nausea, slight D for a few days, upper abdominal pain, thirst, fatigue and the brain fog returns but not as bad as before. Someone described that their tongue feels "too big for their mouth"--thats how I get. Before, as the others, I felt sick all the...
  14. jerseyangel
    All the advice above and I would stress that you need to make sure all the gluten is out of your diet and any product you use on your body. The sauce on the steak should have raised a red flag, for example. I know it's a pain at the beginning, but you have to check out everything that goes into your mouth. The nausea, in my experience, is definately a...
  15. jerseyangel
    Thanks Rice Guy--The cool thing about the guy in the video is that he says that 1 in 133 people are gluten intolerant.
  16. jerseyangel
    This morning I had Whole Foods gluten-free Bakeshop Cinnamon Raisin bread w/Smart Balance and orange juice. For lunch, my usual large salad w/ lots of veggies, some Lay's Natural Ruffles and ice water. This afternoon I made a batch of Gourmet Magazine's gluten-free choc. chip cookies. They turned out really good and I ate about 4 or 5 of them . Tonight...
  17. jerseyangel
    Hi Moongirl--If you don't want to worry about cross contamination, check out: Gluten Free Savonnerie--www.gfsoap.com California Baby--www.californiababy.com Giovanni Natural Hair Care--www.giovannicosmetics.com--also in Whole Foods and Wild Oats Markets
  18. jerseyangel
    Hi Tammy and welcome --I agree with everything Carrie said--I would tell my Dr. I wanted to be tested. Did you notice that your symptoms got worse or changed after your hysterectomy? Sometimes surgery can trigger Celiac, if you're pre-disposed. Your issues sound very gluten related to me. I would write everything down before you see the Dr. so you don...
  19. jerseyangel
    Double ditto
  20. jerseyangel
    If all your shouting about Celiac helped even one person--it was beyond worth it. I use any opportunity to get the word out and try to educate as many as I can in my own life. I figure if their eyes don't glaze over midway, I'm on to something. --Shout on!
  21. jerseyangel
    I know that feeling well--its hard sometimes to get to the culprit! I hope you continue to feel better. I find that after being glutened, it helps if I eat something (safe and familiar in a small amount!). I don't know why, but if my stomach is empty, it's worse.
  22. jerseyangel
    I would have to say that a lot of my issues are because of my late Dx. For example--there are things that have improved or gone away completely since going gluten-free. My anemia, shoulder, hip and neck pain, dizziness, brain fog, hair loss, skin problems and the neurological symptoms are all greatly improved. This would tell me that these things, all...
  23. jerseyangel
    Carrie--I am going to try your smoothie--we bought blueberries over the weekend! I'll use my Pacific Rice Milk. Also, on an unrelated note, I made your stuffing w/apples for Thanksgiving--it was fantastic--thanks
  24. jerseyangel
    Hi Maryann--I'm still learning to bake with the alternate flours, but I have found that a mixture of flours works well. I can't remember where I got this blend recipe from--I have so many things jotted down--but I mix 6 cups of rice flour, 2 cups of potato starch and 1 cup of tapioca flour (I use Ener-g flours). Just put them in a large jar and shake. ...
  25. jerseyangel
    I seriously don't remember!
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