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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Suggesting A Hyst. For Cramping Not Going Away.
tarnalberry replied to mommyto2kids's topic in Related Issues & Disorders
I would FULLY investigate all kinds of food issues and stress based issues (stress manifests physically and can have a huge effect on the digestive system) before removing an organ... -
ARCHIVED Mayo Clinic Easy To Read Celiac Testing Algorithm
tarnalberry replied to pgrovetom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I must say that I hate that the chart says that if you don't have one of the most common two genes, you can't have celiac. But this is otherwise a decent chart. I do love that it says about 10% test seronegative. -
ARCHIVED Long Distance Backpacking--Any Celiacs Going Long Miles?
tarnalberry replied to Rebecca Mezoff's topic in Sports and Fitness
Yay for getting ready to do the PCT! (That's a lifetime goal for me. That and Rainier.) When I backpack, I make and dehydrate much of my own food - it doesn't actually take as long as you'd think, but you would want to be doing it over the course of the winter. You probably want to look into freeze dried options (especially for fruits/veggies) as they... -
ARCHIVED Introducing Gluten To Baby
tarnalberry replied to SGWhiskers's topic in Coping with Celiac Disease
I'll share what we did with my daughter and why. I knew about the 4-6month research, but had no interest in having a grain be one of her first foods. I also don't think that wheat is *bad* for anyone and everyone, and it can be a part of her diet is she is not otherwise sensitive to it. I don't personally give her anything with gluten in it. The inlaws... -
ARCHIVED My Daughter 4 Weeks In On Gluten-Free Diet
tarnalberry replied to mylittlepeanut's topic in Parents, Friends and Loved Ones of Celiacs
my 14mo old gets lots of beans/lentils, green beans, sweet potatoes, brown rice, chicken, fish, beef, eggs, berries, oranges/apples/bananas, mangos, broccoli, cauliflower, hummus, etc, etc... Freeze dried fruit is a fun snack. Carrots are one of her favorites (whole, raw carrots). I often bring rice cakes, cut up chicken, a small bonnelbelle cheese ... -
ARCHIVED Who Is Gluten-free Casein-free?
tarnalberry replied to erinecox's topic in Related Issues & Disorders
Yes. It's really hard until you adapt your habits and taste buds away from dairy. But thy takes time. I've been dairy free (outside of one recent test), for about seven years, and it's still annoying. -
ARCHIVED Kicking In My Sleep
tarnalberry replied to Fire Fairy's topic in Related Issues & Disorders
It's worth being evaluated to see if it's actually restless leg, if you try other things and they don't help. I have RLS (though it's 90% ok right now). If it's a nutritional deficiency, it most often is low iron (but you do not want to supplement without checking your levels first - high iron is a problem too), but magnesium, calcium, and potassium often... -
ARCHIVED Okay, So Is There A Safe Chocolate?
tarnalberry replied to Harpgirl's topic in Coping with Celiac Disease
I'm with you on wanting *good* chocolate. There are a number that I like - Dolfin, Castelain, Cluizel. Where you can get them depends on where you are, but you can order them online as well. (I go through chocosphere.com, based in portland.) You'll want to check through - I haven't verified the shared facility status, but no good (unflavored) chocolate... -
I would expect that is just a diaper rash. As has been mentioned, DH doesn't clear up easily or quickly and it is quite bothersome. I would definitely look into common foods that may be contributing, but keep in mind that teething can also cause diaper rash when it's bad, heat can cause those kinds of bumps, and chemical or mechanical irritations. (If you...
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ARCHIVED Coping With Uninformed People
tarnalberry replied to JaniceS's topic in Coping with Celiac Disease
While I don't have a biopsy diagnosis, I simply say "I can't eat gluten, it will make me quite ill." If they go any farther, I add "It's an autoimmune disease that damages my intestines so I can't absorb nutrients." They usually shut up, even if they think I"m still being a PITA. -
ARCHIVED I'm Crushed Today!
tarnalberry replied to Simona19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Benefiber is MADE from wheat. It is highly processed, and tests to less than 20ppm, but if you're having continued problems, you may be super sensitive, and I would avoid benefiber like the plague. -
ARCHIVED 2Yr Old Being Tested
tarnalberry replied to milkmommy's topic in Parents, Friends and Loved Ones of Celiacs
Soy cheese generally still has casein (there are one or two brands that don't). You can get yogurt made from soy or coconut that are casein free. (There's also drinkable coconut milk that has a decent amount of fat that she might enjoy.) Human milk has casein, but different subtypes of casein affect people differently, and the primary subtype found in... -
ARCHIVED 2Yr Old Being Tested
tarnalberry replied to milkmommy's topic in Parents, Friends and Loved Ones of Celiacs
If you're going to try eliminating dairy, you should eliminate ALL dairy. It's not the lactose I'm suggesting is an issue, but casein. (Lactose intolerance comes from a lack of lactase in the gut to break down the milk sugar. Common with untreated celiac, it causes diarrhea, bloating, and lots of gas - the symptoms are quite consistent.) Casein is the... -
ARCHIVED 2Yr Old Being Tested
tarnalberry replied to milkmommy's topic in Parents, Friends and Loved Ones of Celiacs
breastfeeding may not protect her from getting damage, but will certainly still be helpful in giving her the most easily digestible nutrients. while I don't currently know the details on which testing is most accurate, testing in kids is notoriously unreliable regardless, and I can only recommend simply trying her on the diet. I would also consider eliminating... -
ARCHIVED What Are The Chances?
tarnalberry replied to suziq0805's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In my case, if my daughter (also 14mo) were showing possible signs but I wasn't sure, I'd leave her gluten free until she could talk to me well (3 or 4yrs) and then consider reintroducing gluten. But that's just me, and I'm already gluten free, so it's easier. Every family will have a different "right answer". Good luck! -
ARCHIVED Does It Sound Like My 2 Yo Daughter Has Celiac Or Gluten Intolerance?
tarnalberry replied to JenC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The dental issues strongly suggest that you should have her tested (and possibly *try* a gluten-free diet and see how she does). -
ARCHIVED My First Trip To The Mil's Since Diagnosis
tarnalberry replied to SnoBaby's topic in Coping with Celiac Disease
I think you found the problem yourself - you came and disrupted her routine without ANY word or notification. Honestly, I'd be a bit put out too if someone came and expected something very different without even mentioning it. (And you were expecting a big change in *her* routine even if just in "invading" her kitchen with a bunch of your supplies.) Did... -
ARCHIVED Severe Reaction To Lactose Or What?
tarnalberry replied to GFreeMO's topic in Coping with Celiac Disease
You have to ease back into lactose-containing dairy slowly, as it is normal to lose the ability to produce lactase over time if you are not consuming dairy. Do the same things happen if you have small amounts of low-lactose products like yogurt or cheese? -
ARCHIVED U.s. Policies Around Gluten & Other Food Allergens
tarnalberry replied to lucia's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Part of the reason is political - it *is* a big sweat off the politicians backs, because the agriculture business has a HUGE lobby with a LOT of money paying them to keep things easy. Not to mention the lawsuit fears that are rampant in this country. Write to your congress people and voice support of *reasonable* legislation (even if it's not the ideal... -
Iodine doesn't cause DH but is require for the irritating deposits in the skin. You don't have to permanently avoid iodine, though. You can just reduce extra sources of iodine for a few months while the DH heals (on a gluten free diet) and then remain gluten free but reintroduce iodine.
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ARCHIVED Toothpaste gluten-free
tarnalberry replied to glutenfreegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I called in on Sensodyne years ago, and they said that it *did* have gluten. But, as far as I can tell, things have changed since then and whether it's a reformulation, a new ingredient source, or a new legal team, they seem to simply have a CYA statement that I take to mean "we probably are gluten free but won't say we are or legal will be unhappy". -
ARCHIVED Need Ideas For Summer
tarnalberry replied to Juliebove's topic in Introduce Yourself / Share Stuff
Well, if she's not even going to try something, then I suppose she can just sit and be bored. There's only so much you can do, and eventually, if she won't even try, then she'll either decide to try something or be bored. -
ARCHIVED Advice Please On Cost Of Gluten Free Bread
tarnalberry replied to Harpgirl's topic in Coping with Celiac Disease
I went the "don't rely so much on bread" route. Really, it's surprising when you stop to look at it how much we get "stuck" using bread because we don't think about using anything else. Hamburgers wrapped in lettuce, tuna salad on corn tortillas, lunchmeat on rice cakes - there are lots of options! -
ARCHIVED How Do You Handle Your Child's Birthday Party?
tarnalberry replied to alex11602's topic in Parents, Friends and Loved Ones of Celiacs
Seriously, you're *guests* are giving you grief? That's crass of them. Ridiculously rude, even. Honestly, their greediness and self-centeredness is none of your concern, and I strongly encourage you to let your daughter's party be about and for her. (Any anger you sense in this reply is not directed at you, but at people who would assume to tell you how... -
ARCHIVED Looking For Dairy Substitutes
tarnalberry replied to waterlily-'s topic in Gluten-Free Recipes & Cooking Tips
I use coconut milk for fat in my smoothies and some protein powder along with the fruit. Filling and doesn't give me a hypoglycemic ride.