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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Actually, if you can prove that he ordered the wrong test, you should either get reimbursed, or he better order the right test now! After all, you paid for it.
  2. Ursa Major
    Serious researchers have said for years that they have only found two celiac disease genes this far, but there are likely more. For any doctors to claim that you can't have celiac disease unless you have the DQ2 or DQ8 is just ignorance on their part. You can absolutely have celiac disease with genes other than the ones officially recognized at this point...
  3. Ursa Major
    It appears that your doctor is ill informed. When it comes to celiac disease there is no such thing as a 'low positive' that you can ignore. Either you are positive, meaning your body is producing antibodies to gluten, or you are negative. A low positive is every bit as positive as a higher number. I am sure your Enterolab tests will confirm what you already...
  4. Ursa Major
    Actually, it takes at least three to six months of eating gluten to even have a remote chance of getting a positive biopsy after you've been gluten-free for a while. One month is never enough. Good for your doctor to diagnose you as gluten intolerant based on the good results you have on the diet. Who cares if it is celiac disease or gluten intolerance...
  5. Ursa Major
    Most dishes and silverware can be scrubbed properly. Anything with tight corners can't be, because you can't get in there. Just washing it in the dishwasher won't clean out those corners. I don't think it is safe.
  6. Ursa Major
    Karl, I hope you know that celiac disease and eosinophilic gastroenteritis can be connected? In fact, a gluten-free diet is still a good idea, as it is usually caused by allergies and intolerances. Anyway, I hope you'll feel better soon.
  7. Ursa Major
    I will be praying, too.
  8. Ursa Major
    What do you mean, they don't take any blood work? ALL doctor's offices send people to a lab (usually in the same building, or if they don't have a lab, to the hospital) to have blood work done whenever it is needed. So, if they themselves don't take the blood, get them to send you to wherever they do. You have the right to have your levels checked when you...
  9. Ursa Major
    Could you tell us what your current symptoms are, since you are saying that they aren't gastrointestinal? That might give us more clues as to what might be wrong. I agree, the osteoporosis is likely caused by malabsorption due to celiac disease. Have you been tested for levels of vitamin D, calcium and magnesium? It is usually a lack of vitamin D that...
  10. Ursa Major
    You are NOT crazy for asking! It is very possible that you are low in vitamin D, and as a result in calcium and magnesium as well. You need to have normal levels in all three for your bones to heal as fast as they should. I broke my ankle five years ago, and it took forever to heal. I now know that due to celiac disease (which I didn't know anything about...
  11. Ursa Major
    My suggestion is, to have your levels of essential nutrients checked. If for instance, you are deficient in vitamin D (and most people are, but especially people with celiac disease), then your body can't absorb calcium and magnesium, which results in osteoporosis. You should never supplement with vitamin D without knowing where your levels are at, because...
  12. Ursa Major
    The only way to find out is to eliminate dairy from your diet for at least two weeks to see if you see an improvement in your symptoms. If you do you have your answer. It is extremely likely that you can't tolerate dairy for at least a while (about six months) until your villi heal. You can try reintroducing dairy then to see if you can tolerate it again...
  13. Ursa Major
    Celiac disease can cause brain lesions. Sometimes they go away on a gluten-free diet, and sometimes they are permanent. Trillium Hunter, welcome to this board. You have every right to be angry, I was for a while as well. I was told all my life that I am just lazy, it's all in my head, first, that I wasn't eating enough, and then I was eating too much....
  14. Ursa Major
    Wow, it sure sounds like the pantishields are the problem. You might want to wait until the rash and itch is all cleared up before trying a different brand.
  15. Ursa Major
    Hi, and welcome to this board. Oh boy, not another ignorant doctor! He should have taken the blood test for celiac disease at the same time as the pregnancy test. At the very least you are gluten intolerant, you know that already. Now would be the worst time to do a gluten challenge, and there really is no need for it anyway. If you go back to eating gluten...
  16. Ursa Major
    Angie, I had that problem for a while, and the itch was driving me out of my mind. It turned out that I was allergic to my panty shields! Try switching brands, or try using cloth ones for a while. When I did that the problem went away. I also tried over the counter medicated creams for yeast infections, with little success. So, it may not be that at all...
  17. Ursa Major
    Paula, you shouldn't think you are 'only' the step mom! If you are raising him, and love him to the best of your ability, and he loves you, you have every right to be there! If both of you are going, and you both have celiac disease, that is double the reason to call and make it work.
  18. Ursa Major
    Hi Eva, and welcome to this board. Yes, often people suffer from withdrawal symptoms at the beginning. Plus, people with celiac disease cannot usually digest dairy for at least the first six months, because the tips of the villi are supposed to produce the enzyme lactase, which is essential for digesting dairy. If those tips are damaged or eroded, than...
  19. Ursa Major
    Paula, for the tournament I would just send a lunch, and some money to buy drinks. It will be easier for everybody, and you'll have peace of mind about what your son eats. The banquet is trickier. Try to find out who is in charge of that, and see if you can talk to that person. If they don't seem to understand, you might need to send his food again. I...
  20. Ursa Major
    He Jen, and welcome to this board. I am one of the people Sandy is referring to, I have Asperger Syndrome and Tourette Syndrome (I finally found out at the age of 50, four years ago!) Your symptoms all sound a lot like celiac disease. I was as skinny as a stick as a child and teenager. The more my mother tried to fatten me up (with dairy and flour products...
  21. Ursa Major
    Well, technically, if that crawfish ate wheat, and you eat it's digestive tract before it was digested, I expect you would get glutened. But if it is raised in a rice field, why would it eat wheat?
  22. Ursa Major
    I actually prefer Glutino pasta. I guess you just have to try all the different brands until you find the one you like best. I made lasagna with rice pasta not long ago when most of my kids and other guests were here. And other than the daughter who is intolerant to wheat (I told her it was rice pasta) nobody knew the difference, and loved the lasagna...
  23. Ursa Major
    I'll be 54 in three weeks, and I was getting to where I was completely disabled in 2005, at the age of 52. I was also relying on codeine, I was in such awful pain. So, not being able to eat a lot of things is sure better than taking all those painkillers (often I had to take extra strength Tylenol on top of the codeine, and was still moaning in pain). I am...
  24. Ursa Major
    Yes, a tick bite could have caused all of your problems I think, and Lyme disease can flare up any time after being dormant for a very long time. You should try getting tested for Lyme disease, you never know.
  25. Ursa Major
    I react to sunlight, too. That is one reason that I have a coating on my lenses that makes my lenses turn dark as soon as I step outside. Sunshine on my head and in my eyes made me miserable all through my childhood during the summer. But I never thought of wearing sunglasses or a hat, since my siblings didn't. And my mother wouldn't have thought of it anyway...
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