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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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advice for autoimmune immunologist appt
knitty kitty replied to emma6's topic in Related Issues & Disorders
Hello. The cheilitis and the itchy rash after sun exposure, the sensitivity to light, and dents in fingernails, and the tingling cold extremities and palpitations are symptoms of deficiency of B vitamins, especially B 3, niacin, and B12, and iron deficiency and vitamin A and D deficiencies. I experienced something similar when I was looking for answers... -
ARCHIVED Celiac and retinitis pigmentosa
knitty kitty replied to artsunshine's topic in Related Issues & Disorders
ArtSunshine, So sorry to hear your diagnosis. My heart goes out to you. Celiac Disease causes damage to the small intestine which makes absorption of vitamins problematic. Vitamin A deficiency is a cause of eye problems. This article discusses how vitamin A and DHA can help slow the progression. Open Original Shared Link And this... -
ARCHIVED Atrophy Associated with PPI's, NSAIDs and SSRI's
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
The study wasn't poorly designed. It was NOT designed to look at the effects of these medications on Celiac patients. It was NOT designed to see if a patient's symptoms correlated with biopsy results after being on a gluten free diet. It's a fact finding study to see what some Celiacs have in common. The biopsy was done to choose only those Celiac... -
Some Celiacs find improvement after they take corn out of their diets. "Maize is one of the most commonly consumed grains in the gluten-free diet. Despite the low content of zeins in maize-containing foods compared with that of gliadins in wheat-containing foods, maize could be responsible for persistent mucosal damage in a very limited subgroup of...
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ARCHIVED Gluten Ataxia confusion...
knitty kitty replied to Mermaid's Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi. I agree that the nomenclature is confusing. Here's (yet another) article that may help you understand the differences and similarities between Celiac Disease and Gluten Sensitivity and Gluten Ataxia. Open Original Shared Link It's a very dry article, but it's worth slogging through the first part because it covers Gluten Ataxia in... -
Barry, I suggest you check out my recent post "Bread Head?" in Related Disorders and Research section. The article I posted recently discusses this very thing and explains why gluten has that effect on us. Hope it helps. Knitty Kitty
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ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
It's under the topic heading "Celiac Disease-Related Disorders and Research". I apologize for not making that more clear. Here's the link, but let's discuss it under the other topic. Open Original Shared Link Glad to hear your daughter has such astute taste buds! -
Here's the article I mentioned in Mermaid's Mom's post. Open Original Shared Link It explains the way gluten gets in our brains and how we become ill.
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ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
Mermaid's Mom, I'm glad to help. I take Stress B-Complex vitamins which contain 50 mg of most of the B vitamins, and 400mcg of folate. The brand I use is Bluebonnet Stress B-Complex, but there are other brands out there, just make sure you get one that's gluten free and the ratio is similar (50 mgs of most B's to 400mcg folate) and without added... -
ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
Mermaid's Mom, You're being a great mother! You're doing all the right things. You didn't give up getting a proper diagnosis for your daughter. And you're educating yourself and your daughter for the future. Something that may be overlooked are the B vitamins. Wheat products are enriched with B vitamins. Once gluten is removed from the diet... -
ARCHIVED Atrophy Associated with PPI's, NSAIDs and SSRI's
knitty kitty posted a topic in Related Issues & Disorders
Hello. Searching thru the stacks, I came across this recent study. I was stunned by what was found. The study looked at Celiacs with continuing intestinal problems even on a gluten free diet. The use of PPI's, NSAID's, SSRI's, and a few other medications was associated with continuing damage to the villi in the small intestine. Here's the... -
ARCHIVED Food Additive Triggers Autoimmune Response
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
You're right, RMJ! Food additives are definitely my reason for eating whole foods! Lol I'm allergic to Sulfites used as preservatives or antimicrobial agents in foods. Long ago, Sulfites used to be added to meats to keep them pink and fresh looking, but that practice was banned. However, those little moisture absorbing pads under some cuts of meat...- 14 replies
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ARCHIVED Food Additive Triggers Autoimmune Response
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
Here's one more article.... Open Original Shared Link This article says "Tight junction leakage is enhanced by many luminal components, commonly used industrial food additives being some of them. Glucose, salt, emulsifiers, organic solvents, gluten, microbialtransglutaminase, and nanoparticles are extensively and increasingly used by the food industry...- 14 replies
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ARCHIVED Food Additive Triggers Autoimmune Response
knitty kitty posted a topic in Related Issues & Disorders
Branching into another topic from a different post, Cycling lady suggested we discuss this in its own thread, so here goes... Do you and your family consume manufactured gluten free products? I tried some of them and found that I have trouble with products made with corn and potato flour. In researching, I came across a scary food additive. Here's...- 14 replies
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Celiac MommaX2, Do you and your family consume manufactured gluten free products? I tried some of them and found that I have trouble with products made with corn and potato flour. In researching, I came across a scary food additive. Here's a couple of articles. Open Original Shared Link Open Original Shared Link These articles explore...
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ARCHIVED GliadinX
knitty kitty replied to Charli61's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree with Ennis. Digestion starts in the mouth. Enzymes in saliva get right to work breaking down gluten in the mouth. Some of these enzymes are produced by the bacteria living in one's mouth. Here's a really cool article: Open Original Shared Link This article describes a study of the oral bacteria in people with Celiac Disease as... -
ARCHIVED Can I keep my cast iron pots, pans and grill
knitty kitty replied to Debyii's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can put cast iron pans in the oven on low overnight, scrub the pan by hand, and reseason it. It should be fine. You can do a search for older posts that discussed this topic, too. -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
knitty kitty replied to Jm34's topic in Coping with Celiac Disease
Jm34, Has your calcium level been checked lately? Open Original Shared Link This article describes things that can affect your calcium intake, such as proton pump inhibitors (which you have taken in the past), vitamin D deficiency (which you have) and magnesium deficiency. Some of the symptoms include difficulty swallowing, depression... -
ARCHIVED Fibromyalgia and IBS symptoms
knitty kitty replied to Pegleg84's topic in Related Issues & Disorders
Hi, pegleg. Sorry to hear you're not feeling well. How is your vitamin D level? There's a connection between low vitamin D and fibromyalgia, chronic pain and other autoimmune diseases. Open Original Shared Link This study says vitamin D "was lower in inflammatory arthritis and chronic pain/fibromyalgia than in other groups" of rheumatology... -
Oh! I'm so sorry to hear that your condition is so serious. I hope everything goes smoothly for you. We're here to support you through this. Please keep us posted on your progress. Knitting kitty P.S. It might be beneficial to mention your problem with dietary sulfites to your doctors. I believe there's a connection there.
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Sorry you're having such a rough go. I sympathize with you. Do you have an allergy to Sulfa drugs? A similar thing happened to me. I started getting sick whenever I ate something canned. After some research, I found that the plastic-y lining of the cans have Sulfites in them. Sulfites are used as antimicrobial agents... Clindamycin is a sulfa...
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ARCHIVED Help! Extreme fatigue
knitty kitty replied to Jherm21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe you'll feel better. Get a D 3 supplement. D 2 is the synthetic form of vitamin D and may not be a form the body can use as easily as the D 3 form. I take a brand called "naturewise". You may also be low in vitamins A and E as well. They are fat soluble vitamins like vitamin D. Celiacs have trouble absorbing fats because of damage done... -
ARCHIVED Help! Extreme fatigue
knitty kitty replied to Jherm21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, opinions on optimal vitamin D level varies, too. People who live in the tropics and get plenty of sunshine have between 70 and 100nmol/L. But some recommendations say 50 is enough. I don't feel well if mine is under 70. And an article for you, of course. Open Original Shared Link Note the section "Groups at risk of deficiency... -
ARCHIVED Help! Extreme fatigue
knitty kitty replied to Jherm21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Good nutrition is very important. You may want your doctor to see if you have any vitamin deficiencies. This article explains how thyroid disease issues may be caused by nutritional deficiencies. Open Original Shared Link And another article on how vitamin D can cause body pain and fatigue. Open Original Shared Link I can attest to...