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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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A healthy dose of scepticism is essential on the web. But I thought the research was valid. Yes, I agree with the biblical quote being a cheap shot. People often criticise and ridicule novel concepts that they don't want to believe...or have not experienced themselves. Thanks for your input!
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ARCHIVED Celiac Disease, Sore throat and swollen glands
knitty kitty replied to Alessio's topic in Related Issues & Disorders
I apologize for the mistake. Tylenol is not an Nsaid. However, Dexilant is a Ppi (proton pump inhibitor) which may be exacerbating your symptoms, like that previous article I posted said. Hopefully you won't have to take it much longer. And this article explores how medications may be absorbed abnormally with Celiac Disease: https://www.celiac... -
Thanks for the input. Interesting commentaries. The authors of the article rebute the criticisms here: Open Original Shared Link
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ARCHIVED Celiac Disease, Sore throat and swollen glands
knitty kitty replied to Alessio's topic in Related Issues & Disorders
Alessio, So sorry you're having such a rough go of it. You might want to reconsider using NSAIDs. There's evidence that use of Nsaids, Ppi's, and Ssri's are linked to persistent villus damage. Open Original Shared Link And you and your doctor should consider vitamin deficiencies. Celiac Disease causes malabsorption. Malabsorption... -
ARCHIVED Unable to Attain the Unattainable...or so if seems......
knitty kitty replied to maclu5757's topic in Coping with Celiac Disease
Hi! Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too. Gall bladder problems are often associated with Celiac Disease. Your diagnosis might save your whole family from further medical problems as they age and the... -
ARCHIVED Has anyone found anything that works?
knitty kitty replied to This sucks.'s topic in Dermatitis Herpetiformis
Nicotinamide helps a great deal. Nicotinamide is a form of Vitamin B3, also called Niacin. Many new Celiacs have trouble absorbing sufficient vitamins and minerals because of intestinal damage. Malabsorption causes malnutrition. Deficiencies of the B Complex vitamins, especially niacin, and vitamins A and D often manifest as skin rashes and exacerbate... -
ARCHIVED Help with my daughter pls
knitty kitty replied to MelissaNZ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
MelissaNZ, Has your daughter been checked for vitamin deficiencies??? Vitamin D deficiency symptoms include urinary incontinence, oral candidiasis (thrush), skin rashes, bumps on the backs of arms, joint pain, distended stomach and short stature. Bones can't grow much without vitamin D. Vitamin D deficiency causes delayed gastric emptying (food... -
GeorgeW, Hi. I'm sorry you're feeling ill and are frustrated finding answers. I understand. I spend a bit of time researching how Celiac Disease and the resulting malnutrition can affect us. I'm not a doctor. I'm a microbiologist. You said you were very careful with your gluten free diet, so I believe you weren't glutenized. However, vitamin...
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ARCHIVED My Daughter was Glutened. Confused by what she ate?
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
Hi, Mermaid's Mom and Ennis! I gotta disagree here. I don't think it's just the oats in the Cheerios causing problems. I think it's the corn starch in the Cheerios. I had reactions to Cheerios, but I can eat certified gluten free oats just fine. It's the corn starch component that I have a problem with. I have a reaction to corn and gluten... -
ARCHIVED Possible celiac disease? Arthritis and rash....
knitty kitty replied to emt852's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello. After reading this thread, I wondered if an allergy or hypersensitivity reaction to sulfa drugs might be a possible explanation for the itchy rash and arthritis pain. It sounded so similar to my symptoms when I was on sulfa medications. I did a little research and came across this website that explains so much. I hope it's helpful. Open Original... -
Horrible Pressure Headaches After Eating
knitty kitty replied to lemonade's topic in Coping with Celiac Disease
Anil, I'm so glad you are feeling better! The article suggests 600mg of magnesium (too much magnesium will cause diarrhea), 400mg of riboflavin (too much will cause tingling or flushing), and 500mg of omega 3. I took my supplements in divided doses with each meal. I also take a B-Complex vitamin that has 50mg of all the B vitamins and 400mg... -
Horrible Pressure Headaches After Eating
knitty kitty replied to lemonade's topic in Coping with Celiac Disease
Anil, I understand how uncomfortable migraines can be. I've suffered from them for many years, too. I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help. My migraines began to decrease in intensity and frequency after taking these supplements. This article explains... -
Just wanted to add another article or two: This article is about the wheat/ schizophrenia connection. Open Original Shared Link This one discusses how wheat turns into opiods during digestion. Open Original Shared Link One more discusses the ways our brains react to gluten. Neurologic and Psychiatric Manifestations of Celiac...
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ARCHIVED A Post Diagnosis Rant, And Hello :d
knitty kitty replied to charlieroseburns's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just wanted to add another article or two: This article is about the wheat/ schizophrenia connection. Open Original Shared Link This one discusses how wheat turns into opiods during digestion. Open Original Shared Link One more discusses the ways our brains react to gluten. Neurologic and Psychiatric Manifestations of Celiac... -
Does the rash get worse when exposed to sunlight? It looks like it is on your neck, hands, forearms, shins and feet. Does the rash occur anywhere else? Or just to areas exposed to sunshine? I had Pellagra, a vitamin deficiency disease caused by a lack of Niacin, B3. I had a similar rash on exposed areas that worsened when I was outside in the sun...
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advice for autoimmune immunologist appt
knitty kitty replied to emma6's topic in Related Issues & Disorders
Hello. The cheilitis and the itchy rash after sun exposure, the sensitivity to light, and dents in fingernails, and the tingling cold extremities and palpitations are symptoms of deficiency of B vitamins, especially B 3, niacin, and B12, and iron deficiency and vitamin A and D deficiencies. I experienced something similar when I was looking for answers... -
ARCHIVED Celiac and retinitis pigmentosa
knitty kitty replied to artsunshine's topic in Related Issues & Disorders
ArtSunshine, So sorry to hear your diagnosis. My heart goes out to you. Celiac Disease causes damage to the small intestine which makes absorption of vitamins problematic. Vitamin A deficiency is a cause of eye problems. This article discusses how vitamin A and DHA can help slow the progression. Open Original Shared Link And this... -
ARCHIVED Atrophy Associated with PPI's, NSAIDs and SSRI's
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
The study wasn't poorly designed. It was NOT designed to look at the effects of these medications on Celiac patients. It was NOT designed to see if a patient's symptoms correlated with biopsy results after being on a gluten free diet. It's a fact finding study to see what some Celiacs have in common. The biopsy was done to choose only those Celiac... -
Some Celiacs find improvement after they take corn out of their diets. "Maize is one of the most commonly consumed grains in the gluten-free diet. Despite the low content of zeins in maize-containing foods compared with that of gliadins in wheat-containing foods, maize could be responsible for persistent mucosal damage in a very limited subgroup of...
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ARCHIVED Gluten Ataxia confusion...
knitty kitty replied to Mermaid's Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi. I agree that the nomenclature is confusing. Here's (yet another) article that may help you understand the differences and similarities between Celiac Disease and Gluten Sensitivity and Gluten Ataxia. Open Original Shared Link It's a very dry article, but it's worth slogging through the first part because it covers Gluten Ataxia in... -
Barry, I suggest you check out my recent post "Bread Head?" in Related Disorders and Research section. The article I posted recently discusses this very thing and explains why gluten has that effect on us. Hope it helps. Knitty Kitty
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ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
It's under the topic heading "Celiac Disease-Related Disorders and Research". I apologize for not making that more clear. Here's the link, but let's discuss it under the other topic. Open Original Shared Link Glad to hear your daughter has such astute taste buds! -
Here's the article I mentioned in Mermaid's Mom's post. Open Original Shared Link It explains the way gluten gets in our brains and how we become ill.
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ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
Mermaid's Mom, I'm glad to help. I take Stress B-Complex vitamins which contain 50 mg of most of the B vitamins, and 400mcg of folate. The brand I use is Bluebonnet Stress B-Complex, but there are other brands out there, just make sure you get one that's gluten free and the ratio is similar (50 mgs of most B's to 400mcg folate) and without added... -
ARCHIVED Let's talk Gluten Free Depression...
knitty kitty replied to Mermaid's Mom's topic in Coping with Celiac Disease
Mermaid's Mom, You're being a great mother! You're doing all the right things. You didn't give up getting a proper diagnosis for your daughter. And you're educating yourself and your daughter for the future. Something that may be overlooked are the B vitamins. Wheat products are enriched with B vitamins. Once gluten is removed from the diet...