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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by celiac sharon
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ARCHIVED "You're a non-traditional case" Doc said. What?? Help Please!
celiac sharon replied to Jesikita07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The damage to the villi could have been patchy and if they didn't take enough random samples the May have missed it. -
doritos gluten free??
celiac sharon replied to 1398-Days's topic in Gluten-Free Foods, Products, Shopping & Medications
No, but beanitos makes a really good nacho cheese flavor that is gluten free -
ARCHIVED Visiting family
celiac sharon replied to CeliacMommaX2's topic in Coping with Celiac Disease
I would bring my own or disposables. The dish sponges or dish clothes will be covered in gluten. And sometimes I pull soiled dishes out of my own dish washer after washing. So not sure I trust that either -
ARCHIVED Wheat Belly Total Health= High Fat?
celiac sharon replied to BarryC's topic in Related Issues & Disorders
Interesting. I tried the same thing, not only hoping to lose a little more weight, but hoping the increased fat would improve my constipation problems. It didn't and my stomach just didn't feel well. I feel better just doing my low calorie which is pretty much automatically lower fat in order to save calories. I also found all that flax didn't sit well with... -
ARCHIVED Whole Foods Lentils?
celiac sharon replied to Maddi's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree never buy from bins. And everyone's reaction to gluten is different it's hard to tell. I retain fluid from accidental glutening. If I suspect I've been glutened the scale will confirm it for me. Up several pounds. Retention from increased inflammation. So your reaction would not be a clue for me but that doesn't mean it isn't for you I would stick... -
ARCHIVED Still Constipated After 4 Months Gluten Free?
celiac sharon replied to Melina89's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wish I knew. True celiac and been strictly gluten free for 4 1/2 years, I take miralax and mag citrate every single day as well as pro and pre biotics, just to go somwhat normally. My diet is as perfect as it can get. I get enough fiber AND enough fat So let me know if you discover the secret -
ARCHIVED Dry Beans? Cc?
celiac sharon replied to Maddi's topic in Gluten-Free Foods, Products, Shopping & Medications
I buy gluten free beans given a choice, but I also buy regular ones that I sort and wash the heck out of Just take care to wash multilple times I haven't been able to find black ones labeled gluten free, for example, so I wash. -
ARCHIVED Living With A Non Celiac
celiac sharon replied to plushg's topic in Parents, Friends and Loved Ones of Celiacs
Pay close attention here. He is your boyfriend, not your husband, and already he shows this much lack of concern for your health because it is inconvenient for him? My husband chooses to eat mostly gluten free for my sake. I didn't have to ask. He does eat some gluten but is mostly when he eats out or some pre packaged gluten items. He even eats my gluten... -
ARCHIVED Want To Have A Little Gluten?
celiac sharon replied to manasota's topic in Coping with Celiac Disease
I agree with kareng, I was diagnSed at 53,, and of course like all celiacs, I have good and bad days, and days I struggle with joint pain and fatigue, but I am still able to work full time as a nurse. I have, however, taken a job that doesn't require heavy work, I'm 58 now and don't think I could still do bedside nursing, but I am very active and exercise...- 26 replies
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- 5 years gluten free
- 60 year old
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Sure you could be sensitive to FODMAPS, but also consider getting your B vitamins checked. My B1 and B2 were unmeasurably low, and they affect you neurologically and muscle weakness. On a positive note, now, 4 1/2 years later I only supplement with a MVI and my B's are okay. Takes a long time to heal the gut.
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ARCHIVED The-Myth-Of-Big-Bad-Gluten
celiac sharon replied to kenlove's topic in Publications & Publicity
Hmmmm, thinking.....thinking...... I do see why you initial reaction might be some offense, but he poses some interesting questions that are worth considering. I've been very interested in reading that gut bacteria, or lack thereof is the problem that triggers our celiac. We are just too clean!! Not that I'm going to go eat dirt. But still , food for... -
ARCHIVED I Own A Glutened, Gluten Free Bread Machine. Should I Replace?
celiac sharon replied to sweetzucchini's topic in Gluten-Free Recipes & Cooking Tips
I'm really picky about my diet, but I have continued to use my kitcheaid with its stainless steel Bowl. I got rid of my bread machine but I had a cheaper one. I would think Though that with a very scrupulous cleaning and a brand new bread bin, that it would be okay, as long as the dough hook is part of the bin replacement -
ARCHIVED Ice Cream
celiac sharon replied to blahblah's topic in Gluten-Free Foods, Products, Shopping & Medications
Breyers has about 30 flavors labeled gluten free now, and Haagen das has a website showing gluten free flavors -
ARCHIVED Feel Like I'm Going Crazy
celiac sharon replied to pikkulintu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Pursue this like a demon and don't be swayed. I DO know how miserable DH is! I'm not sure about DH people not coming back positive on blood work. I am positive blood work and biopsy. But depression is also part of the picture so it's very easy to let people make you feel like you are over reacting when in reality, THEY don't want to be inconvenienced by... -
ARCHIVED Generalized Inflammation As A Symptom? (Plus, My Story)
celiac sharon replied to dopaminegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed a little over 4 years ago. I had been to the doctor complaint of intense fatigue, terrible joint pain, daily headaches, in fact I too had no idea that having my head hurt constantly wasn't normal. I can't say I was exactly depressed, but I did have a very firm belief that I was not going to live much longer. What he found first on my blood...- 7 replies
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- gluten challenge
- pre-diagnosis
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ARCHIVED Need Some Reassurance
celiac sharon replied to AmandaD's topic in Coping with Celiac Disease
It's pretty common, I actually was diagnosed with Hashimotos first. Just make sure the meds you take for it are also gluten free. Biggest problem really, is that you won't always know if the fatigue and joint pain comes from a accidental glutening or from under treated thyroid. Otherwise, it's really not a big problem for me to manage both It takes a few... -
ARCHIVED Eating Is Exhausting!
celiac sharon replied to RachelCherie's topic in Coping with Celiac Disease
Actually there a whole slew of nutrients, including iron that could be causing fatigue. Also, like others said, it really takes time to feel well for some, although I STARTED feeling better in about a week. Just not complete relief even now, four years later. What puzzles me, is it sounds like you DONT have fatigue in other aaspects, if I hear you right?... -
ARCHIVED Tortillas
celiac sharon replied to Zebra007's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, you have to make sure you buy gluten free ground corn products of all kinds. They often make their corn meals in the same factory as gluten flours and risk of contamination is high -
ARCHIVED First Party Bringing My Own Food
celiac sharon replied to FruitEnthusiast's topic in Coping with Celiac Disease
Some of takes time and education for your friends. Friends who are worth, will learn to get it When we have work parties there are efforts by my friends to include safe foods. I always bring my own safe contribution. Everyone is used to me reading every label so they will actually save labels for me. They also let me fill my plate first to avoid my risk... -
ARCHIVED gluten-free Piiza Crusts, First Attempts
celiac sharon replied to murphy203's topic in Gluten-Free Recipes & Cooking Tips
The King Arthur crust turned out great for me but I put it on parchment. I put it straight on metal before and the same thing happened. But on parchment it browned nice and crusty and fluffy. -
ARCHIVED Celiac Or Not?
celiac sharon replied to Casy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And my daughter has NONE of it. Only anemia and vitamin deficiencies. Of course she is still young -
ARCHIVED Celiac Or Not?
celiac sharon replied to Casy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think those are a lot of red flags. And not all celiacs have bad belly pain. Some of us have terrible bloating, gas pains and constipation. I think your thyroid needs checked as well -
ARCHIVED Lotions And Potions
celiac sharon replied to w8in4dave's topic in Related Issues & Disorders
Coconut oil. Inside and out -
ARCHIVED Should My Daughter Have A Biopsy?
celiac sharon replied to Suzembro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think she should stick with it and get the diagnosis. As time wears on, and she feels better, she may fool herself into thinking it's okay to have gluten if she wants to because she isn't a "celiac" because she doesn't have the diagnosis. Plus, as treatments come dOwn the pike, she may not qualify for them without a actual diagnosis. -
ARCHIVED Do You Make Homemade Waffles?
celiac sharon replied to BlessedMommy's topic in Gluten-Free Recipes & Cooking Tips
Danielle walkers "against all grain" has a cashew flouR waffle I love. She grinds raw cashews but I just use cashew flour from Nuts.com