manasota
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Dear egs1707, You will not like what I have to say. But, like Squirmingitch (whose entire post I agree with), I am only trying to help you. 1. You have already been given all the best advice possible by the nicest people. 2. You seem unable to accept this advice; so I won't focus on being nice. 3. I believe you are clinically depressed...
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Cristiana, I had symptoms almost exactly how you described in our original post, when I was 12 years old. I was terrified. Nobody else seemed concerned. Luckily, this only lasted a year. I developed classic migraine symptoms when I was 26 years old. These lasted for decades. Way back then, migraines were dismissed as merely "headaches" that were...
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ARCHIVED Symptoms 'flaring' for weeks after flu jab?
manasota replied to Jammy27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My Celiac symptoms always flare after vaccinations. I've been gluten free for 6 1/2 years. I find the vaccine benefit to outweigh the temporary rise in symptoms--even though it is quite annoying. Since you've been gluten free for about a year, it's very likely you need more time to heal. Just stick with it as best you can . Keep getting flu shots... -
ARCHIVED No grains at all?
manasota replied to carle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Carle, I didn't really get much better until I eliminated all grains. I'm diagnosed Celiac for 6 1/2 years and still do much better without any grains. I don't do dairy either because it causes me pain. (Never was lactose intolerant. Dairy "just" causes me pain.) I still stick to mostly whole foods. I still would not call myself "well"; just... -
Cock Brand Products
manasota replied to saraahlynne's topic in Gluten-Free Foods, Products, Shopping & Medications
I also love Spicely Organic Spices! CERTIFIED GLUTEN FREE and very, very good. You can get them on amazon.com. For me, it's simply not worth taking the chance with un-certified spices. I've seen videos of how spices are gathered, transported, etc. in foreign countries. Not worth chancing the possible cross-contamination IMHO. -
ARCHIVED Relief! And it isn't Dapsone!
manasota replied to squirmingitch's topic in Dermatitis Herpetiformis
I am so sorry for your suffering. Your story drives home the point that having Celiac Disease drives us all to do our own research and try to find a doc to help--if we are lucky. I wish you a speedy recovery and my most earnest wish that you are NEVER cross-contaminated again! You are a real trooper (little comfort, I know). Wish I could do more... -
Boysmom, my heart is breaking for you! I want to wrap my arms around you and beat the DEVIL BC into the ground so nobody needs to endure the fear or pain associated with it. I was diagnosed with BC 3 years before being diagnosed with Celiac. I had surgery and radiation. I thought I dealt with both very well--until other AI diseases started showing up...
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ARCHIVED Struggling with Rifaximin
manasota replied to jddh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Nausea, vomiting, diarrhea can happen with any oral medication. I wouldn't worry unless the diarrhea becomes very severe. If that happens, you should call your doc immediately. I had 2 courses of rifaximin last winter (6 years gluten free). I did not suffer any of the above-mentioned symptoms. People are different. I thought the rifaximin helped... -
ARCHIVED help with calcium supplements
manasota replied to Amna's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Amna! Sorry, I don't know about Solgar. Country Life brand offers several different calcium supplements that are all Certified Gluten Free. Don't feel too bad about your docs not knowing much about Celiac. In the USA, it's not much better. Ha! Good luck! -
Thank you so much for letting us know. Bartfull's calming optimistic peace will be missed.
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ARCHIVED Get Your Super Foods: Eating High Nutrition Without the Oxalate
manasota replied to Scott Adams's topic in Publications & Publicity
Superb article especially for those with osteoporosis! -
ARCHIVED Gluten free apparently not helping entirely
manasota replied to jeanzdyn's topic in Related Issues & Disorders
I am so impressed with you! I thought you might just curse me out and not return to the site. You are stronger than you know. You have more options than you might realize. Please keep in mind that my only goal here is to try to help you save your life--not to get you to like me. I cannot imagine that you are happy or comfortable or relaxed living... -
I have no desire to argue with anyone. I'm very sorry if you took it that way. I'm simply seeking information. I have not had the benefit of the valuable experiences you describe. I agree the OP had a legitimate rant. I am frustrated sometimes too. I think my concern is that I don't want to forget those Celiacs who are gluten free and still have...
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Very, very well said!
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It is a small world! I used to work in a large neonatal intensive care unit in a children's hospital. Most of our babies lived. Still, I can identify with your example. I agree with almost everything you posted. However, I really do not know if "most people live successfully with Celiac". That may actually be the case. i just don't know it for a fact...