Jump to content

chrissy

Advanced Members
 View Profile  See their activity

  • Posts

    993

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by chrissy

  1. chrissy

    ARCHIVED Hiatal Hernia

    chrissy replied to Lisa's topic in Related Issues & Disorders

    my youngest child had surgery for reflux, which was caused by a good-sized hiatal hernia, just before she turned 10 months old. the surgery my daughter had done was called a fundoplication. the top of the stomach is wrapped around the bottom of the esophagus and stitched into place. i am pretty sure that a fundo is done when someone has surgery to repair...
  2. chrissy
    i've thought about this whole "testing is traumatic" thing for a numer of years. gfp is right-----a blood test really is not very painful. i assume that people think it is traumatic because the child starts screaming hysterically. well, i've had my children scream hysterically when i have changed diapers, given baths, washed hair, taken away a dangerous...
  3. chrissy
    just my opinion----but my suggestion is that you stay gluten free like your doctor suggested (he must also feel you have celiac disease--just like the first doctor?) and have your Ttg levels tested again in about another month and a half. you should be able to see an improvement in your Ttg levels by that time if you have celiac disease. if you have raised...
  4. chrissy
    i've never heard of such a thing, but it might be a good idea to check into things a little more before taking your doctor's word about it-----i was a teenager during those years and we had never even heard about HIV back then, so it may not necessarily be the same thing.
  5. chrissy
    none of the symptoms are a slam-dunk, but it is possible that they could be caused by celiac diseas. i have alot of those symptoms and i don't have celiac disease. it certainly would be a good idea to ask the doctor to run a celiac screen on you and yes, if it is positive you should have all your kids tested. the allergist should be able to have this run...
  6. chrissy
    i don't think that the raised total IgA serum is particularly significant and the antigliadin IgA could be raised by things other than celiac. it would probably be a good idea to do further investigating.
  7. chrissy
    at children's hospitals they have all kinds of tools made for tiny little children----my daughter had an endo with biopsies when she was 8 months old.
  8. chrissy
    if it was your AGA IgA that was high it does not necessarily indicate celiac disease because AGA antibodies can be raised in other conditions. i can almost guarantee you that enterolab is going to diagnose you as being gluten intolerant----there are very few people that they say are negative----seems a bit fishy to some of us.
  9. chrissy
    have you done follow-up blood work to make sure her antibody levels have dropped?
  10. chrissy
    an elevated Ttg indicates celiac disease----what kind of doctor did you see?
  11. chrissy
    gentleheart---and endoscopy is nothing that you have to "endure"----i just had one recently and didn't remember a thing once they put me out. it doesn't leave any side effects, except maybe a slightly sore throat. i was out driving early in the afternoon after my procedure. i have reflux, two of my celiac girls have reflux, and my 3 year old had reflux...
  12. chrissy
    is 25-32% for weight something you feel is not a healthy weight?
  13. chrissy
    i have been sitting here giggling----my 3 year old turned to me and said "mom, what's funny?"
  14. chrissy
    the protein is in the whites.
  15. chrissy
    i derfinitely agree with rez and e&j0304, i would go for proper medical testing, you can do whatever you want with your child's diet after that------the fact that enterolab says that a positive fecal fat score would indicate a positive diagnosis of celiac should set off bells indicating their inaccuracy------fat malabsorption is NOT diagnostic for celiac...
  16. chrissy
    angie, chances are, that when the gi checked your son for EE they also took a biopsy of the duodenum----just ask for a copy of the pathology report and see what it says.
  17. chrissy

    ARCHIVED Another Uninformed Doctor

    chrissy replied to Marlene's topic in Doctors

    that is too funny!!------we see how doctors can have old info and think that all celiacs must have the runs and be wasting away, but long hair????? hope they find a new doctor!!!
  18. chrissy
    i've heard the same info as happygirl-----this medication will not be something you can take AFTER an accidental glutening to avoid the problems associated with that. it must be taken BEFORE consuming gluten in order for it to be effective. the only way it would work for accidental glutening is if you knew you were going to be glutened and took it ahead...
  19. chrissy
    the EMA test is left up the the interpretation of the one running the test which can make it less accurate. the Ttg test is done differently so there is no room for human error. this is why it is a better test.
  20. chrissy
    chrisser----a blood sugar level of 75 is pretty close to being considered "officially" low. it is at the bottom end of normal. maybe normal for YOU is a little different than the "standard" normal. i have a lot of trouble with my blood sugar dropping. if you have reactive hypoglycemia it may not show up with the normal tests that they do to test for hypoglycemia...
  21. chrissy
    Ttg is the best test, but you also need a total IgA serum done.
  22. chrissy
    thanks!
  23. chrissy
    AGA antibodies are not a good test for celiac disease----and your daughter's test was only .1 above nrgative----i agree with rez, i'd put her back on gluten to get a proper test done.
  24. chrissy
    where do i find the list for gluten free medications?
  25. chrissy
    it used to be thought that children outgrew celiac disease----they have since learned that this is not true. once a celiac, always a celiac. children with celiac disease will sometimes go through what they call a "honeymoon" period during their teen years when symptoms seem to disappear, which would probably explain why you didn't seem to have problems with...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.