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Estes

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Estes last won the day on July 27 2017

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    Female
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    Quad Cities, Iowa

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About Me

Eosinophilic esophagitis

Hiatal Hernia

Gerd

Diagnosed Celiac with blood test only in March of 2016.  Was denied endoscopy by Dr. and insurance because blood test was extremely high.  I disagree with their rejection.

  1. icon Tyee reacted to a post in a topic: Gold Standard. is it necessary and why
  2. icon Estes reacted to a post in a topic: Has anyone heard of the Covid vaccine/boosters triggering the celiac disease gene to cause celiac disease ?
  3. Estes
    Very interesting about Supplementation. I was recently diagnosed with EPI which is celiac related. The drug for that is Creon. Creon comes with fat soluable supplements as a free add on. I did not know about the cancer connection. I will say Creon and the vitamins that come with it make me feel amazing.
  4. Estes started following Everything is making me sick suddenly , Food and heart symptoms and Gold Standard. is it necessary and why
  5. Estes
    I believe my heart issues were deficiencies. Once I ate better, took supplements, resolved my pancreatic insufficiency issues, my heart issues went away. Could you be missing or low on any vitamins? Maybe start by checking D, B, and magnesium.
  6. icon OmaDeb reacted to a post in a topic: Gold Standard. is it necessary and why
  7. Estes
    This happened to me too. I was told I did not need an endoscopy to confirm but now I can not participate in studies. I also sometimes doubt my diagnosis. I wish I had that endoscopy.
  8. Estes
    I had this happen to me. The neurological symptoms seemed to be brought on by inflammation caused by the virus or it’s vaccine. I stocked up on turmeric and everything else that naturally lowers inflammation and my brain fog naturally cleared. I do anything and everything natural to keep my inflammation down so I can use my brain.
  9. icon Margarita reacted to a post in a topic: Brain Fog Recovery.
  10. Estes
    My biopsy was also negative because it took me 4 months to get an endoscopy. I was very sick at the time of the High positive blood test. We are all calling it celiac disease which had healed enough at the time of the endoscopy for it to be negative. It just means the gluten free diet is working. I will always have celiac. Other things went away...
  11. Estes

    ARCHIVED Colorado?

    Estes replied to lacey's topic in Introduce Yourself / Share Stuff

    I am from Colorado but I don’t live there now.
  12. Estes
    I am your symptom twin and I have celiac and EOE. EOE can be helped by swallowing an inhailed steroid. Basically I had to use a steroid inhaler, hold the puff in my mouth, then swallow it instead of breathing it in. Make a bunch of soup with clear broth and over cooked veggies and live on that for awhile. Then look into AIP wellness. I don’t have t...
  13. Estes
    After almost two years I have found eating at home to be enjoyable and delicious. A few of my keys to this are a great source of recipes: www.iowagirleats.com and a way to stay organized: www.plantoeat.com helps take me recipes and create a calendar and shopping list. Please contact me if you plan to sign up for this. I will give you my real name...
  14. Estes
    I like these one-liners! Thank you and keep them coming. It is giving me mental amo for all my holiday stuff.
  15. Estes
    I want a great sentence to use with grandmas, neighbors, waitstaff... I want it to be memorable and not too overly dramatic. I also would like it to be slightly accurate. Here is my current scenario: new friend: What is Celiac? me: It means my body responds to gluten the way yours might respond to rat poinon. new friend got it and understood...
  16. Estes
    My brain fog did not go away until I stopped taking iron. I also noticed a big increase in energy after stopping. Iron gave me ulcers according to my Dr.
  17. Estes
    I have had three different flavors of Ricola cough drops this week with no problem other than a possible sugar headache from so many of them. It could just be a sick headache though.
  18. Estes
    I bet $5 you have an ulcer. I took iron for years and doc says it caused my ulcers. I went off iron and took meds for the ulcers and the pain and nausea went away. That does not explain all your symptoms though. I ran a marathon then had babies. Now I am 42 with celiac. I am choosing not to run that much anymore because I need those nutrients...
  19. Estes
    Popcorn, wine, as well as coffee are my favorite things. Have you identified what is left to enjoy?
  20. Estes
    Yes, we like peanut butter in the blender with frozen bananas and a liquid (juice, coconut water, almond milk...). You can add berries or even ginger and turmeric.
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