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BergieF

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Latest Celiac Disease News & Research:

Everything posted by BergieF

  1. BergieF
    Gabriel Cosmetics and ZuZu Luxe have certified products. I use them regularly. https://gabrielcosmeticsinc.com/ On their FAQ page: Are your products Gluten-Free*? Gabriel, Zuzu Luxe and Clean Kids Naturally have been certified gluten-free by the Gluten Intolerance Group. According to GFCO’s website their certification seal, “stands for...
  2. BergieF
    3 of my children and myself were all negative on the celiac panel bloodwork. You could always have the genetic test and biopsy. We had ours done through Prometheus. The link is listed below. https://www.prometheusbiosciences.com/celiac-genetics/
  3. BergieF
    Our house uses Everyone Soaps. They are certified gluten free by the GFCO. They have a wide range of products. My kids love the 3 in 1 soap (shampoo/body wash/bubble bath). Desert Essence also has some gluten free products, you will have to check each item on it's website for the gluten-free symbol. I also have used Gabriel Cosmeics (Zuzu Luxe...
  4. BergieF
    Brand name Adderall XR is gluten free, but the problem comes down to the generics. I've looked at the ingredients of several online prior to posting here. It would be nice to have the FDA pass the gluten in medications act! It would save a lot of people some time and trouble. So in saying all of that - My options are Actavis, Teva and Shire...
  5. BergieF
    I'm currently taking Vyvanse for ADHD. My insurance won't cover the medication due to wanting me to try other generic options through step therapy. Vyvanse has been a great help over the past month but I truly can't keep paying full price for the medication. My doctor will prescribe generic Adderall XR at my next appointment. I've called a few manufactures...
  6. BergieF
    Eucerin lotion has gluten in it. She needs to use products that are gluten free. You have to think how many times a day a kid will touch their lips or pick something up to eat. If that body product has gluten in it, she will end up ingesting it somehow. Same thing applies with lipgloss/lip balm. Also something to think about since the school...
  7. BergieF
    My kids and I use Everyone Lotion. It's Certified Gluten Free. I've been able to find it at my local Wal Mart and have ordered it from the site below. I second what Ennis said about calling/emailing the manufacturers. Also, Gabriel Cosmetics and ZuZu Luxe have certified products. My daughter and myself use their line of makeup. Open Original...
  8. BergieF
    Both sets are made on shared lines. That was the point of my response. Many people have gotten sick from Gluten free products from Frito Lay.
  9. BergieF
    I understand the link. I’ve gotten sick from Frito products that are labeled gluten free. I called and spoke with them on their processes, they “clean” the lines. I won’t buy products that are ran on shared lines/“cleaned”. It’s not worth it.
  10. BergieF
    The issue with Frito is they use the same lines with gluten containing products. Even though they clean them there is still a chance in cross contamination.
  11. BergieF
    You are AWESOME, as always!
  12. BergieF
    I had edited my comment earlier to show that I was talking about regular Rice Krispies. My eyes skipped over the "BROWN" in the post.
  13. BergieF
    Regular Rice Krispies in the US and Canada are not gluten free. They contain Barley Malt. See the below ingredients of the Rice Krispies in Canada... Ingredients: Rice, sugar, salt, corn and barley malt extract, Vitamins and minerals: iron, niacinamide, thiamine hydrochloride, cholecalciferol (vitamin d3), pyridoxine hydrochloride, d-calcium pantothenate...
  14. BergieF
    We use Schar Artisan Baker Multigrain Bread in our house. My kids say this one doesn't choke them, haha... The ingredients are listed below for those that might have additional intolerances. Ingredients: water , rice starch , sourdough (water, rice, flour) , corn starch , agave syrup , buckwheat flour , sunflower oil...
  15. BergieF
    I am Catholic and only receive wine, the blood of Christ. Our priest makes sure that my kids and I are the first ones to receive communion from the chalice. The wafer is considered low gluten.
  16. BergieF
    My 13 and 7 year old have Celiac Disease and my 4 year old has the genes. I have a double dose of the genes so no matter what my children will get a gene that could develop into the disease. I hope that my youngest son doesn't ever develop the disease, but his dr said it could activate later in life. My kids are thriving, they have normal lives, they are...
  17. BergieF
    My 7 year old son has this happen. I too get highly angry, like could flip a vehicle kind of angry. It's hard for the little ones to understand what is going on at the time, only knowing that they can't control themselves.... The glazed crazy look in his eye are always a tell. Sleep helps, along with lots of water the following day. The next day we talk...
  18. BergieF
    Awesome! I've given up coffee since my husband contaminated our Keurig. I'm going to have to go out and buy my own old school coffee pot so I can try these out. I'm super excited.
  19. BergieF
    Companies get so sneaky with labeling. I stick with the companies that are dedicated gluten free if I am buying processed foods. Most will have a website with a section under Frequent Q&A's. If they don't, email or call to get clarification as to how the item is processed. I know that my family can't eat anything that has been made on a shared line...
  20. BergieF
    I get it on the back of my right leg and right elbow. I have no idea why it's just limited to the right side of my body. My family care doctor prescribed me a steroid and steroid cream. The oral steroid has only made me grouchy and fat! I'm probably going to stop taking it since it hasn't helped the rash much. Good luck getting rid of yours!
  21. BergieF
    My daughter and son can pack away the food. We all have the CONSTANT feeling of being hungry. My daughter and I both gained about 15 pounds in 7 months, my son is slowly gaining weight. It honestly freaked me out to actually gain weight. We don't eat processed gluten free foods very often. If we do it's certified and made in a gluten free facility. ...
  22. BergieF
    I was able to get the ingredient information along with seeing the bottles from the pharmacy. The Polytussin is labeled gluten free on the container as well in the ingredients. Omniceft had gluten free ingredients, I called the company that makes it and they stated that it was gluten free.
  23. BergieF
    My 7 yr old son is sick, he was prescribed Polytussin and Omniceft. The pharmacy can't find a way to look up the meds to see if they are gluten free. My go to pharmacist isn't there today.... Do you have any information on these medications?
  24. BergieF
    Your future has not been taken away. You just have to be very careful eating out. I have a handful of restaurants that I trust to cook my food correctly. I ask a billion questions too (speak with a manager, ask if food is prepared in it's own dedicated facility and if they have dedicated fryers, ask about the workers and the sanitation practices) If you...
  25. BergieF
    It took me years to be diagnosed. I've been misdiagnosed with several different things and knew that there was more to it. I requested to have an egd to test for Celiac's two years ago, my doctor never called me back so I went low gluten from then on. I still felt like hell because I didn't realize that "everything" has gluten in it.... My daughter became...
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