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TexasJen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by TexasJen

  1. TexasJen
    I had a similar problem! I had occasional heart burn before but it was pretty bad for 2-3 weeks after the gluten-free diet started. Celiac can caused gastric emptying issues. So, the food and acid stay in your stomach longer so easier to get heartburn. Also, I figured that unknowingly I was eating carb-containing foods when I was feeling slight heartburn...
  2. TexasJen
    I'm so sorry. This must be very hard for you and your family. The guidelines for which family members to test and how often are a work in progress. Currently, I believe the guidelines state to test all first degree relatives every 2-3 years or if they ever develop ANY suspicious symptoms. (Remember 50% of people with celiac don't have GI symptoms so...
  3. TexasJen
    Here's an explanation from the University of Chicago's Celiac center as to why Anti-Gliadin antibodies can cause a false positive. Open Original Shared Link Did they do the other celiac tests and an IgA level? If not, you might want to follow up with those blood tests now. The thing is that getting an accurate diagnosis from the beginning is...
  4. TexasJen
    This gluten-free fest is going on in Central Texas next month - And there's a Groupon for it right now if any one is interested.. Open Original Shared Link Open Original Shared Link
  5. TexasJen
    In N Out is about the only fast food place a celiac can eat.....Order a protein burger and make sure to mention your wheat "allergy". You can eat everything there except the bread. Even on a busy day, they seemed to make a great effort and preparing my meal safely
  6. TexasJen
    I'm sorry! (and it does suck)......I was diagnosed 9 months ago and the one thing that I still have a bit of a hard time getting used to is the not eating in restaurants. I do miss it quite a bit. We didn't do it very often - maybe once a week but it was my break from the kitchen and my own cooking. I tend to get stuck in ruts and eat the same things...
  7. TexasJen
    Liver enzymes can be tricky.... They can go up just because of celiac, but if you are on a strict gluten-free diet and your antibodies are negative, that seems unlikely. The gluten-free diet is very high is simple carbohydrates which can lead to fatty liver (steatohepatosis) which is the most common cause of elevated liver enzymes in the US. Also...
  8. TexasJen
    I was just about to ask the same question! Thanks for asking. Curious to know the answer.....
  9. TexasJen
    The article is interesting theoretically but I am not sold... First of all, the article is clearly biased. Secondly, it is constructed like an academic article might be but it is clearly more of an editorial type piece. Third, there is absolutely no scientific evidence presented in the article. Here's his summary, " ...
  10. TexasJen
    We travel too. I was just diagnosed last year so I am still learning, but I find that it is easier to stay in places with a kitchen and not eat out for every meal. It's too much stress! The way I see it is that there are 2 kinds of travel: to see family and for other reasons. When we travel to see family, we usually stay at a house with someone we...
  11. TexasJen
    I was wondering the same thing, too. I would think it would be useful for traveling as well
  12. TexasJen
    Wow! I am sorry. What a tough transition for your granddaughter.....That is a lot of food allergies to contend with. I agree with the idea to just skip the bread for now. gluten-free bread is pretty terrible to be honest. My kids love homemade granola bars and these: Open Original Shared Link Just use tree nuts and pumpkin seeds and skip...
  13. TexasJen
    My understanding is that Gliadin antibodies can have false positives and a false negatives. They can occasionally be high in normal people and they can also be high in other GI diseases like Crohn's - so that probably doesn't help you at all! Maybe your second opinion doctor would run a full celiac panel again (as opposed to just 1-2 of the tests). As long...
  14. TexasJen
  15. TexasJen
    I just had one last night for the first time. I feel fine today, but I don't get a lot of symptoms so you probably can't rely on me. Curious to hear what others say.....
  16. TexasJen
    Lactose intolerance is related to celiac because the villi (that are destroyed in celiac) make the enzyme Lactase that breaks down lactose. Most people with lactose intolerance have stomach cramps, gas, diarrhea after eating dairy/lactose. You said you have lip swelling and eczema which sounds like a true allergy. I'm not sure if food allergies are related...
  17. TexasJen
    I get migraines as well. I have had them for 20+ years but have (probably) only had celiac for 5. My migraines did get a lot better when I went gluten-free and a lot of people with celiac note the same thing. A common regimen to prevent migraines (without prescription medication) is Magnesium oxide 400mg daily and CoQ10 100-200mg daily. I have taken...
  18. TexasJen
    The H just means "high" (as opposed to normal. As for the endoscopy, I believe it is the preferred way to confirm the diagnosis. I don't think the large intestine has the same changes of celiac (i.e. there are no villi)
  19. TexasJen
    Welcome! I'm glad you found it so young.... Usually, for the first 6 months, this group recommends mostly whole foods. Meats, fruits, veggies, nut butters, hummus. No eating in restaurants etc. I don't think that will be much different for adults or young kids. The big difference is that the common snacks that most kids eat will not be an option for...
  20. TexasJen
    Sure, it's definitely possible....Now to prove it. Is there anyway that you can get copies of the labs and the pathology report that the doctors did? Maybe they did everything correctly.... Here's a link to interpreting the blood tests. If the doc only ordered one or two of the panel of tests, you could have a false negative... https://www.celiac.com...
  21. TexasJen
    What antibiotic did you take - so that we can avoid it? So sorry to hear that you are suffering......
  22. TexasJen
    This is very anecdotal, but before I was diagnosed celiac, a good friend of mine was trying to get pregnant. She had a very mild case of Hashimoto's thyroiditis but didn't really want to take any meds for it. She went on a gluten free diet and her Hashimoto's resolved. She subsequently got pregnant and has never had trouble with her thyroid again despite...
  23. TexasJen
    Do you have a grill? Grilled chicken/pork chops/fajitas? People could bring the sides? Or loaded baked potatoes? guests bring the bacon, butter, sour cream, cheese and even brisket? Or a brisket as a main dish - people bring the salad and beans? Breakfast tacos bar - tortillas, scrambled eggs, cheese, sausage, potatoes, salsa?
  24. TexasJen
    It seems very reasonable to get the rest of the celiac workup since one of the tests was technically positive. However, hemochromatosis causes a lot of the same symptoms if you are heterozygous (both genes are positive). Do you know if you are heterozygous or homozygous? This would be very important to get treatment for if both genes are positive. Does anyone...
  25. TexasJen
    Ummm....I ate a whole bag :). They were just OK. A friend gave them to me because her daughter is selling them. But, since I don't get too many symptoms, I'm not sure that's too helpful for you....
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