
marren27
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Everything posted by marren27
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, I'm very glad to go back to gluten-free. I was lucky I did not need to eat it very long to prep. And yeah... I don't know why some people just choose to go gluten-free! I would never do it if it weren't for having Celiac.- 20 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks everyone. Got the endoscopy today showing mild villous blunting. Biopsy results in 5-7 days.- 20 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Update: for most accurate results, I am eating one piece of white wheat bread a day and am hating the symptoms. Less than two weeks until the endoscopy so I'm hanging in there.- 20 replies
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Swollen ankles and feet
marren27 replied to jantwins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not really sure what causes it, but I know mine get better after I go running. -
ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Update: Gemini, you were right! I went to the GI doctor today. I'm still getting scoped to check out the damage (but I won't need to go back on gluten--that IS NOT happening!), but she said there's nothing else that can cause those numbers.- 20 replies
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ARCHIVED Itchy, Crawling Skin, No Rash
marren27 replied to Oneloved's topic in Related Issues & Disorders
I'm sorry to hear about your daughter's skin causing her pain. If you haven't yet, take her to a dermatologist, it could be something like eczema. I get itchy skin from gluten but no rash, and my sister, who does not have Celiac does have eczema and it causes her skin to hurt very badly and itch when she doesn't treat it with special ointment and cream. It... -
ARCHIVED Bone health recovery
marren27 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, Due to poor bone health and high blood work, I am suspected to have Celiac's (a few more weeks and I will be back in the States to complete testing!). Anyway, I'm wondering if anyone had success stories about regaining bone density? My nephrologist says this will happen, and I trust her, but I would like to hear what anyone here did...- 3 replies
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If Norway is anything like its next-door neighbor, Sweden, you should be OK. My relatives were recently in a smaller Swedish town (not Stockholm) and said there was a wide selection of gluten-free at most grocery stores, gluten-free bakeries everywhere, gluten-free options at many restaurants, they said it was even better than their selection in the Pacific...
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ARCHIVED Newly diagnosed and living abroad with Celiac
marren27 replied to Waitwhathm's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Waitwhathm, great to hear you are finding some products--cool that you found chicken like that! Kudos to you being proactive and finding products online and cooking. Just know you're not alone. I'm in a similar boat to you (Russia, ordered off gluten a week before leaving). I miss eating out too. If you haven't already, look for Tamari sauce (soy... -
Happy news to hear of your daughter's drastic improvements! You must be a proud mom!
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Gemini--you're right, I told a doctor a few years ago I had issues sometimes with wheat and they blew it off and told me that I was eating too much fiber. Thanks for the advice, I will get those tested ASAP when I get home. Yes thyroid medication is a miracle but only in the correct dose!! Wow, your poor niece. Surprisingly, I'm the (tentatively...- 20 replies
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Thank you Gemini! I'll look through these. I had already bought my plane ticket so I went for it!
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ARCHIVED Dr. Korner Caramel Rice Cake not gluten free
marren27 replied to marren27's topic in Gluten-Free Foods, Products, Shopping & Medications
cyclinglady, great idea. I find the people here are generally helpful (they just don't understand cross contamination) so I'll try that.- 4 replies
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ARCHIVED Too much sugar?
marren27 replied to KathleenH's topic in Gluten-Free Recipes & Cooking Tips
If you're ok with some sugar from vegetables, carrots and Bolthouse Farms blue cheese yogurt dressing is one of my favorite gluten-free snacks.- 12 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And any other replacement suggestions are appreciated! I'm looking through the coping forums for ideas.- 20 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for the information, Jmg. With my move overseas I have not found gluten-free oats and have been eating regular oats, but with all of this response I am now replacing those with rice and buckwheat.- 20 replies
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ARCHIVED White bread causes issues but wheat bread doesnt?
marren27 replied to hersheygirl9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
White bread is usually fortified with vitamins, while whole grain bread is usually not fortified. Even gluten-free cereals such as Lucky Charms give me problems, and I suspect it's from all of the added stuff. The low fiber can also cause the issues. -
ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gemini, thanks for your knowledgeable and informative response, especially your background similar to mine with the bloodwork. Yikes--high intestinal damage would explain my low vitamin D, iron, bone density. . . My TSH was below 1, and after cutting the dose by 1/4, I can focus better and don't feel hyper. That was my bone doctor who advised me...- 20 replies
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ARCHIVED Dr. Korner Caramel Rice Cake not gluten free
marren27 replied to marren27's topic in Gluten-Free Foods, Products, Shopping & Medications
ravenwoodglass, good suggestion. There is a kitchen, I have been making buckwheat (only $1 for 1 lb here), rice, and oats (which I am going to start phasing out). I was hoping for a snack/cracker-type item, but no avail. :| Those dining cards, I think I found them online. I have mostly avoided going out to eat because of my budget and I don't want to...- 4 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for your response ironictruth. Now that would be funny if ended up a case study. :-) I appreciate your suggestions. My bone doctor ordered me off gluten after the test because I had/ve a stress fracture that was not healing. Unfortunately, I do not think I will be able to enjoy gluten food here, as I was accidently glutened yesterday and my...- 20 replies
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ARCHIVED Dr. Korner Caramel Rice Cake not gluten free
marren27 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Very disappointed. I'm in Russia and there are not many gluten-free options for snacks (I would have been more prepared but I was ordered to go gluten-free a week before I had to leave for this 3 month long stint). Anyway, I found some Dr. Korner caramel rice cakes labelled "Gluten free" and bought them, trusting the label (which I will not do again...- 4 replies
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ARCHIVED Probability of False Positive?
marren27 replied to marren27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for your response, ravenwoodglass. This is in line with what I've found from medical--that both of these tests have high specificity. I will take a look at the thread, this looks like a great community to get guidance. I appreciate your warning because oats have always been a big part of my diet, and could have played a role in my numbers...- 20 replies
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Anyone have suggestions for eating gluten free in Moscow, Russia? Food products from grocery stores, brands?
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ARCHIVED Probability of False Positive?
marren27 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Celiac community, I got a stress fracture and then went to a bone doctor, who tested me for Celiac. I was surprised (but not really, I had terrible symptoms to wheat as an infant but that is another story) when my blood test results came back. Anti tTransglutaminase, IgA was >250 (normal 0-13), and Anti Deaminated Gliadin, IgG was 68 (normal 0...- 20 replies