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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Links have good information. I note especially the one about wine and seasonal allergies. I notice more histamine overload episodes in the spring and fall when more pollen is in the air.
  2. trents
    White wine and beer trigger migraines in me just as quickly as red wine. So, for me I don't think it's the sulfites but the histamines. I can drink a small amount, like half a glass of wine and usually get away with it but a whole glass will trigger a migraine, white or red. Or, maybe I'm just sensitive to the alcohol itself.
  3. trents
    The gene test does not prove anyone has celiac disease. It just establishes the potential to develop celiac disease. To get active celiac disease you need the genes plus some triggering stress event, like a viral infection. A high percentage of the population have one or more celiac genes but never get celiac disease. The endoscopy would be a wise move. But...
  4. trents
    Many celiacs are intolerant of dairy (the butter on popcorn) and corn itself. I wouldn't think cross contamination would be the issue since the people behind the counter don't handle it with their hands. From what I have seen at theaters, they use a dedicated scoop.
  5. trents
    Wonderful! Thanks for keeping your promise and getting back to us.
  6. trents
    Welcome to the forum, Heather. Having celiac disease should not require you to make changes to your seizure medication unless the medications are not gluten-free. And you should check on that. It's usually not a problem but wheat starch can be used as a filler in pills, particularly if they are being manufactured outside of the USA. A good place to start...
  7. trents
    But if the problem is histamine as you suggest, would cranberry wine have less histamine?
  8. trents
    If you were being biopsied for suspicion of celiac disease, I have highlighted in red the relevant results. If you have symptoms that led you to suspect celiac disease then you may have NCGS (Non Celiac Gluten Sensitivity). The two conditions share many of the same symptoms but with NCGS there is no damage of the villi ("mucosa") that line the small bowel...
  9. trents
    I am not aware of anything that can cause a positive tTG-IGA result besides celiac disease. There are some diseases, foods (dairy) and meds that can blunt villi like celiac disease does but I'm not aware of anything besides celiac disease that can cause positive tTG-IGA. But we are finding out new stuff all the time in this area of medicine.
  10. trents
    Are you asymptomatic when consuming gluten?
  11. trents
    Ashleigh, If you were diagnosed with celiac disease "years ago" why are you back eating gluten? Or, did you never go gluten free in the first place?
  12. trents
    "No villi atrophy seen at the entrance to the duodenum." What about the rest of the duodenum? Doesn't sound like it was a complete check for villous atrophy as would be done when checking for celiac disease. After all, they were look for h.pylori and ulcers. Or, you've been consistent enough with eating gluten free to experience healing of the villi but still...
  13. trents
    You could also have NCGS (Non Celiac Gluten Sensitivity) which does not damage the villi of the small bowel and therefore will result in negative antibody tests and a negative biopsy. They share many of the same symptoms and the antidote is the same: total lifelong avoidance of gluten. You may also have an atypical immune system response. And if your...
  14. trents
    Yikes! The price for a 4 pack of their bread is $46 on Amazon.
  15. trents
    NikkiD, where do you get this product? Never heard of it before. Can you post a pic of the ingredient list and nutritional label?
  16. trents
    Welcome to the forum, liz.iz.listenin! I'm not sure that I see the problem with the Bilirubin as his numbers are below the threshold for positive. Did you mistype? Did they check his ALT and AST? About 18% of celiacs have elevated liver enzymes. Low albumin and total protein are also associated with celiac disease via the leaky gut syndrome that comes...
  17. trents
    After you have submitted a post you only have a short time windows to edit and attach photos. After that time window is closed you would need to start another post in order to include an attachment. If time window is still open you click on the three vertical dots in the upper right corner of the post widow area and then choose "Edit". The rest will be obvious...
  18. trents
    Anemia per se has would seem to have been ruled out by those tests.
  19. trents
    Thanks for the update. Take care.
  20. trents
    Which one did you reach out to, Uncle Roger?
  21. trents
    Not after years of eating truly gluten free. All celiac testing checks for damage done to small bowel villi by inflammation from digesting gluten. No gluten, no inflammation. Why do you ask? The best you can do after being gluten free that long is to go back on gluten for 6-8 weeks and get tested again. The equivalent of two slices of wheat bread daily for...
  22. trents
    spincricket, can you post the lab reference ranges for negative and positive. You numbers don't mean much without that and different labs use different reference ranges. And if you were avoiding gluten in the weeks leading up to the antibody test you likely sabotaged it.
  23. trents
    First, we not infrequently get posters on this forum who have this same pattern of neagtive antibody testing and positive biopsy. One thing that can cause a negative tTG-IGA is low total IGA. Was the total IGA count included in the results? Did the doctor even order it? It's also too bad that a full celiac panel was not ordered instead of just the tTG-IGA...
  24. trents
    About 10 years ago I developed clots in both lungs which led to the discovery that I have a clotting disorder known as Factor 5 Leiden. It's genetic so not connected with my celiac disease, at least not directly. I have a paternal uncle who has Factor 5 as well and another uncle on that side who was diagnosed with celiac disease. Typically, clots in the lungs...
  25. trents
    Was the millet bread cross contaminated with wheat, barley or rye perhaps?
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