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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    It is not rare for celiac disease to start at 70 years of age. You can develop it at any time but it does sound like in your particular case you may have developed it earlier.
  2. trents
    Thomasm5, you mention you have cut down on meat consumption as an economy measure so I'm not sure you can afford supplements. Many celiacs develop B-vitamin and D deficiencies. And vitamin D is instrumental in bone health so there may be a tie in there with the calcium deficiency. If you can afford it I certainly would suggest you start taking a high potency...
  3. trents
    Thomasm5, have you had a followup antibody test or endoscopy/biopsy since being diagnosed to check for compliance and healing of the villi? It's time for one. Studies show that most people who believe they are on a gluten free diet are actually on a lower gluten diet. This is especially true for those still eating out. Also, are you still consuming...
  4. trents
    Michele2977, I just could not follow your logic in what further testing you were recommending in your advice to OP.
  5. trents
    A full celiac panel would include not only IGA tests but an IGG test, the latter being helpful when total IGA is low: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But, OP states total IGA is not low.
  6. trents
    This might help: A dietician may be of help. Particularly one who is a celiac and has had to deal with the gluten free eating learning curve personally. It took my wife and I a year or two to develop that "sixth sense" of what to avoid because of being something that might have gluten hidden in it. Unfortunately, some of the learning curve necessarily...
  7. trents
    Most likely, you are getting some gluten in your food somewhere. Manufactured food products are always subject to formulation changes and your pantry needs to be rechecked. Every time you purchase mainstream processed food items the ingredient label needs to be checked. Don't assume that what was once gluten free is still gluten free. Also, are you still...
  8. trents
    "Bilirubin is a brown and yellow fluid that’s a byproduct of the essential process of the breakdown of red blood cells (RBCs). This substance is a major component of bile, an important digestive fluid that’s cleaned from the blood by the liver. If the liver is damaged, bilirubin may leak into the bloodstream, which can lead to jaundice, characterized by ...
  9. trents
    No, they don't. Normally, the first step in checking for celiac disease is to take a blood sample and have it checked for antibodies that are associated with celiac disease. There is still a lot of ignorance in the medical community as a whole concerning celiac disease. Simply put, it just isn't yet on the radar of many physicians. I would go to your...
  10. trents
    Michele2977, OP states in her original post that total IGA was not low.
  11. trents
    What kind of specialist do you speak of? I would think medical doctors inquiring about mental health in connection with celiac disease would be very rare. Most medical doctors have a hard time connecting the dots with regard physical medical disorders when it comes to celiac disease.
  12. trents
    You mention elevated bilirubin. One of the known health risks associated with celiac disease is hepatitis. About 18% of celiacs will have elevated liver enzymes. In fact, that is what led to my celiac diagnosis about 20 years ago. I had chronically elevated liver enzymes (ALT, AST) which was idiopathic. I had very minor GI symptoms and was almost a "silent...
  13. trents
    Lyns5201, welcome to the forum! I have not heard of proteinuria be connected with celiac disease but we are discovering new health issues connected with celiac disease all the time. Have you been diagnosed with celiac disease?
  14. trents
    Susan, I think you may have the rating system backwards. +1 and +2 foods would represent the weakest reactions. So the author is saying that after a period of time he was able to reintroduce those foods that did not give strong allergic reactions in the testing.
  15. trents
    In view of the growing intolerance and hostility in the world toward Christians, as a follower of Jesus I sometimes think about not being able to get gluten free food if I were jailed for my faith.
  16. trents
    Foul smelling and excessive flatus is a common symptom of celaic disease but not pneumatosis as far as I know. SIBO and H.Pylori are commonly associated with celiac disease so small bowel ulcers are probably more common in the celiac population than in the general population. As far as the polyp goes, small bowel cancer is more common in the celiac population...
  17. trents
    What's keeping you and your partner from going in for testing to find out if your suspicions of having celiac disease are correct or if there is something else going on? There are blood antibody tests that are very reliable for detecting celiac disease. But you would need to be eating regular amounts of gluten for about two months before testing to have them...
  18. trents
    Why can't you eat gluten free and work? Can't you take your own food from home?
  19. trents
    Welcome to the forum, Riley72! Many or most of the symptoms you describe are common in the celiac community. You mention you had a celiac panel done almost a year ago. What were the specific results? For the antibody panel to be valid you must be eating regular amounts of gluten daily for 6-8 weeks before the test and for the endoscopy/biopsy to be valid...
  20. trents
    The tTG-IGA at 29.5 is not borderline IMO. It is definitely positive and furthermore, the tTG-IGA is the centerpiece of celiac antibody testing. "Duodenal mucosa with focal mild villous blunting and patchy mildly increased intraepithelial lymphocytes." The reason they send out the biopsy for microscopic analysis is because the damage to the villi is...
  21. trents
    Gbear, welcome to the forum! Your experience is the same as innumerable other participants on this forum. Many doctors are very ignorant with regard to gluten related disorders and just don't know enough to tell their patients to continue eating regular amounts of gluten until testing is complete. You did not say whether beginning the gluten free...
  22. trents
    irish11, Celiac disease is the only cause for DH. Have you been tested for celiac disease?
  23. trents
    Celiacs sometimes react to oat protein and the dairy protein casein like they do gluten, especially until there is substantial healing of the small bowel villi. You might try eliminating these two things from your diet for a few weeks and see if there is improvement. It is common for celiacs to develop other, non-gluten, food intolerances because of...
  24. trents
    Are you still consuming oats and dairy?
  25. trents
    My wife gets her curry in capsule form. Must be an asian meal in a pill.
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