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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, TrailWalker! My, that's quite a tome! I have never heard that food sensitivities can be cured by herbs. That sounds "quackish" to me. Have you looked into histamine intolerance?
  2. trents
    Then wouldn't 20ppm or below be "safe" for some celiacs?
  3. trents
    PattyWayne, youj seem to contradict yourself here. Up to 20ppm is considered to be the standard for being able to advertise something gluten free but even that is too much gluten for some celiacs.
  4. trents
    Welcome, Richard! Yes, I agree with Cristiana. You need to have specific testing done for celiac disease. Celiac disease is not an allergy or an intolerance per se. It is an autoimmune disorder where inflammation in the small bowel lining is triggered by the ingestion of wheat. There are two kinds of testing for celiac disease. The first is a blood...
  5. trents
    "Naturally gluten free" does not necessarily equate to end product gluten free when you consider the possibility of cross contamination during transport, storage processing and packaging. This might particularly be an issue with grains and nuts (dry things) that are often handled on the same equipment used to harvest, transport and process gluten-containing...
  6. trents
    Pixy, the reason I was asking about the statin is that those drugs have an established connection with muscle weakness and wasting for some people.
  7. trents
    Yes. The symptoms are largely the same. And the antidote is the same.
  8. trents
    Sounds like your GERD is not really the silent type.
  9. trents
    Mister B, this skin reaction sounds like it could be dermatitis herpetiformis, one of the classic expressions of celiac disease.
  10. trents
    Thanks for the additional information. Now we have a clearer picture of what why you are struggling with weight loss. Have you ever been put on a PPI for the GERD? Has the GERD improved since you have been following the GERD no no food list? Or because it is the silent type, can you even tell without an endoscopy?
  11. trents
    Welcome to the fourm, carolynh! Do you have other food intolerances/allergies or medical conditions that either prevent you from eating high calorie foods or cause you to lose body mass? When you say, "too many forbidden foods," do you man besides those that contain gluten? Are you avoiding certain foods that exacerbate your reflux problem? And, would...
  12. trents
    Your statement is a contradiction. If you can't make up your mind about trying a gluten free diet then you really do no want to try it. What are you trying to say? And why are you considering this? Do you suspect gluten is causing you physical and medical problems? Have you been tested for celiac disease and found to have it?
  13. trents
    First of all, don't attempt to eliminate gluten from your diet until you get tested or you will likely invalidate the test. Many doctors don't know or don't think to tell their patients this. You should be eating at least 2 slices of wheat bread or the equivalent amount of gluten for 6-8 weeks before the serum antibody test and at least two weeks before the...
  14. trents
    Welcome to the forum, Pixy! Two questions: 1. What meds is your wife on? Is she on a statin med by any chance? 2. Is your wife taking any high potency vitamins and minerals. If not, she should be and of course they should be gluten free. I particularly hope she is on a high potency B-complex in addition to an adult multivitamin. The symptoms...
  15. trents
    A lot of it is perception. Is the glass half empty or half full? Yes, many food things are now off the celiac's plate but many things remain. I think for a lot of people, the social toll they perceive is more of their own framing than that of their family and friends. They imagine themselves as the fifth wheel at social gatherings and their presence as introducing...
  16. trents
    Thanks for the update and clarification, Scott.
  17. trents
    Scott, I think this article needs some formatting attention in the picture area and there appears to be a typo in the last sentence.
  18. trents
    The key sentence in the article is, "Two days later, the company revealed finished product testing had not been performed on the recalled Cheerios, according to the suit." In other words, this "gluten free" Cheerio product or the raw oatmeal stock they used for it passed testing before it was processed and packaged but sometimes would not afterward....
  19. trents
    First, it needs to be asked, were you already trying to eat gluten free when you had the test done? If so, that can cause negative results. Second, the TTG_IGA is considered to be the best serum antibody test for celiac disease. It is the most specific but not the most sensitive. So, generally, when that one is positive, even a weak positive, it means...
  20. trents
    Great and informative article, Scott. Thanks.
  21. trents
    Yes, yes. My bad. I knew better than that. 6-8 weeks of gluten challenge would apply to the serum antibody testing. Thanks for catching that, Scott.
  22. trents
    Other than barley and rye, the two other gluten containing grains that celiacs and people with NCGS must avoid, I am not aware of other grains, with the possible exception of oats for some celiacs, that "cause as much damage as gluten itself. Certainly, quinoa has always been considered a safe alternative to wheat, barley and rye for celiacs. Can you be more...
  23. trents
    You need to be daily eating an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks before the endoscopy/biopsy to ensure a valid result.
  24. trents
    Natalie, welcome to the forum! What is the reference range for your tTG-IGA? You gave us your lab score but it's hard to evaluate the significance of the number unless we know what the normal range is? The reference range would help us know if it your score represents a strong positive. And different labs use different reference ranges. Did your doctor...
  25. trents
    So you just wanted to vent. That's okay, too.
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