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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Before I forget, I hope your daughter has not been trying to eat gluten free since her blood tests were done. Doing so may have allowed healing of the small bowel villi and cloud the biopsy test results. The centerpiece of the blood antibody labs is the tTG-IGA. It is the most specific for celiac disease and is positive. The other antibody tests are...
  2. trents
    It is also possible that you have non-celiac gluten sensitivity which has many of the same symptoms as celiac but does not damage the villi of the small intestine, although a biopsy would be the only real way to distinguish the two. And the antidote is the same: total avoidance of gluten for life. Yep, your doctors totally botched that one and it is obvious...
  3. trents
    Here you go. This is just a screenshot of the product advertisement pictures from Amazon. It definitely does contain some derivatives of wheat and barely. If you have a question about something containing gluten, try "googling" it buy typing "Does ____________ contain gluten?" The product name would go in the blank. Googling has become a general term for...
  4. trents
    It is hard to accept that wheat, universally considered to be the staff of life, can be harmful to us. Everyone who has been diagnosed with celiac disease or non celiac gluten sensitivity has struggled with that. Believe me, you have a lot of company in that regard. And when your health issues have already forced you to eliminate a lot of non gluten containing...
  5. trents
    Noel, I believe I remember reading posts on this forum of others who reacted after eating Werther's products but I can't remember which ones. I think the original Werthers do contain gluten. My wife was giving them to me to wet the whistle in church when I got a coughing spell and then we read the ingredient label and realized they contained wheat.
  6. trents
    Appendicitis doesn't always hit suddenly and without warning. That is a common misconception. Many people have chronic appendicitis that comes and goes and eventually there is an acute crisis that can be life threatening if not addressed in time. Concerning dairy intolerance, it often is not in response to the lactose, which is the sugar component of...
  7. trents
    Many celiacs are intolerant of dairy. After significant healing of the small bowel lining has occurred then sometimes celiacs are able to resume dairy consumption without issue. It can take around two years for full healing of the bowel but significant improvement in symptoms often happens within weeks. Having said that, has anyone checked your brother...
  8. trents
    Welcome to the forum, EdmBkn! Three days is not long enough to tell anything. Is right sided abdominal pain the only symptom he was experiencing before his diagnosis? How much time elapsed between his diagnosis and his going gluten free? Are you sure he is truly eating gluten free? There are many temptations for a 13 year old celiac to cheat on the gluten...
  9. trents
    It's overwhelming at first, isn't it! Just think, the next trip you take you have that food list already made up. Be prepared for the skeptical reactions you will get from some family and friends who just don't understand and don't want to. There are always hold outs.
  10. trents
    Welcome to the forum, Jessica! The social impact of celiac disease is something every celiac finds difficult to cope with. But let me assure you, you will adjust and your family and friends will adjust over time and eventually it will become the new normal. Have you googled, "Celiac support groups in North Carolina"? I think there might even be a resource...
  11. trents
    It sounds like something that should be taken to a higher level in the company than just the local franchise. Ideally, you could procure a sample and send it to a lab for testing to possibly get some evidence that it is not gluten free. In the mean time, I would not eat that complimentary snack anymore.
  12. trents
    There would be two advantages in getting tested later on: 1. The first is psychological. An official diagnosis helps many people stay on track with their gluten free diet. If there is doubt in your mind about whether or not you have a problem with gluten then it is easier to rationalize not being consistent. 2. The second is sociological. It might...
  13. trents
    Welcome to the forum, Gaynor99! The real question is has the kitchen staff learned from this mistake and discontinued cooking the "gluten-free" snacks in the same fryer as foods containing wheat. Have you inquired if they have made this change?
  14. trents
    Welcome to the forum, Olivercito! The guidelines for pre testing gluten challenge are daily consumption of gluten in the equivalent amount of 2 slices of wheat bread for at least 6-8 weeks before serum antibody testing and at least two weeks before an endoscopy/biopsy of the small bowel. Even after one week of gluten free eating it is possible that your...
  15. trents
    Recent studies have shown that most people who claim to be eating gluten free are actually practicing lower gluten eating because they aren't aware of the myriad of places gluten is tucked away in processed foods or inadvertently introduced through cross contamination. The studies show this is especially true of those still dining out. Truly getting to the...
  16. trents
    So, it may depend on how sensitive to gluten you are. 20 ppm is enough to elicit a reaction for some celiacs.
  17. trents
    Were your serum antibody tests run after you started trying to eat gluten free? If so, that would likely explain the low positives. Testing needs to be done while consuming normal amounts of gluten.
  18. trents
    Welcome to the forum, Lauraclay! All of the symptoms you describe are very common to the celiac population. Some of what you describe we refer to as "brain fog." Not every celiac has all of the symptoms you describe but they are all common to the celiac community as a whole.
  19. trents
    You should get a follow-up biopsy at about the end of a year from starting the gluten free journey. I think this is the preferred method of followup as opposed to retesting serum antibodies. This would be for the purpose of checking healing progress and consistency in eating gluten free. Keep in mind that it typically takes two years of consistent gluten...
  20. trents
    Asian food typically has soy sauce and wheat is an ingredient in most soy sauces. We also know that autoimmune diseases tend to cluster. Celiacs are at a higher risk for Crohn's than people in the general population. It is also true that celiacs tend to develop intolerances to other, non-gluten foods that can mimic the celiac symptoms. Soy, dairy...
  21. trents
    Welcome to the forum, ollieotters! Have you been tested for and officially diagnosed with celiac disease? I'm not clear on whether you are eating gluten free because you have been diagnosed with celiac disease or just have been just trying out gluten free eating in order to address your GI distress. Some people have "refractory" celiac disease and don...
  22. trents
    Welcome to the forum, Ricky B! The immune systems of young children are not yet fully developed and will often respond differently to threats than the immune systems of adults. If you are medically unable to undergo an endoscopy/biopsy then your next step would be to begin the gluten free diet and see if your symptoms improve.
  23. trents
    My experience exactly after years of gluten free eating. Two to three hr. of emesis and severe abdominal cramping followed by several hours of diarrhea if I get a significant exposure to gluten now. No tolerance for it anymore.
  24. trents
    Have you checked to see if there are any celiac disease support forums in your area? If so, that might be one option for safe socialization. Also, I believe I read on this forum that some of the online matchmaking services have a filter for people with celiac disease.
  25. trents
    "The problem of course is that if I truly am celiac and have to go on to a diet containing gluten for six to eight weeks...Then that is likely to be a long and very uncomfortable time." We see this scenario play out in the experience of new forum members all the time. The medical community at large is still pretty ignorant about celiac disease...
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