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trents

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Everything posted by trents

  1. trents
    That's why we have the term "silent celiac". And it might not be a stretch to say that most of us have fit into that category. But when you see those early symptoms in friends or family and try to encourage them to get tested, you usually get blown off.
  2. trents
    Welcome to the forum, @Celiac50! Vitamin A toxicity is not to be taken lightly. If you suspect that is the case, I would certainly discontinue the beta-carotene supplementation. Vitamin A from natural sources is unlikely to cause toxicity. I would also get labs done to check your levels. May we ask your age? It's been over a year since you began...
  3. trents
    @chrisinpa, this is done on children in Italy as part of their screening as they entering the school system.
  4. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
  5. trents
    That's a question I have as well. Who are the appropriate people in high places to lobby. I'm thinking RFK, Jr. might be willing to get on board with this. If the celiac community, not just individuals gut recognized organizational leaders, would come together and present a unified effort with this we might see results.
  6. trents
    So, as I understand this, there is uncertainty as to how much the gluten protein has to be degraded before it is safe and doesn't cause a reaction. There is also uncertainty as to how consistently hydrolysis processes degrade the gluten protein and there may be considerable variability from one processing setting to another. I suspect this also is a problem...
  7. trents
    Yes, there are different kinds of anemia. Ferritin is an iron storage protein so you can have plenty of iron floating around in your blood but not enough in storage in some cases. Also, the shape and size of red blood cells figures into all of this somehow. If they are the wrong shape and size they don't function properly for binding with oxygen like they...
  8. trents
    Causes of High MCHC: A high MCHC can also be due to anemia, depending on the type of anemia you have. Hemolytic anemia may lead to an MCHC measurement above the normal range.1 Hemolytic anemia develops when red blood cells break down faster than they can be replaced.8 This type of anemia can happen for several reasons, including: Autoimmune conditions ...
  9. trents
  10. trents
    Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
  11. trents
    This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
  12. trents
    Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
  13. trents
    Welcome to the forum, @Celiacpartner! Does this happen with all nuts and all fish or just certain kinds? And are we talking about products that are advertised as gluten-free eaten at home or things served in a restaurant?
  14. trents
    My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat...
  15. trents
    Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes.
  16. trents
    Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease...
  17. trents
    IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. ...
  18. trents
    So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I needed some clarification from you...
  19. trents
    So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
  20. trents
    @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
  21. trents
    Welcome to the forum, @Soosieque! Immunoglubulin A, Qn, Serum (aka, "total IGA") is a test run to check for IGA deficiency. If you are IGA deficient, the other IGA tests (the ones ordered to specifically check for celiac disease) will give artificially low scores and cannot be trusted. You were not IGA deficient. The two tests specifically run to check...
  22. trents
    Welcome to the forum, @barb simkin! How does it affect you when you eat chocolate and drink alcohol? I'm asking because these are common migraine triggers and migraines are a common in the celiac population.
  23. trents
    It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever...
  24. trents
    Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there...
  25. trents
    Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products...
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