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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    All that is exactly why you should have an endoscopy with a biopsy of the small bowel lining done. It's a very simple procedure and in the US they put you under for it so there is no discomfort. You don't even have to do a cleanout like you do for a colonoscopy. It might also be wise to wait a few months and get the tTG-IGA checked again if nothing...
  2. trents
    There are plenty of people with celiac disease walking around who are largely asymptomatic. I was one of them. We call them "silent celiacs" They don't seem to have GI distress or maybe it's so minor and infrequent it's not really noticeable. They can be in that state for years until the damage to the villi progresses to a critical point or they begin to...
  3. trents
    Welcome to the forum, @Shining My Light! It's good to be able to engage a secret "friend". I know you don't want to hear this, but with a positive tTG-IGA, a positive tTG-IGG and off and on GI distress, your next logical step would be to get an endoscopy done with a biopsy of the small bowel lining (duodenum and duodenum bulb) to check for villous atrophy...
  4. trents
    Multivitamins are generally not potent enough to effective address significant deficiencies.
  5. trents
    Yes, being off gluten for 3 months would likely yield negative results. To get accurate testing redone you would need to restart gluten consumption for several weeks (the "gluten challenge") to the tune of at least 10g of gluten daily (about the amount found in 4-6 slices of wheat bread).
  6. trents
    That is one of the tests covered in the article I linked you above.
  7. trents
    Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road...
  8. trents
    Doctors aren't always right. I have been participating on this forum for many years and you wouldn't believe the cockamamie things doctors say about celiac disease to our member base. It's often based on very outdated information and sometimes just plain ignorance. Many doctors neglect to tell their patients not to begin a gltuen free diet before the testing...
  9. trents
    When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize.
  10. trents
    I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease:
  11. trents
    Welcome to the forum, @ehb! This might be helpful: https://www.verywellhealth.com/villous-atrophy-562583 and this: https://www.mayoclinicproceedings.org/article/S0025-6196(17)30892-3/fulltext
  12. trents
    Welcome to the forum, @Gary Libby! This might be helpful: https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/ Also, just "google" for the gluten free version of something you like and want to try. For instance, google "gluten free recipe for meatloaf" or "gluten free recipe for tuna casserole". There are also gluten free...
  13. trents
    @Kjmanchester, going on a gluten free diet before the GP has had a chance to run the blood tests for celiac disease will likely invalidate the results of the tests. Hair sample tests for gluten disorders are not recognized as reliable diagnostic methods. Can you supply a link to the "pin prick" test you got from Amazon? The fact that your symptoms...
  14. trents
    As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
  15. trents
    Welcome to the forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in...
  16. trents
  17. trents
    Welcome to the forum @Mushroom73! About 8% of celiacs cross react to the oat protein avenin. That means 92% do not. A likely higher percentage probably cross react to CMP (Cow's Milk Protein) https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/. Corn, eggs and soy are also common cross reactors. It would be impossible to eliminate all foods that some proportion...
  18. trents
    @alltheceliacquestions, that may only be true for the average celiac but for the many in the super sensitive subset of our community, 20ppm is not good enough. 20ppm is the FDA threshold for advertising food products as "gluten free". There is another, stricter standard known as "Certified Gluten Free" (testing done by an organization known as GFCO) that...
  19. trents
    Or, you could be experiencing the development of additional food sensitivities/cross-reactivity and eating away from home at the lodge temporarily removed those foods from your diet.
  20. trents
    Welcome to the forum, @MagsM! A "total IGA" test should have been ordered along with the tTG-IGA in order to check for IGA deficiency. Certainly, an endoscopy with biopsy would be the most direct route to investigate the possibility of celiac disease. But if the physician is unwilling to provide a GI referral for that or if that means an endoscopy is...
  21. trents
    @AllyJR, older studies placed the likelihood of the first degree relatives of those with celiac disease also developing celiac disease at about 10%. Two more recent and large sample studies place it at almost 50%. There are likely multiple epigenetic factors involved in the development of active celiac disease, one of which may be the consumption of modern...
  22. trents
    Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation...
  23. trents
    Welcome to the forum, @SB04! Let's cut to the chase. Did they run a tTG-IGA and a total IGA? Total IGA goes by many names but it checks for IGA deficiency. If you are IGA deficient, IGA test scores will be artificially low and it can result in false negatives. The tTG-IGA is the centerpiece of celiac disease antibody testing. Dermatitis herpetiformis...
  24. trents
    @ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
  25. trents
    Welcome to the forum, @Olenaideole! There are phone apps that read product bar codes to check for gluten ingredients but they depend on user input maintained data bases so they are generally incomplete. There have also been pocket gluten detection meter gadgets available in the past but I'm not sure if any are still on the market. The main company...
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