Fiddle-Faddle
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Latest Celiac Disease News & Research:
Everything posted by Fiddle-Faddle
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ARCHIVED Zelnorm (ibs Drug) Pulled Off The Market For Deaths
Fiddle-Faddle posted a topic in Publications & Publicity
Zelnorm, made by Novartis, was pulled off the market on March 30, 2007: Open Original Shared Link It was prescribed to people diagnosed with IBS. I can't help wondering how many of those people to whom it was prescribed actually have celiac, and their doctors never bothered to look for it but just handed them a prescription. I noticed in my local... -
ARCHIVED Sleep Issues & Wheat Intolerance In Infant
Fiddle-Faddle replied to bzmomof3's topic in Parents, Friends and Loved Ones of Celiacs
The one thing I do miss from the gluten days is malt-flavored Ovaltine. I used to give it to me kids, too, and tell them that it was chocolate milk (because it has no caffeine, so it didn't keep them up). And they loved it. Sigh....We need someone to invent a Rice Malt Ovaltine!!! -
ARCHIVED Chili's In Lancaster, Pa
Fiddle-Faddle replied to Guhlia's topic in Gluten-Free Restaurants
More PA celiacs! I'm in Western PA, in the Pittsburgh area, but never thought to try Chili's. I didn't even know they had a gluten-free menu. Thanks so much for the heads-up! -
I'm a violinist married to a chemistry professor. We have an 11-year-old, an 8-year-old, and a 6-year-old. Also 2 cats, one of whom is diabetic.
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I read this differently. I don't think it's meant to be hard-hearted. On the contrary, it's stating as an unfortunate fact the kind of thing many of us here had to go through. It's a comment on the failure of our medical system. So many of us here ended up diagnosing ourselves because the doctors in charge did not even consider celiac as a possibility...
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ARCHIVED Found Out Why Alex Is Still Sick!
Fiddle-Faddle replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
Okay, I am not at all knowledgeable about diabetes, so forgive me if this is stupid, but would a spoonful of sugar work? -
ARCHIVED Why Didn't This Work?
Fiddle-Faddle replied to cycler's topic in Gluten-Free Recipes & Cooking Tips
Aha--I did a quick internet search and found this on allrecipes.com: QUICK PINEAPPLE CAKE INGREDIENTS * 2 cups all-purpose flour * 2 cups white sugar * 2 eggs * 2 teaspoons baking soda * 1 teaspoon vanilla extract * 1 (20 ounce) can crushed pineapple with juice * * 1 (8 ounce) package cream cheese ... -
ARCHIVED Why Didn't This Work?
Fiddle-Faddle replied to cycler's topic in Gluten-Free Recipes & Cooking Tips
I think there's something wrong with the directions. Notice it said, "bake 40 minutes or until done to the touch." Then it said something about sprinkling with sugar. Then it said , "Bake at 350 for 40 minutes." Bake twice for 40 minutes? That just doesn't make sense. And I really think it needs both oil and xanthan gum to work. Do we know who... -
ARCHIVED Trouble Breastfeeding
Fiddle-Faddle replied to natalie's topic in Related Issues & Disorders
How wonderful that we have a lactation consultant here!!!!! Congratulations on your upcoming certification! I would only offer one correction: the hind milk will come in on the first or second day if you are nursing often enough, which is NOT every 2-3 hours. For me and most of the breastfeeding moms I know, it was more like every half hour, one side... -
ARCHIVED Medical Viewpoint Comparison
Fiddle-Faddle replied to mftnchn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Fantastic! Maybe Scott could add this chart to www.celiac.com???? (Whoops, sorry, computer freak-out) -
ARCHIVED Medical Viewpoint Comparison
Fiddle-Faddle replied to mftnchn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Fantastic! Maybe Scott could add this chart to www.celiac.com???? -
ARCHIVED Why Didn't This Work?
Fiddle-Faddle replied to cycler's topic in Gluten-Free Recipes & Cooking Tips
Most cake recipes that I've seen require butter or oil. Could that have been left out by mistake? -
ARCHIVED Why Didn't This Work?
Fiddle-Faddle replied to cycler's topic in Gluten-Free Recipes & Cooking Tips
Xanthan gum helps enormously, even in recipes that don't call for yeast, hence its use in cakes, cookies, pancakes, biscuits, quickbreads, etc. I'm puzzled by the directions for 3 teaspoons of baking soda. First of all, I've never seen such a large amount called for in a recipe. Secondly, 3 teaspoons = 1 tablespoon. Why would they bother with 3 teaspoons... -
ARCHIVED Has Anyone Tried Any Kind Of Chinese Medicine To Help With Dh And/or Celiac Disease?
Fiddle-Faddle replied to Ellie2's topic in Doctors
I've never tried it, but I do think very highly of Chinese medicine, as long as you have a doctor who understands that whatever he gives you must not contain gluten! I assume that you would want something that can help your gut heal and possibly minimize the effects of cc, right? You aren't looking for something to "cure" celiac so that you can eat wheat... -
ARCHIVED Status Report On Jerry
Fiddle-Faddle replied to JerryK's topic in Coping with Celiac Disease
Would exercise and fresh air help? Hope you are feeling wonderful very soon! -
ARCHIVED I Was Diagnosed With Parkinsons 9mth Ago At 33yrs Old
Fiddle-Faddle replied to iagreenthumb's topic in Related Issues & Disorders
I've been wondering if there's a connection ever since I read that Michael J. Fox (the most famous Parkinson's patient) spent years and years drinking massive amounts of beer. Hmmmm.... I bet you're on to something! I also agree that Lyme ought to be ruled out. Welcome to the board and please keep us posted! -
ARCHIVED Anyone Have Trouble With Gluten Free Pantry Brownies?
Fiddle-Faddle replied to Ann1231's topic in Gluten-Free Foods, Products, Shopping & Medications
Could it be gluten crumbs in your mixer? (Not in the blades, but up above where they attach--sometimes batter splashes up there and then dries, and then crumbles off when you make something else.) Besides for another food intolerance, what I was remembering was that until several months went by, all the gluten-free bread substitutes gave me bigger tummy... -
ARCHIVED Just Diagnosed This Morning
Fiddle-Faddle replied to LLB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oooh, how annoying of that doctor to say that!! You are quite right, because IBS is not a disease; it's a syndrome, which means it's a collection of symptoms. And those symptoms are identical to those of celiac. Usually, the doctor hasn't bothered to rule out celiac because they've been taught in medical school that it's a one in a million disease... -
Good advice above, and I would add that you MUST get outside as much as possible during daylight hours. Exposure to sunlight (or cloudlight or rainlight, whatever the weather!) is what will help your body reset its internal clock. Naps during the day for the first couple of days are fine (heck, downright necessary), but be very careful not to nap more...
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ARCHIVED Sleep Issues & Wheat Intolerance In Infant
Fiddle-Faddle replied to bzmomof3's topic in Parents, Friends and Loved Ones of Celiacs
My older two WERE given vaccines--3 of them-- the day they were born. It was standard practice in the hospital, and I only knew about it because I insisted on not letting them take the baby back to the nursery area, so they had to do it in front of me. (Well, they did try the standard, "We'll take the baby, you get some rest," and I got no rest because... -
ARCHIVED Sleep Issues & Wheat Intolerance In Infant
Fiddle-Faddle replied to bzmomof3's topic in Parents, Friends and Loved Ones of Celiacs
Heidi and Brenda, do you have slings? Or Over-the-Shoulder-Baby-Holders? Those totally saved us. We put the baby on in the morning, and only took him out for play and diaper changes! As long as he was in the sling, he was totally happy! When he was in the car seat or stroller, he screamed. Everyone told us we'd spoil him, and that we should let him... -
ARCHIVED Sleep Issues & Wheat Intolerance In Infant
Fiddle-Faddle replied to bzmomof3's topic in Parents, Friends and Loved Ones of Celiacs
For the record, I am NOT anti-vaccine. However (there's always a "but!"): My son's eczema started with a HORRENDOUS rash within 24 hours of his vaccines, and the dermatologist took one look and said, "this is definitely a drug reaction, what did you give him?" (Nothing but the vaccine, and he was 100% breastfed! In fact, I didn't introduce solids... -
ARCHIVED New To The Board And Oh, So Confused
Fiddle-Faddle replied to bnsnewman's topic in Parents, Friends and Loved Ones of Celiacs
Hmm. Maybe I need a new bread machine? I have a Toastmaster, and both times that I tried to make gluten-free bread in it, it overflowed during the rising cycle, and I ended up with a half-burnt and half uncooked MESS. I don't mind baking in the oven during the winter, but would LOVE to have a bread machine for the summer so I don't heat up the house... -
ARCHIVED Sleep Issues & Wheat Intolerance In Infant
Fiddle-Faddle replied to bzmomof3's topic in Parents, Friends and Loved Ones of Celiacs
My one child who had what the doctor called, "major sleep issues" had no sleep problems at all as long as he got to sleep on top of somebody. It didn't matter if he had been asleep 10 minutes, or 20, or 4 hours--as soon as we laid him down, he would wake up and scream his head off. Neither of my other 2 ever did anything remotely like that! He did have... -
ARCHIVED New To The Gluten Free World
Fiddle-Faddle replied to T-Bird's topic in Parents, Friends and Loved Ones of Celiacs
WHAT?? The soft-chews are gluteny? Oh, NO!! I could have sworn I checked those. What is the gluteny ingredient? I must have missed something.