celiac3270

The lists aren't correct--you always need to call, unless the company has a labeling policy, such as Kraft. Clan Thompson books are nice because they include date of verification and PHONE NUMBERS in their pocket-sized food and medication booklets. These are nice because some products don't have the number on the package.

Hmmm...I think I and a lot of other people here would...disagree with the logic of this. First off, if he has you go gluten-free for one month, there's a good chance that you might not see any change to begin with. Also, if you test after being gluten-free a month, you may or may not test positive still. Being gluten-free would make you more likely to test negative, but you might still be positive since it hasn't been long enough. Additionally, going back to gluten after so short a time would not be advantageous--it sounds as if he's trying to put you on a miniature version of a gluten challenge.

Glad that you're feeling better, though.

Also, unless you have some allergy, you're probably recommended to avoid chocolate because of the high amount of dairy, which can be harsh for celiacs when they initially start the diet. If you avoid it for a little while, you will be able to tolerate it better later. When you can eat candy (although some of thse you can eat now, since they don't have chocolate in them), Hershey's will clearly list gluten on their labels...gluten-free candies include: Skittles, M&Ms (EXCEPT FOR the blue pack--the Crispy kind), Starburst, Snickers, Milky Way Midnight (NOT regular), Butterfinger, 3 Musketeers, a Hershey's chocolate bar, Tootsie Pops, Tootsie Rolls, Jolly Ranchers, Charms Blow Pops, etc.

I am still doing wel -- 25 days w/o getting sick!!!!

I am not extremely careful when it comes to shampoo--I wouldn't use Suave if I had DH, but I think I'd feel comfortable using their shampoo if it didn't have wheat, rye, HVP, etc. on the label. The reason I wouldn't use it if I had DH is their statement about not testing for gluten.

Yes--and some books have dining cards in different languages--also helpful.

Yea--I've heard complaints about Hunts...the ketchup, but maybe they have contamination issues that cause problems with all of their products.

They should...otherwise they wouldn't be living up to their pledge about listing gluten on the label.

Here's a response from Suave:

Hi celiac3270,

Thanks for writing!

We do not specifically test our products for the presence of gluten, a

sticky protein found in some grains such as wheat.  Gluten may be present

in products that contain derivatives of wheat, oat, rye, and barley. In

labeling our products, our company follows the guidelines established by

the International Nomenclature for Cosmetics Ingredients (INCI)process.

Therefore, if we use an ingredient derived from a grain such as wheat,

oat, rye and / or barley, those names will appear on the label.

Example

One common example is "Hydrolyzed Wheat Protein" If you see this name on

the label, the material was derived from wheat, so the product may contain

gluten.

We recommend that you consult with your physician as to whether your

exposure to grain derivatives from the use of personal care products will

cause the symptoms of Celiac-Sprue Disease.

We hope this information is helpful,

Your friends at Suave

Do you want to know if it's gluten-free in the US or Canada? Jello is gluten-free in the US and all gluten must be listed. If there are flavors that contain gluten, Kraft would write them like this: natural flavors (wheat). So in the US, just read the label.

Yes--straying from bars--the great thing about FritoLays is that he can bring in one of those snack-sized bags and no one will think twice about it or make a comment like "your food looks weird"--since everybody eats those chips, anyway. Ruffles, Lays Classic, Lays Stax, and....one other kind that I can't remember now are made on dedicated lines. If you're worried about contamination, anyway, you can call other chip companies, many of which will be gluten-free: I think Utz are? And the first bar Jessica mentioned was the one I was referring to . Just can't remember those names .

I was recently diagnosed w/ celiac disease, but I'm the only one in my immediate family w/ it (that we know of). But recently I've been wondering if my older sister might have it..some of the things shes experiencing are: frequent headaches, waking up in the middle of the night, sometimes pale, sometimes stomach problems, but the main thing is the headaches. i was just wondering if this was any indication of whether she may or may not have celiac disease. Are headaches normally frequent w/ celiac disease patients? I never really had bad ones...Please let me know what y'all think. Thanks..

Sleep problems, paleness, stomach problems, headaches...sounds like it could be celiac. Then again, she, along with everyone else in your family, should get tested simply because another in the family has celiac. It's possible that she is celiac or one of your parents is an asymptomatic celiac; besides, it affects 1% of the population--and with those figures, the odds aren't terrible, anyway.

I like Kinnickinick and Ener-G

He's terrific...I very highly recommend him to anyone with celiac children in New York. Diligent, persistent, spends time with you and doesn't make you feel like you're being rushed the way some doctors do....

This is one response from relatively recently--not sure exactly how recently:

Thank you for contacting The Coca-Cola Company.

We are able to confirm that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola C2, Diet Coke, Diet Coke with Lemon, Diet Coke with Lime, caffeine free Diet Coke, Sprite, Sprite ReMix Berryclear, Diet Sprite Zero, vanilla Coke, diet vanilla Coke, cherry Coke, Fresca, and our 100% juice products (without added ingredients) are gluten free.

Additionally, we can tell you that all of our other products meet Codex's definition of gluten-free, which is less than 200 ppm (0.02%) gluten. Codex has examined the data and determined that less than 200 ppm gluten is below the level in which people with celiac disease would experience adverse reactions. However, at this time the U.S. Food and Drug Administration does not have a regulatory definition of gluten-free.

We can assure you that the exact amount of gluten in these products is very low - perhaps even zero. Some minor ingredients in these products are manufactured from plants that gluten-sensitive people could react to, so we are unable to state categorically that they are totally gluten-free even though they may have undetectable levels of gluten in them. The Codex guideline provides a very low threshold for gluten content and exposures below this level are not expected to result in damage to the majority of gluten-sensitive individuals. However, extremely gluten-sensitive individuals should discuss consumption of these products with their health care provider.

We hope that this information is helpful. Should you have additional questions or comments, please visit our website again.

Gisele Industry and Consumer Affairs The Coca-Cola Company

They seem to say: the products listed are definitely gluten-free. Then they mention that ALL of their products meet the Codex standard, but some aren't gluten-free. The brandnames they list are gluten-free...the rest you can use, as they do meet the CODEX standard, but they cannot be guaranteed to be 100% gluten-free.

For those who are wary of Coca-Cola, Pepsi, Co. claims all softdrinks they make are gluten-free.

I like Genisoy bars the most, but there are some Envirokids bars that many others recommend. With Genisoy, though, be careful, because there are only two gluten-free flavors: a chunky southern style PB one and then another PB one w/ honey --names similar to that. I like the first one the most. If you e-mail Atkins, they'll send you a gluten-free list, which has many of their bars, but I don't like them as much, in addition to the fact that they used to call one meal bar gluten-free (which had barley malt in it). I don't trust them with anything anymore.

Then they're gluten-free. Hersheys (a company, which Reese's is a part of) has a policy like Kraft's --if there's any gluten in the product, it will show up on the label. This means that if there were wheat, barley, etc. in modified food starch or flavorings, it would be listed like this: modified food starch (wheat).

I did a quick search on google for gluten seizures and this is what it came up with:

Open Original Shared Link

Open Original Shared Link

Yes--it's not bad at all. I was quite scared before my first one a little over a year ago, but by the second, I knew what a breeze it was--don't let the endoscopy scare you

Of course--the positive is that as a division of Hershey's, Reese's won't hide gluten...

I agree--my non-celiac brother wouldn't eat vegetables either--then he found ketchup . For years he dipped vegetables and meat in it, and even grew to like noodles with ketchup. However gross it seems to us, it works, and it won't hurt to add a little extra ketchup to ones diet.

Yes--I've heard the same thing about Trader Joe not being reliably gluten-free. They used to claim that some product was gluten-free and someone called them about it since it contained "barley" on the label. They then realized the mistake, but it tells you something if they claim something is gluten-free and write barley on the label. I've had a similar experience with Atkins--almost ate a supposedly gluten-free cookies and cream bar, marveling that it had such a name and was still gluten-free. Luckily, I read the label even after seeing it on their list. Of course, it had "barley malt" in it. I now refuse to eat anything by Atkins--they obviously don't understand celiac.

Clan Thompson also makes product booklets -- for foods, prescription drugs, over-the-counter medications, etc. There are confirmation dates, whether the product is gluten-free or not, vegetarian or not, etc. and also the company's phone number, so you can call them to make sure it's still gluten-free. They're small enough to fit in a pocket, paperback, light-weight....

celiac3270,

How awful for you! Is it something that is rare? From the post it sounds like you just had this surgery done and you are 14 years old! Are you having to eat gluten-free because of this but not exactly celiac? I am so happy for you that it is all behind you now and you can concentrate on being healthy!

Blessings to you,

Del

Thank you . It's.....not terribly common, but not rare either. They can't explain it, but it usually isn't too big a deal, since it's often found in infancy (though not in my case). Nope...this doesn't require a celiac diet--or any special diet--but I have Celiac Disease, as well.

Sorry...too many posts on NYC to post this under all of them, so I'll just start a new thread. The Gluten Free Awareness Program added 2-3 restaurants for New York City:

Open Original Shared Link

Open Original Shared Link

And there's another without a website. Here is the entire list for NYC (Peter's Gourmet Diner and Restaurant, or something):

Open Original Shared Link

BUMP

(Gabel wanted to reach more people in their 20s...)

EDIT: oops, sorry...didn't realize it would already be at the front from a recent post.

The ads don't cover the posting area for me, but when I have the window in a normal mode, all the text in the posts are crunched together. Therefore, I've been maximizing the window so I can see everything better--the way I used to . It was fine with ads on the left, since those just continue down the column that's already taken up with links to sections on the site. It's the new ads on the right from google that crunch it in. No problems like yours...but just the width of the posts is much smaller.....