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2kids4me

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Everything posted by 2kids4me

  1. As long as you credit the source - the authour/magazine/internet site - you are fine. There are some sites that block the "copy" feature of your computer - that is how they protect it. It is always helpful to include the date of the publication or title of the book so that anyone reading it can find the original article if they want to read it all. Usually...
  2. I agree, many of the systemic autoimmune conditions are known as "great imitators" in that they all have various vague symptoms - celiac with neurologic signs can mimic MS, Sjogrens and Systemic lupus are similar with their symptoms and can occur togther - making it a diagnostic challenge, Lyme disease is often missed and, yup, lucky people can be undiagnosed...
  3. Going around asking other people for reassurance about who you are and how you come across is usually not productive. You know yourself what you talk about with people and if you provide an ear for them. She did respond to you and you have decided to ignore the olive branch - her response was not what you wanted to hear (I assume you were looking for her...
  4. I think a number of foods can cause adverse reactions like you describe. Years ago, I remember watching show about food allergies and children/behavior. Once I saw the segement, I realized how little I knew about these things. They had a boy (about 7 or 8yrs old), playing quietly in a room , sharing toys with an adult, smiling...then they fed him peas ...
  5. uh, I hope she is kidding about the tapeworm, to get tapeworms she would have to eat a mouse, or bird....(they require a secondary host). Yes, she may need more time for her intestine to heal, but if you have concerns, please contact her doctor and mention it. What kinds of food do you feed before bed? Protein will help slow digestion and satisfy hunger...
  6. yes, she sounds like the type of "friend" that requires undivided attention, likes to talk about her lfie ...and even though your health problems are ongoing and change and you need ot tlka about the effects that ahs on your life...this friend sounds like - or is ocming acorss like - yeah, yeah, I heard all this beore but you know what - I have this fantastic...
  7. I'm thinking along the same lines as Nancy. She is reaching out to you, it sounds as if you both needed something completely opposite during your last get together. She was excited about her new relationship, wanted to chat and be happy. You were needing a shoulder , a soft place to land, to talk about your fears... So it sounds like you both feel the same...
  8. The elixer is gluten free, the tablets are not Sandy
  9. Just wanting to add that I agree with Ursula. I have issues with doctors or anyone else that dont bat an eye at vegetarian diets, vegan diets, the atkins diet, low carb...anything like that. But a gulten diet , OMG what are you doing.... crimeny...its a healthy diet that includes all sorts of healthy choices and doctors get ticked off???????? What is going...
  10. You've come to the right place, there have been a few topics about scout camps. I will inlcude my post from a thread , and a link to another thread, on this site from last year: My son, Matt is celiac and diabetic, attended cubs for 3 yrs and is now in scouts. As others have said - talk to the leader. I was camp cook for the cub camps and we prepared lots...
  11. Maybe our mothers have coffee together without us knowing..... I mentioned this on the other thread - but ..my mom told me when Kathryn was young -that she just needed Kathryn for a week and she'd have her walking! I carried her too much.. at the time Kathryn was 2yr, had central hypotonia and jelly for legs. umm, my son is twelve, does awesome...
  12. Thanks Barb I feel like I could work for a specialist with all I have had to learn about... Physical, speech and occuapational therapy Aspergers Hashimotos thyroid failure in toddler and managing that through growth spurts Kawasaki disease - getting a young child to stay still during a 1/2 hour cardiac echo and repeat that every 6 weeks. Celiac...
  13. Is there anyone else here that has a child with Systemic Lupus and celiac? I guess what's driving me most crazy, is that this is about my child not about me. I could handle it better if it was me... well, maybe I would...who knows.....it is so hard some days , managing multiple illnesses.. so for a car trip - lets see, make sure to plan it so the child...
  14. HI everyone, I am seriously driving myself nutty waiting for Kathryn's bloodwork. Any words of wisdom? Some background - Kathryn has multiple medical issues, she's been biopsied, scanned, ultrasounded...operated on (appendectomy June/06)... Post appendectomy - high levels of urobilinogen in urine Dec/06 - protein and bilirubin noted in urine Liver...
  15. I can relate to that!! I have had diabetes the entire time we have been married - 17 years - EVERY time I have a severe low blood sugar and am needing dextrose - ( I am sweating, hands shaking)..my dh decides that is the time to quiz me How much do you want? how come you're low?, isnt this an unusual time to be low? When did you last eat? Did you miss a snack...
  16. I think you have to read the whole article for it to make sense (I only copied part of it), my interpretation is that some people do see colors because their brain is wired differently and they are picking up clues from people that are fed through different pathways. Their brain is wired differently and has learned to identify colors with emotions.. think...
  17. It is a less common presentation...my own appendix was flipped up and sitting under a lobe of the liver and ruptured - my brother in-law's was gangrenous and twisted in a loop of bowel. Once it becomes inflammed and causes pain which also affects bowel function and this can cause the bowel to contract irregulary and pull the appendix into a loop of bowel...
  18. Found it! Hope it makes you feel better that enough people have had the same experience that a University studied it, plus it has a name! Makes it easier to search for info.
  19. I have heard of that before - where emotions are perceived as colors - I will see if I can find a resource for you. It has a physiological component related to body heat and phermones.( I think) Some kids in the autistic spectrum can see the spectrum of light under flourescent lights or in bright sunlight. he's not crazy - but very perceptive!! The...
  20. Appendicitis is common... I am not celiac and had mine out at age 6, my brother in law - not celiac has his out at age 30, another brother in law had his out at age 28..my daughter who is celiac had hers out last June. Surgeon and GI doc said the incidence of appendicitis is not related to celiac or diabetes or hypothyroidism. It happens commonly. sandy
  21. I agree, you should be checked fo something else underlying your symptoms - have they screened you for Lupus? We had similar issues with Kathryn, go gluten free, she feels great for while, then eliminate lactose - improved again..then the same symtpoms return in cycles and after discussion with pediatrician- they are investigating Lupus... after they ruled...
  22. The teachers that seemed to recognize when Kathryn was truly struggling or having an off day (because someone moved her boots in the boot room)... were either parents themselves or were williing to think outside the box - not being rigid in terms of expectations. The mad minutes - yup, almost drove me mad...as soon as I found out .. I went in and said...
  23. Dessa, That is devastating, I am so sorry for your loss. No it is not irrational to be mad at the disease - in fact it makes complete sense to me! Nothing much ever makes sense at times like this. {{{{{{{{{{HUGS}}}}}}}}}} sandy
  24. This is excellent! Open Original Shared Link click on the the box, see video of animal school. Kathryn is the bee! It's wonderful powerpoint comparing animals ot kids...but in an unusual way. The animals decide to open a school, they have four subjects - flying, swimming, running and climbing. It starts out with the duck who did great at swimming but...
  25. ahhh, maybe right now, only family listens but once he reaches his goal, people will pay to hear him discuss these things and he will be sought after as an expert.... You should read Temple Grandins book, Thinking in Pictures, she devotes much time discussing school. She had a fascination/obsession with doors and she was great with animals. Many teachers...
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