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Latest Celiac Disease News & Research:
Everything posted by 2kids4me
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ARCHIVED Results - Finally On Dd
2kids4me posted a topic in Parents, Friends and Loved Ones of Celiacs
Ok, for those that don't know me, Kathryn has had rough year with being sick off and on, finding bilirubin and urobilinogen in her urine. Blood work, referrals and waiting for the referrals and then "pending lab results". Pediatrician going away in midst (on leave) of this.. We FINALLY got results from her ENA profile and that was NEGATIVE so she does... -
ARCHIVED It's Official... The Gluten Is What Was Killing The Pets
2kids4me replied to jkmunchkin's topic in Gluten-Free Foods, Products, Shopping & Medications
NoGluGirl Please dont allow your dog to consume Pace Picante salsa, it has onions and onions are toxic to dogs. He may love it, but it can make him sick Sandy Animal Health Tech -
ARCHIVED It's Official... The Gluten Is What Was Killing The Pets
2kids4me replied to jkmunchkin's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree, animal abuse seems to overshadow child abuse....I have seen people gather in the hundreds outside court for animal abuse...but I never saw more than a blip on the news about a 5 yr old girl raped by her stepfather and needed reconstructive surgery to sew up the damage done. I work in vet medicine and it IS awful when pets are abused, but it is... -
In reply to those concerned about why testing isnt performed for everything. First of all in order to test for somethig you have to know what you are testing for....there are thousands of chemicals in this world that can contamiante food, either in growing it, transporting it or preparing it. To provide an example to which we can all relate: If you...
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ARCHIVED Aspergers Support Thread
2kids4me replied to 2kids4me's topic in Introduce Yourself / Share Stuff
I think the movie affects so many with its portryal of the autistic spectrum because many of the lead characters have relatives with autism and wanted to stay away from sterotypical images of past movies (the extremes of autism like kanner autism or else the "rain man" type). The employer who hired Donald is portrayed by an actor who has a daughter with autism... -
ARCHIVED Aspergers Support Thread
2kids4me replied to 2kids4me's topic in Introduce Yourself / Share Stuff
Creative soul - I am so glad you watched the movie...the emotional turmoil you felt is so understandable. Kathryn was glued to the TV and kept bursting out with comments about recognizing herself. I had tears in my eyes, simply because it brought greater depth to my understanding of her world....the moment where I had to pause it and take a break was the... -
i am pro-dirt too My kids do wash their hands with regular soap and I will wipe down the phone...but I dont go overboard. We are in the middle of cattle country and farmers get cow poop on them all the time , hubby does a calving and gets the poop on his face (direct hit sometimes. What I have noticed is that none of these guys gets e-coli and all...
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the only thing we eat at Wendy's (we rarely get there)...is chili or meat patty or baked potatoe... I've seen the fryer and at any Wendy's I have been to, none had dedicated fryers. Wendy's is also bad for taking the meat off the bun and putting it on a platter..last time it happened, the "chick" in the back" rolled her eyes when I asked her to get patty...
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ARCHIVED My Doc Said I Could Cheat....
2kids4me replied to BostonCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
..offer to bring in a fresh stool sample for the doc after you get glutened... ...and drop it off just before lunch...... -
ARCHIVED My Doc Said I Could Cheat....
2kids4me replied to BostonCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
umm, sounds like bad advice.. although it may come from "dr"...its not advice to follow. Accidental gluten is one thing, but saying "its okay to eat it".........nope IMHO Typical advice you'd get from someone who does not have celiac and one who does not have to live with the after effect.... sandy -
I have posted this before, a while back..I will post it again as it seems so fitting for this thread... My two children have the ability to take what life gives them and move on... my daughter with Aspergers showed me how to sit still and watch the butterflies... my son became stronger emotionally because he found out he could deal with something big and...
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ARCHIVED What About Breathing Flour In?
2kids4me replied to sknisley22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I dont bake with wheat flour anymore, any gluten comes in the house already made (for hubby). Kathryn got very sick from playing in an empty grain bin with her cousins, at her Uncle's farm. She has also gotten sick from working with paper mache. I have heard of drywallers (with celiac) needing to wear heavy duty masks (more than just the surgical)... -
ARCHIVED Daughter's Liver Enzymes?
2kids4me replied to DElizabethE's topic in Coping with Celiac Disease
I'm no expert either, and going gluten free wll cause no problem and may help. Keep in mind there are liver problems NOT caused by celiac, they will look at those as well. You can have blood problems causing the liver to work more - nothing to do with celiac, copper storage issues etc. My daughter Kathryn just had her liver worked up - ultrasound, complete... -
It sounds like they may have been interveiwing the author of the book "How doctors think". There is thread about it: Open Original Shared Link Sandy
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ARCHIVED How Does An Eeg Work?
2kids4me replied to Byte Me's topic in Introduce Yourself / Share Stuff
it didnt bother me, I figured you posted it here cause you didnt know what category it fit under! Since your question was about an EEG - well, then that isnt celiac not to worry. I had a thought - can you borrow a video camera and get visual documentation of what you see at home? Record several episodes if you can........ then I'd plunk it in... -
You can't...you can only give them the information and it is up to them if they decide to do it. I learned a while ago - you can't be more "invested" in someone than they are in themselves. None of my relatives will get tested because they see it as an inconvenient diet....they don't see any reason to... (even though my nephew lives off pepto bismol and...
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intertesting read - I too had her pegged for celiac in the first 2 paragraphs! I think human doctors should spend time in a vet clinic. We have to rely totally on body language, symptoms and history. So far I havent heard any of the vets I work with tell an owner - it was all in the pet's head and that it was mental issue and if they come in for a second...
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ARCHIVED How Does An Eeg Work?
2kids4me replied to Byte Me's topic in Introduce Yourself / Share Stuff
Kathryn has had an EEG. I'll try and relay my understanding. They attach several leads to specific parts of the head to measure electrical activity in the brain. The strobe lights and hyperventalation are known to stimulate seizure activity in the brain ..........they do this to see how the brain responds to stimulation. A neurologist evaluates the readouts... -
ARCHIVED Pork Digestive Systems Of Pigs... Does It Remove Gluten?
2kids4me replied to HawkFire's topic in Gluten-Free Foods, Products, Shopping & Medications
Thought I'd add this - food for thought... and yes, if you have concerns about consuming any food product, then dont eat it. Humans are the only animal that consumes highly processed food (or feeds it to other animals). We feed animals an unnatural diet (like corn and grain to a cow who is meant to eat grasses) Mushrooms grow best in manure - and we... -
ARCHIVED Pork Digestive Systems Of Pigs... Does It Remove Gluten?
2kids4me replied to HawkFire's topic in Gluten-Free Foods, Products, Shopping & Medications
um, just to clarify, the food ferments it doesnt rot..... they are meant to eat grasses and legumes.... ranges cows and hay (alfalfa) fed cows do better than any fed the corn based feed. Sandy for any interested readers.. You may find articles such as this that mention the word rot, in regards to cow digestion. If you read the paragraph they... -
No one knows what the future holds, there was no history of diabetes (Type 1 or otherwise) til i was diagnosed with Type 1 at age 25. Then all hell has broken loose with my kids and autoimmune disease. It is what it is....it depends what trigger is needed...no one knows exactly what trigger is required. If it does happen, you will cope and and the children...
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Thanks Scott. Guess I am mixing up stuff with what I do when I write for an article, but then when I do that, I have the material credited in ther references... and if I write it verbatim then I have to use it as a quote... Most public sites dont have copywright notice - is it okay to copy and paste from them (to use in a post here) as long as you include...
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The first test is an ANA ( anti nuclear antigen), if positve it does not necessarliy mean lupus, but they would do this test first. The more definitve testing involves an ENA profile which is usually ordered after consult with a rheumatologist. ENA - Extractable Nuclear antigens. Lupus is know as the "great imitator" - many of the symtoms of Lupus are...
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ARCHIVED Low Gluten Communion Hosts?
2kids4me replied to de caps's topic in Gluten-Free Foods, Products, Shopping & Medications
Actually in the Catholic Mass, you would need a separate chalice with wine only, the main chalice has a piece of the host added - I didn't realize this until Kathryn kept getting sick after Mass (and only taking the wine) and then I paid more attention and - yup, a small piece is added as part of the Communion rite. Whent the children were confirmed, the... -
ARCHIVED Low Gluten Communion Hosts?
2kids4me replied to de caps's topic in Gluten-Free Foods, Products, Shopping & Medications
We have not had any problems at our Catholic church. Both our children are celiac and the priest was the first one to suggest a solution - he has secnd chalice on the altar and it is "prepared" during the preparation of the Body and Blood... Once water and wine have been put in the chalice, he covers it, so that when he is preparing the host and adding a...