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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    Amesville, Ohio USA

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  1. Hi, Nope, not me anyway. Some people with celiac get dermatitis herpetiformis (DH), which is a skin rash. I am not sure DH looks like that picture though. DH is itchy, and is affected by iodine in the diet also. I would say it's a little itchy, but some other forum members might lynch me if I said its "a little itchy". There is a sub-section of the forum specifically for DH. If your rash is DH you might find some help there.
  2. Sweet potatoes are an option. Some people use a ricer to make cauliflower "rice". Quinoa might work, but make sure you rinse it well.
  3. Hi Brandi, Welcome to the forum! You can try eliminating dairy for now. Dairy is often a problem for celiacs. I don't know where you are but if you can get peppermint tea that may help with getting gas out of the stomach. Pepto Bismol and aspirin can help with pain. If you are having trouble sleeping you can try adjusting your diet to only eat foods without gluten in the afternoon. Keep eating the gluten in the morning and maybe the food symptoms will mostly be lessened by bedtime. You do need to keep eating gluten until the testing is complete and should wait until the test results are received before going gluten-free. A nice box of wine might help with sleep also. Many forum members have had symptoms like yours and some worse than that. The symptoms should start to decrease after going gluten-free. But they often don't go away completely for quite a while.
  4. Hi Romeo, That's good your vitamins and such are ok. The answer to your question about other intolerances is yes, celiacs can develop other food intolerances beyond gluten. The forum used to show a signature line for each member and often it listed their other food intolerances beyond gluten. That signature line went away an a forum upgrade some time ago. This forum subsection is specifically for other food intolerances. I have intolerances to nightshades, soy, carrots, celery, dairy, and some other things I don't remember at the moment. Corn is another common intolerance, and eggs. Your thyroid medication could definitely make you have tremors.If you have too much thyroid hormone in our system you could get any of the symptoms of hyperthyroid disease.
  5. Hi Romeo, Have you had your vitamin and mineral levels checked? Celiac can cause mal-absorption and that can cause vitamin deficiencies. Vitamin deficiencies can cause a lot of symptoms. B-vitamins are needed for nerve health. You should have the vitamin levels checked before starting any supplements, as it is possible to have too much of a vitamin also. And too much of some can cause symptoms as well.
  6. Hello SIC, Welcome to the forum! You are right, healing and recovery can take quite a while. The gluten (gliaden) antibodies will decline over time if you aren't eating gluten. That takes a variable amount of time for each person. In some it could happen quickly, but in others it may take months. The gluten itself doesn't stay in your body long. It's the antibodies to gluten that cause the symptoms. Many people can't digest dairy at the beginning, so you might want to stop eating that for a while.
  7. Your doctor flubbed up big time if he told you to go gluten-free before doing testing. Diagnosis involves both blood tests for gliaden antibodies and an endoscopy to take biopsy samples for gut damage analysis. If you want to get tested now after a month off gluten, you'll need to start eating gluten again for 12 weeks. It's often easier and less painful to do the celiac testing before starting the gluten-free diet. Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013
  8. It may take a higher level mod to make a change in the text for you JMG. But it might be simpler to just post a modified version when you are ready. I imagine you'd want to make a new thread for the final version anyway instead of pining a thread with multiple comments and corrections? As far as pinning the final thread version, we'd need Scott or Peter to do that I believe. It seems like a pretty good thread / info post to me. But Scott has ultimate authority. When you want, you can report the post using the "report post" option near the top left of the post. That will send a report to the MODs and they can review your post and maybe Scott will see it then. As you can imagine Scott doesn't read every post/thread for some reason. I could report it for you but I don't want to do that until you have a final version.
  9. That would be great however I don't know anywhere that automatic testing of relatives happens.
  10. Hello Andy, It sounds like you have already started the gluten-free diet. If you are waiting for the endoscopy (not colonoscopy), then you should still be eating gluten. Starting the gluten-free diet should wait until all testing is completed and test results known. Other wise the tests won't give accurate results. Your doctor should have told you this but many of them don't know much about celiac disease. The endoscopy should include 4 to 6 biopsy samples for analysis. Cross-contamination is a serious problem. The immune system is activated by very tiny amounts of gluten. And the immune reaction doesn't stop just because the food has left your digestive system. So the damage can be going on for quite a while. Some people have no GI symp0toms with celiac disease. That is called silent celiac. Other people have no_GI related symptoms, like joint pain, skin irritation,hair loss etc. Other tests you should be getting are vitamin and mineral levels. Celiac impairs the ability to absorb nutrients so you may be low on vitamins your body needs to heal it's tissues. Welcome to the forum!
  11. Hi Lisa, I had ankle swelling too. It turned out to be grapes and soy that were causing it for me. Edema is a known symptom of allergies. But most allergy tests only check for IgE reactions, not IgA or IgG reactions. So you could be having reactions to foods you eat that allergy tests won't detect. There aren't many non-IgE tests for food reactions available. It's more a case of putting on your detective shoes and seeking out your own answers. Most of the gumshoes around here rely on the old standby elimination diet to start their investigations. Welcome to the forum!
  12. Hello Emdee, The Kellog's website says the mini-wheats are made from 100% whole grain wheat. Therefore your statement about them not containing the seed portion of the grain is incorrect. Mini-wheats cereal is not safe for celiacs to eat. Also, rice does contain gluten. Gluten is the name for a protein/carbohydrate molecule found in the kernal of any grain seed. Rice gluten however is not associated with the celiac immune reaction. The grains linked to the celiac disease immune reaction are wheat, rye, barley, and for some people oats. From the Kellogs site: Each biscuit is made of 100% whole-grain wheat. That means one delicious bowl isn't just helping to fill you up, it’s helping to fill you up with at least 40 grams of whole grains — nearly a day's worth!
  13. There have been a lot of people post over the years about doctors refusing to test them or their children. So you have lots of company there. If you try a google search for "celiac support group in xxx" wit xxx being your city/area you may find some. There is also a doctors subsection of the forum where you might find a doctor.
  14. Hi EBloom, Well, there has to be a reason you are struggling to maintain your weight. Celiac could explain that as it interferes with absorption of nutrients. Your cholesterol being low is similar to mine when I was undiagnosed. Celiac damage makes it hard to absorb fats so cholesterol numbers go down. Liver enzymes being elevated is also associated with celiac damage. Plenty of people with celiac have thyroid problems so that kind of ties in also. If you can find a local celiac support group they might be able to recommend a better doctor for you. The thing is, celiac disease can damage any part of the body, and the nutritional deficiencies that go along with celiac are also a body wide problem. Many people with celiac don't have gut / digestion symptoms at all. But they may have other symptoms like joint pain, skin rashes, trouble walking, thyroid problems, gall bladder problems, etc, etc. Welcome to the forum!
  15. Hi kcductaper, Some things to think about on the testing or not: There are genes associated with celiac disease. A gene test can tell you if you have the associated genes, but not if you have celiac disease. About 30% of people have those genes in the USA. If you decide to do the celiac testing later for some reason, you will need to eat gluten for 12 weeks for blood antibodies to be tested, or 2 weeks for endoscopy testing. But the diagnosis criteria is elevated blood antibodies present and also evidence of intestinal lining damage. Your children (future) may develop celiac disease at any point. So if kids are in your future plans, it's good to know if you carry the genes. Symptoms when resuming gluten after being off it for a while are sometimes more dramatic and unpleasant than before going off gluten in the first place. Recovery from symptoms varies among people. Some people get better quickly, others it can take months to a year or more. The newbie info thread has some stuff that may help. It's a lot easier to get the testing done before going gluten-free, than going off and back on gluten after a period of time. Nuerological symptoms are generally thot to be slow to improve. Have you had your vitamin and mineral levels checked? And welcome to the forum!