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How Do You Cope Post Gluten?

Vinturi

By Vinturi
in Coping with Celiac Disease

Recommended Posts

Vinturi Rookie
Vinturi
Posted

Those damn delicious cadbury eggs! I ate 2 minis and 2hrs later comes the sweating, chills, horrible cramps, D, nausea, headache, exhaustion and the list could go on! What was I thinking?

What do you do to handle the aftermath? I was diagnosed Celiac just 10 weeks ago, but I still can't believe I was so careless. It is a reminder to be so careful, that's for sure.

I wish there were some kind of miracle pill for this!

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shadowicewolf Proficient
shadowicewolf
Posted

I tell myself no, its not worth the trouble.

 

I don't do candy anymore for a reason. As a child i only really ate atomic fireballs (had to stop after my tongue decided to go all rough and irritated and last for a week or two without the ability to taste and being really sore), gum does the same (cinnamon flavor). I think its due to the red food coloring in it... (this was before i knew i had major problems with it) There was also a similar incident with another type of candy on a stick, but i think that it was just too much sugar at a time (candy has long since stopped being produced). Made my tongue rough but not as bad as the red stuff does (no hurting, no loss of taste, no irritation). I had to stop chocolate because my GERD would act up so bad that it wasn't even worth it.

 

My favorite "candy" at the moment? Take an apple, cut it up. Refrigerate honey overnight in the fridge. Put some honey on the plate with the apple as a dip. Honey turns into the consistency of a soft caramel. Yum, Yum.

 

Lots of water, foods that are easy on the stomach, and heating pads are lovely for those unwanted cramps.

EmiPark210 Contributor
EmiPark210
Posted

You have to find your way around things that you can't let go of. For me it's cookies... totally addicted. But if you want some positivity about this whole experience, check out glutenfreegirl.com - amazing articles about her life gluten free and great recipes.

 

It will get easier, you just have to embrace it as part of who you are as well as not letting it define you.

 

As to coping, probiotics to replenish what your body just flushed out, crappy but awesome movies (trash TV works too any guilty pleasure), lots of blankets or whatever you need to feel comfortable, and water.

GFinDC Veteran
GFinDC
Posted

Pepto Bismol and aspirin.   Lots of water and pro-biotics.  Maybe some peppermint tea.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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