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Does Anyone Else Have Other Auto Immune

ivegotitalso

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ivegotitalso Rookie
ivegotitalso
Posted

hi- i was wondering if anyone else had any other auto immune problems like i have sjorgrens pronounced show grins ?

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Roda Rising Star
Roda
Posted

Yep, I have hashimotos disease. I was diagnosed with it in 2000. Probably had celiac then and just didn't know it.

Skylark Collaborator
Skylark
Posted

I have Hashimoto's thyroiditis as well.

mushroom Proficient
mushroom
Posted

Psoriatic arthritis here.

bluebonnet Explorer
bluebonnet
Posted

hypothyroid for me ... diagnosed at 19 years old with it. and i agree with roda, i probably had celiac back then but just didn't know it.

Looking for answers Contributor
Looking for answers
Posted

I also have been diagnosed with sjpogrens...however vie never had a symptom. I'm hoping going gluten free stopped it I it's track.

  • 2 weeks later...
MsModelSara Rookie
MsModelSara
Posted

I have Hashimoto's Thyroiditis too...probably caused by my gluten sensitivity

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kayo Explorer
kayo
Posted

RA and Sjogrens. Gluten and soy free has almost eliminated the Sjogrens.

  • 4 months later...
Pippi13 Newbie
Pippi13
Posted

Hi! I know this question was posted several months ago, but I'm new here & just saw it.

I also have another autoimmune disease - one I didn't see listed among the other replies. I have Guillian-Barre. That's a terribly painfull & crippling autoimmune disease. I was in a wheelchair for several years because of that. After my celiac diagnosis & my new gluten free lifestyle, my GB has gotten much better. I'm even walking again! :)

Additionally, my "mystery anemia" has healed, & I haven't had a blood transfusion in nearly a year.

My biggest problem now is accidental gluten ingestion.

Although I read all ingredient labels, (as we all know) gluten hides under many false names.

Other times, I was accidentally "glutenised" by cross-contamination. Hence, I only eat food from my own kitchen now. Restaraunts are horrible cross-contaminators, as are the kitchens of friends & relatives - even when they try to be careful, & think they've decontaminated surfaces, they really don't know how to do that correctly.

dwillia75 Newbie
dwillia75
Posted

Hi. I have Hashimoto's and Raynaud's syndrome.

catarific Contributor
catarific
Posted

I have Hashimoto's Thyroiditis too. Had it for years - never need thyroid replacement though until I hit my thirties. Even to this day, I take a moderate dose. Always had constipation issues as a child and teenager - but I do not think when I was that young that people even attributed it to anything but not eating enough ruffage or vegetables. :(

chasbari Apprentice
chasbari
Posted

Rheumatoid Arthritis, Sjogren's Syndrome, high Lupus indicators, Reynaud's in addition to Celiac. All the other have responded positively to strict gluten free.

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    • MauraBue
      Have Tru Joy Sweets Choco Chews been discontinued??

      By MauraBue · Posted

      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

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      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
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