Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Way To Help Celiacs That Have Been Impacted


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

We have many members in many of the disaster areas that seem to be filling our country right now. There isn't a lot that many of us can do but I know that many of us are doing anything we can to help even if it is just thoughts and prayers.

I know I am not the only one with tears in their eyes with all the tornados and the flooding. The loss of life, ways of life and workplaces is heartbreaking.

Please know if you are affected that thoughts are going your way.

When I hear of so many who have lost so much it just makes the troubles I go through seem not so important.

Does anyone know of anything we can do to help our fellow celiacs that may have been impacted by these disasters? Would the Red Cross or any other organization take shipments of gluten-free food?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pamela B. Apprentice

We have many members in many of the disaster areas that seem to be filling our country right now. There isn't a lot that many of us can do but I know that many of us are doing anything we can to help even if it is just thoughts and prayers.

I know I am not the only one with tears in their eyes with all the tornados and the flooding. The loss of life, ways of life and workplaces is heartbreaking.

Please know if you are affected that thoughts are going your way.

When I hear of so many who have lost so much it just makes the troubles I go through seem not so important.

Does anyone know of anything we can do to help our fellow celiacs that may have been impacted by these disasters? Would the Red Cross or any other organization take shipments of gluten-free food?

I just came here to ask this exact same question. Unfortunately I haven't found an answer yet.

kareng Grand Master

I guess the good thing about tornadoes, if there is one, is that it is a small area and you can leave. While most of a small city might be affected, you can get food at the store in the next town. I live in Kansas, so I have given this some thought. If my house is destroyed, my emergency food would be, too. But, I can go 5 miles to my parents house or 12 miles to my sister's. They way a tornado works, it probably wouldn't hit all of us. I think it's harder when you are stuck and can't leave or have someone get you.

I have worked out a deal with a local food pantry. I am giving them a few gluten-free foods - pasta, Chex, Crunchmasters crackers, etc. They understand the " specialness" and will keep a separate box. In an emergency, that food would be available, too. I always try to give mainstream gluten-free foods to food pantries. A jar of PB is filling, even if you eat it with a spoon.

Places like the Red Cross and Heart to Heart are good places to donate to. Right now, we are being told that the greatest need in Reading, KS & Joplin, Mo is for bottled water and Gatorade for rescue workers and when they let people into the neighborhoods. Probably also, trash bags to gather belongings if it's safe to do so ( Heart to Heart usually distributes those).

kareng Grand Master

Update:

Asking for heavy duty trash bags, tolietries (Kotex, diapers, TP especially), flash light and batteries as well as water.

also, blood donations but I'm not sure if any of us should be donating blood?

mushroom Proficient

I am really feeling for the poor folks in Joplin, knowing what they must be going through, rebuilding their lives from scratch. It is so terrifying to be suddenly left homeless, sometimes jobless too :o Some of our folks cannot even rebuild on their own land because the land itself is unsafe. Life is reduced to the bare essentials. I will make a donation to the Red Cross as to many kind Americans did for us.

cahill Collaborator

also, blood donations but I'm not sure if any of us should be donating blood?

This is a really good question. I dont want to sound silly but Should we give blood.??

kareng Grand Master

This is a really good question. I dont want to sound silly but Should we give blood.??

This is from the Red Cross. We probably can give blood if we don't have one of the other things. I think I wouldn't give blood if you may still have the antibodies floating around.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

This is from the Red Cross. We probably can give blood if we don't have one of the other things. I think I wouldn't give blood if you may still have the antibodies floating around.

Open Original Shared Link

Thanks kareng, sadly I am not able to give because of some current liver issues :(

kareng Grand Master

Poor Joplin just got another tornado warning. They are trying to evacuate people who were camping by their houses or still working.

mushroom Proficient

Oh, no. I had heard that there were still possible tornadoes in the forecast :unsure:

Jestgar Rising Star

Very scary. I give blood all the time, and I hope that anyone eligible will make it a habit all the time, not just during emergencies (although, if you have a lot going on and can't donate regularly, emergencies are worth the extra effort on your part).

kareng Grand Master

We have the edge of that storm. The boys & hub are sitting on the screened porch listening to the thunder. It's so loud, they could hide on the basement with headphones on & hear this thunder!

mushroom Proficient

I gave blood only once and then they told me not to do it again :unsure: I fainted every time I stood up for three hours :rolleyes: I guess I don't have any to spare. Hub is called on for emergencies - they told him not to give regularly because he is B negative, a common type amongst American Indians apparently, of whom there were quite a few in his Army unit. He always told them, you'd better be nice to me because I'm your blood donor. :D

cahill Collaborator

I gave blood only once and then they told me not to do it again :unsure: I fainted every time I stood up for three hours :rolleyes: I guess I don't have any to spare. Hub is called on for emergencies - they told him not to give regularly because he is B negative, a common type amongst American Indians apparently, of whom there were quite a few in his Army unit. He always told them, you'd better be nice to me because I'm your blood donor. :D

I used to give blood on a very regular basis , They would even call me to remind me it was time :lol: I am AB they seem to REALLY like my blood :lol:

My celiac antibodys are with in limits but my hashimotos antibodys are threw the roof. Add the liver questions to that and I am not sure anyone would want my blood right now :huh:

thleensd Enthusiast

I didn't see this posted anywhere today... but here is a contact to help Celiacs in the Joplin area.

Open Original Shared Link

ravenwoodglass Mentor

I didn't see this posted anywhere today... but here is a contact to help Celiacs in the Joplin area.

Open Original Shared Link

Thanks for posting this link. I appretiate it.

bbuster Explorer

I didn't see this posted anywhere today... but here is a contact to help Celiacs in the Joplin area.

Open Original Shared Link

Yes - this is legit.

I live in Springfield and via Barb, who leads the Celiac Support group in Branson, which overlaps with the Springfield group, I got in touch with Rita in Joplin. Rita leads the Joplin Celiac support group (I think it's new). Anyway, Rita put me in touch with someone in Springfield who was going there today, so I was able to collect a bunch of stuff from myself and and a couple of other people in the area, and get it delivered to where it would be taken care of.

They are mostly asking for non-perishables, but since we are so close, I also baked a bunch of chocolate chip cookies and vacuum-sealed them in 6-packs with a little note of encouragement.

My understanding is that the Red Cross is NOT able to manage any kind of special food needs for people.

bbuster Explorer

I guess the good thing about tornadoes, if there is one, is that it is a small area and you can leave. While most of a small city might be affected, you can get food at the store in the next town. I live in Kansas, so I have given this some thought. If my house is destroyed, my emergency food would be, too. But, I can go 5 miles to my parents house or 12 miles to my sister's. They way a tornado works, it probably wouldn't hit all of us. I think it's harder when you are stuck and can't leave or have someone get you.

The Joplin tornado was so far out of the realm of normal. It wiped out the two large grocery stores that carried gluten-free foods. They no longer have a health food store. (I'm not sure if this is tornado related ot not). And they had a gluten-free bakery which just closed. So the nearest options might be Springfield (75 miles) or Kansas City (farther). A large number of people lost their vehicles as well as their homes. Even a lot of people who still have a place to live lost power for some time.

mommida Enthusiast

I had heard in past situations the CSA, Celiac Sprue Association, has collected food from various gluten free companies and helped feed the people affected.

If there are any food supplies, an educated person would be able to pull out some mainstream foods that are gluten free.

kareng Grand Master

E Joplin animal shelter was in a contest to win $15,000. They really need it now. They need votes to win money.

Open Original Shared Link

  • 1 month later...
kareng Grand Master

just a way to find out what is going on. I have heard from someone that was there recently, some of the groceries are back and have some gluten-free products. But some people didn't have insurance & don't have jobs because of the tornado so they can't afford it.

Open Original Shared Link

kareng Grand Master

E Joplin animal shelter was in a contest to win $15,000. They really need it now. They need votes to win money.

Open Original Shared Link

Forgot to update: got a message that the shelter didn't win that week. Very disappointing until I got to the bottom of the email. They gave them $100,000!

come dance with me Enthusiast

We live in an area prone to floods and cyclones. We were hit by Cyclone Yasi earlier this year and Larry passed through a couple of years back. This will be the first year that I'll have to make sure we have a lot of the right type of food whereas in the past tinned spaghetti was enough to see us through. My LO won't eat the Orgran spaghetti and has never liked baked beans either. We were flooded in for about 4 weeks last year with floods not from a cyclone and ran out of things so dry pasta with jars of pasta sauce were brought into the area by emergency workers on boats. I've started now with stocking up on gluten free pasta and pasta sauce. We have gas camping cookers but are often without power for up to a month if we're hit by a cyclone. This year it was only a week but after Larry it was 5 weeks for us and longer for some others. With Tess we were without power and flooded into our street for a little over a month so I lived off dry Weet Bix which we also cannot have anymore.

Restrictions to the diet make it hard in emergency situations but the last thing you want when you have no running water is the gluten symptoms so it's highly important to not eat for the sake of it too. Argh so hard! I stock up by semptember and usually have a supply that will last us a few weeks but I'll have to really become a hoarder this year because emergency supplies won't work for us if it comes to that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.