Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac In The Real World


Sarunski

Recommended Posts

Sarunski Newbie

Hey all,

I've been gluten-free since August and I am realizing just how sensitive I am. If it says same equipment or facility, there is a high chance I will be glutened. I recently started the final semester of college as a student teacher in a high school classroom. I've been glutened a few times throughout the semester, luckily a few of them have been on weekends so I could recover enough to go back to work. I only have so many days I can miss, but I can't help it if my source of food (the cafeteria) accidentally glutens me. I try to cook as much as I can on my own, but with financial restrictions like gas money and no source of income, it's extremely hard for me to afford it right now. I don't know what to do! How do most people deal with this if you are glutened and have to go to work. I have really bad symptoms like severe mood changes, the usual abdominal pains and problems to where I might as well not go anywhere. Any tips? What is it really like to live and be gluten free in the real world?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cujy Apprentice

Sarunski, I know what you mean about the expense...I can't afford the diet either as we are on one income, Im just buying some things here and there, and trying to stock up on some ingrediants so I can make my own stuff. I deffinately can't afford for my whole family to eat that stuff, and unfortunately because of the no preservatives, it goes bad much faster....I also have the same abdominal pains that you do, its doubled over almost a continous cramp. I am very new to the diet and finding it very hard re expense and knowledge.

I don't work, I have to stay home with my son who had a heart transplant and a stroke so I am busy and find cooking an absolute nightmare.

Having said that though, I made a HUGE pot of beef/veggie soup the other night and froze almost all of it. That way if I don't feel like cooking I can take a container out and stick it in the mic. Last night it was caramel apple pork chops with smashed potatoes and green beans almandine....extravagant for me, but really not a big deal....made enough that I have leftovers for tonight too. The potatoes are crazy easy to make and would make something good for you to take to work.

Just a thought, and like I said there are others on this board who are WAAAAAAAAY more knowledgeable then me, but know that you are not alone, in pain or frustration!

Take care!

Angela

birdie22 Enthusiast

You said you are student teaching and eating at the school cafeteria is that correct? Can you prepare your own lunch and bring it? I would think that is safest. Could you supplement some cafeteria food with your own or stick to things that come individually packaged like fruit (things with peels like banana, orange), single serve fruit or applesauce cups, cheese sticks (if you can do dairy), yogurt, nuts? My guess is the cafeteria food isn't all that tasty anyway.

aeraen Apprentice

Believe me, it gets better and easier once you've gotten used to it. There are pages and pages in these forums of inexpensive ways to make your own food. The only thing you can't replicate gluten free is convenience. It will take you time to make your own food, but it doesn't have to be spendy.

First of all, if it is affecting your job performance (I'm assuming that leaving a classroom to run to the restroom could do that), stop relying on the cafeteria for lunches. Heck, as a cost saving (as well as nutrition) measure, my son brought all of his lunches from home. He isn't celiac, but it saved us money rather than costing more.

Second, stop buying the packaged gluten-free foods. Instead, find your local Asian food store. There you will find a wealth of rice based ingredients, especially flour and noodles. I find my favorite rice based crackers there. A can of tuna, a little mayo and I have the ingredients for tuna salad on crackers. Nice lunch. Replace the tuna salad with chicken salad, egg salad, ham salad, thinly sliced beef roast, hummus... you get the idea. Even PB&J taste pretty good on rice crackers. If you don't have a Asian food store nearby, and can't find the crackers in the Asian aisle of your local food store, Blue Diamond makes some nice rice/almond crackers that can be found in the regular cracker section of most supermarkets.

In the end, what it comes down to is being creative and even a little adventurous. You can eat gluten-free on a shoestring budget.

Monklady123 Collaborator

It really is not more expensive to eat gluten free if you avoid the packaged convenience stuff, and cookies, etc. Bread will probably be more expensive but on the other hand I find I eat way less of it. So a loaf probably lasts just as long as a gluteny one did. I love Udi's with peanut butter for breakfast, but don't like it as sandwiches.

I bring my lunch every day instead of eating in the cafeteria. (I work in a hospital and the only thing I trust in that cafeteria is a hard-boiled egg!)

Some of the things I bring for lunch:

-- leftovers

-- hummos and carrots

-- yogurt

-- applesauce

-- salad

-- lunch meat

-- cheese

-- lettuce (to make lettuce wraps with my meat and cheese)

-- cheese stick

-- pudding

-- soup

-- fruit - fresh or canned, depending on the fruit and the season

-- frozen vegetables (I buy those Steamfresh bags, cook them at home in the morning in the microwave, then bring them to work)

-- rice (cook up a bunch at once then you have several days' worth)

-- hard boiled egg

-- chips and guacamole (I buy individual packs of guacamole since it goes brown as soon as you open it)

That's just off the top of my head. None of that is made specifically "gluten free", it just is naturally. When I cook dinner I often make extra to be used for lunches. Yesterday I took sausage, mashed potatoes, and corn.

eatmeat4good Enthusiast

I went Paleo to fix the problem.

I have saved a ton of money.

Meat, fruit, vegetables, nuts.

A1 and mayo and mustard.

No gluten free grain flours or products.

If we crave a sweet I make Nestle toll house recipe and sub Almond flour for the flour portion.

The more you eat mainly meat, the less you really have to buy all that other stuff.

My food budget is cut by 25% at least just by not buying any packaged foods or grain products at all.

I mean we Will buy gluten free bread, but it lasts just forever in the freezer. we eat like 2 slices a week each and there are 2 of us gluten free.

My first month gluten free I bought all that stuff, but soon realized there was very little nutrition in it.

Good fats, protein, fruit and veggie are great for your metabolism too.

Corn tortilla's with bakad chicken mayo and lettuce are great if you miss a sandwich. Not the same but just great for us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,546
    • Most Online (within 30 mins)
      7,748

    Kkiloh
    Newest Member
    Kkiloh
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.