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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


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  • Posts

    • badastronaut
      I took my first 100 mg this morning. Let's see what happens. Still a bit nervous of messing up my other B vitamins since I don't have a B complex at the moment. Thanks for your replies Knitty Kitty!
    • knitty kitty
      No, there's no need to keep checking blood antibody levels.  The tests are meant to be used as diagnostic tools.  It can take several years for antibodies to completely disappear, if ever.   Do get checked for anemia and thyroid problems if you fail to bounce back.   I understand what it's like not to have family support.  You've got a large tribe here that believe.   Take care of yourself.  Sending hugs!  Keep us posted on your progress!
    • knitty kitty
      Do get checked for all kinds anemia, iron deficiency anemia, B12 deficiency anemia, pernicious anemia, B6 deficiency anemia.  Anemia is very common in Hashimoto's!   Anemia, Diabetes and thiamine deficiency are known causes of seronegative Celiac Disease.   You only need one gene for Celiac.  Welcome to the tribe! Keep us posted on your progress.  
    • knitty kitty
      Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1  deficiency.     Hyperemesis is a symptom of thiamine deficiency.  Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and decrease of symptoms.  Eating a diet high in carbohydrates can result in thiamine deficiency.   Many children on the Autism spectrum benefit from supplementing Thiamine.  See the research done by Dr. Derrick Lonsdale and Dr. Chandler Marrs' at the website hormonesmatter.com, or published on NIH pubmed.
    • knitty kitty
      Some Celiacs react to the dairy protein Casein the same as they would to gluten. This could explain your ongoing inflammation.   Allergies can raise your histamine levels as can processed gluten free products.  To clear histamine, certain vitamins can help, B12, Pyridoxine B6, Vitamin C, and Thiamine B1.   Optimal Vitamin D levels are between 80 and 100.  Vitamin D helps regulate the immune system.   Seems like addressing nutritional deficiencies would be beneficial to you.  Blood tests aren't accurate measurements of the stores of vitamins inside cells in the tissues and organs where they are utilized.  Blood levels of vitamins can reflect what you've eaten in the past day or two.   Processed gluten free foods do not have vitamins added to them like their gluten containing counterparts.  Vitamins are chemical compounds our bodies cannot make, so we have to get them from what we eat.  The gluten free diet can be short in some vitamins and minerals, so supplementing can be beneficial, especially since you're still having inflammation.  
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