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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,304 topics in this forum

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  • Recent Activity

    1. - Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      52

      Supplements for those Diagnosed with Celiac Disease

    2. - Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Nateral remedies

    3. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      13

      Diagnosed Marsh stage 3C in January 2026

    4. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      31

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

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    • Margaret Wheatley
      I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful.  Regards Margaret. 
    • Jmartes71
      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi  dr dropped me but took me back.Im frustrated too but its the autoimmune part .
    • Known1
      Pardon me, I stand corrected.  I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4:  2.91 mIU/L  (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
    • Known1
      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
    • Jmartes71
      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
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