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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,304 topics in this forum

  1. mum24boys

    Im New And Confused And Need Some Help And Advice.

    By mum24boys, Last action:
    • 5 replies
    • 2.3k views
    • mum24boys
    • mum24boys
  2. Rgd

    Help With Cp Results?

    By Rgd, Last action:
    • 8 replies
    • 2.3k views
    • Rgd
    • Rgd
  3. butrfly9

    Confused By Test Results

    By butrfly9, Last action:
    • 0 replies
    • 983 views
    • butrfly9
    • butrfly9
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  4. Jrose3009
    GFinDC

    Gluten Intolerance Question Please Help Im Confused Whats Happening

    By Jrose3009, Last action:
    • 2 replies
    • 1.2k views
    • GFinDC
    • GFinDC
  5. AmberRS

    Impatient

    By AmberRS, Last action:
    • 12 replies
    • 2.1k views
    • AmberRS
    • AmberRS
  6. PaulaK
    kareng

    Steroid Use And Negative Blood Tests

    By PaulaK, Last action:
    • 3 replies
    • 2.3k views
    • kareng
    • kareng
  7. Eschul88
    tarnalberry

    14 Month Old With Concerning Symptoms

    By Eschul88, Last action:
    • 6 replies
    • 3k views
    • tarnalberry
    • tarnalberry
  8. txgirl
    Celiac Mindwarp

    So Sick! Is The Gluten Challenge Worth It?

    By txgirl, Last action:
    • 11 replies
    • 8.4k views
    • Celiac Mindwarp
    • Celiac Mindwarp
  9. Em314
    tom

    In The Middle Of Testing

    By Em314, Last action:
    • 5 replies
    • 3.2k views
    • tom
    • tom
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  11. kylemachiavelli
    Celiac Mindwarp

    Some Pre-Diagnosis Questions

    By kylemachiavelli, Last action:
    • 2 replies
    • 2.1k views
    • Celiac Mindwarp
    • Celiac Mindwarp
  12. VeggieGal
    GottaSki

    Blood Tests Positive..do I Really Need A Biopsy? 1 2 3

    By VeggieGal, Last action:
    • 57 replies
    • 18.2k views
    • GottaSki
    • GottaSki
  13. angelynnb
    shadowicewolf

    What Am I Missing?

    By angelynnb, Last action:
    • 4 replies
    • 1.8k views
    • shadowicewolf
    • shadowicewolf
  14. KnightRobby

    Still A Bit Confused By Celiac Disease (Also: Celiac Petition)

    By KnightRobby, Last action:
    • 2 replies
    • 1.6k views
    • KnightRobby
    • KnightRobby
  15. Quincypp
    Celiac Mindwarp

    Well The Dr Called...

    By Quincypp, Last action:
    • 7 replies
    • 1.6k views
    • Celiac Mindwarp
    • Celiac Mindwarp
  16. SandraLAVixen
    Darkfire Ann

    Wheat + Sleep = No Pain?! I Think I Found My Cure! (Possibly?)

    By SandraLAVixen, Last action:
    • 9 replies
    • 2.1k views
    • Darkfire Ann
    • Darkfire Ann
  17. Imre
    frieze

    Something Other Than Celiac Disease

    By Imre, Last action:
    • 6 replies
    • 3.7k views
    • frieze
    • frieze
  18. june27

    How To Self-Diagnose If Doc Will Not Run Tests

    By june27, Last action:
    • 8 replies
    • 5.5k views
    • june27
    • june27
  19. pylorus

    Atypical Symptoms (?), 1 Monthly Attack

    By pylorus, Last action:
    • 0 replies
    • 1.3k views
    • pylorus
    • pylorus
  20. mars817

    How Long Would It Take To Feel Different/better?

    By mars817, Last action:
    • 8 replies
    • 2.5k views
    • mars817
    • mars817
  21. lobbyart
    Gemini

    Benefits Of Gluten Challenge Before Genetic Testing?

    By lobbyart, Last action:
    • 5 replies
    • 2.2k views
    • Gemini
    • Gemini
  22. javic
    Gemini

    Pediatric Gastroscopy To Diagnose Celiac In 4 Year Old - Is It Really Necessary?

    By javic, Last action:
    • 12 replies
    • 3.4k views
    • Gemini
    • Gemini
  23. Sarahsmile416

    "negative" Blood Test But Still Symptomatic

    By Sarahsmile416, Last action:
    • 6 replies
    • 2.3k views
    • Sarahsmile416
    • Sarahsmile416
  24. guest134
    ButterflyChaser

    If Celiac Is Caught And Treated Early Is There Still Risk For Other Autoimmune?

    By guest134, Last action:
    • 4 replies
    • 1.8k views
    • ButterflyChaser
    • ButterflyChaser
  25. blkane1984
    ButterflyChaser

    Hypothyroidism Is Changing With Gluten-Free Diet - New Poster

    By blkane1984, Last action:
    • 8 replies
    • 3.1k views
    • ButterflyChaser
    • ButterflyChaser
  26. tgtexas5

    I'm New To This & I Really Need Help!

    By tgtexas5, Last action:
    • 3 replies
    • 2k views
    • tgtexas5
    • tgtexas5

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  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      323

      Terrible Neurological Symptoms

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
    3. julie falco
      - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

      thank you that is good to know that it is safe for celiac people
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the...
    5. Scott Adams
      - Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      Are you trying to make us in the USA jealous? 😉
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  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in. 
    • Mari
      Second chance

      By Mari · Posted

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      Schar's products contain wheat!

      By julie falco · Posted

      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      By Scott Adams · Posted

      Are you trying to make us in the USA jealous? 😉
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