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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,293 topics in this forum

  1. gstewart88
    GottaSki

    Possible Coeliac

    By gstewart88, Last action:
    • 2 replies
    • 1.9k views
    • GottaSki
    • GottaSki
  2. maggiesimpson
    gstewart88

    Stressing Over Pillcam Results

    By maggiesimpson, Last action:
    • 5 replies
    • 5.3k views
    • gstewart88
    • gstewart88
  3. DavinaRN
    shadowicewolf

    Cooking Equipment

    By DavinaRN, Last action:
    • 3 replies
    • 1.5k views
    • shadowicewolf
    • shadowicewolf
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  4. chrischan
    nvsmom

    Possible Celiac Disease?

    By chrischan, Last action:
    • 7 replies
    • 1.6k views
    • nvsmom
    • nvsmom
  5. ashleigh90
    Lisa

    Is It Celiac?

    By ashleigh90, Last action:
    • 1 reply
    • 1.6k views
    • Lisa
    • Lisa
  6. quirkinator

    Strange Symptoms For 1 1/2 Years... Celiac's? Cancer? Ibd?

    By quirkinator, Last action:
    • 3 replies
    • 1.4k views
    • quirkinator
    • quirkinator
  7. lizzyann95

    Does This Sound Like Celiac?

    By lizzyann95, Last action:
    • 6 replies
    • 1.3k views
    • lizzyann95
    • lizzyann95
  8. michelepta
    Gemini

    Questions About 16 Year Old

    By michelepta, Last action:
    • 6 replies
    • 2.9k views
    • Gemini
    • Gemini
  9. guest134
    nvsmom

    Ema, Ttg And What They Really Mean

    By guest134, Last action:
    • 3 replies
    • 1.9k views
    • nvsmom
    • nvsmom
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  11. smpalesh
    Invictus

    "it's No Big Deal"

    By smpalesh, Last action:
    • 5 replies
    • 1.4k views
    • Invictus
    • Invictus
  12. BushMommy

    Is A Biopsy Necessary For A Diagnosis?

    By BushMommy, Last action:
    • 3 replies
    • 1k views
    • BushMommy
    • BushMommy
  13. Sheloveshim

    Testing Show Not Neg

    By Sheloveshim, Last action:
    • 3 replies
    • 987 views
    • Sheloveshim
    • Sheloveshim
  14. MoMof2Boyz
    kareng

    How Long Should I Be Eating Gluten Before Endoscopy ?

    By MoMof2Boyz, Last action:
    • 9 replies
    • 10.4k views
    • kareng
    • kareng
  15. smpalesh

    Do They Always Do A Biopsy During A Gastroscopy?

    By smpalesh, Last action:
    • 4 replies
    • 4.6k views
    • smpalesh
    • smpalesh
  16. SandraLAVixen
    Celiac Mindwarp

    Update, Survived 2 Weeks On Gluten For Test

    By SandraLAVixen, Last action:
    • 6 replies
    • 2.1k views
    • Celiac Mindwarp
    • Celiac Mindwarp
  17. Slr38
    DarkStar-X

    How Quickly Do Your Symptoms Appear?

    By Slr38, Last action:
    • 3 replies
    • 1.9k views
    • DarkStar-X
    • DarkStar-X
  18. Jen85
    GFinDC

    Is Celiac A Possibilty?

    By Jen85, Last action:
    • 16 replies
    • 3.6k views
    • GFinDC
    • GFinDC
  19. jules2

    Blood Results - Need Help Interpreting

    By jules2, Last action:
    • 10 replies
    • 1.7k views
    • jules2
    • jules2
  20. BlackStar

    I Just Want To Make Sure I'm Not Crazy

    By BlackStar, Last action:
    • 5 replies
    • 1.3k views
    • BlackStar
    • BlackStar
  21. DavinaRN
    GottaSki

    Blood Work

    By DavinaRN, Last action:
    • 1 reply
    • 1k views
    • GottaSki
    • GottaSki
  22. 1desperateladysaved
    GottaSki

    Iga False Negative To Gluten And Other Known Problems

    By 1desperateladysaved, Last action:
    • 3 replies
    • 1.2k views
    • GottaSki
    • GottaSki
  23. 1974girl
    IrishHeart

    Doctor Won't Do Yearly Follow Ups

    By 1974girl, Last action:
    • 2 replies
    • 1.6k views
    • IrishHeart
    • IrishHeart
  24. AnnJay
    mushroom

    Should I Bother With Further Testing?

    By AnnJay, Last action:
    • 1 reply
    • 1.2k views
    • mushroom
    • mushroom
  25. sillisent

    Could It Be Celiac?

    By sillisent, Last action:
    • 9 replies
    • 2.1k views
    • sillisent
    • sillisent
  26. deals88

    Need To Fast Before Any Of These Blood Tests?

    By deals88, Last action:
    • 3 replies
    • 4.6k views
    • deals88
    • deals88

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  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    2. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

      Oops! @Staticgypsy, I’ll get the book! Thank you!
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man...
    5. Mark Conway
      - Mark Conway replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

      I did'nt know that, I will check what specifically the blood tests were for. Thanks
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  • Posts

    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
    • Mark Conway
      Have I got coeliac disease

      By Mark Conway · Posted

      I did'nt know that, I will check what specifically the blood tests were for. Thanks
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