Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy - Affect On Symptoms


dilettantesteph

Recommended Posts

dilettantesteph Collaborator

How have peoples symptoms been affected by endoscopy and biopsy?  Do they worsen for a few days from the procedure itself?  I'm trying to figure out what is going on, and I don't remember ever reading about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Nope, I didn't :)

nvsmom Community Regular

I've heard many poeple feel worse because of the gluten they ate prior to the test but I haven't heard of the test making them feel worse... I never had the endoscopy so I'm not exactly knowledgable about this... Hope you find answers and feel better soon.

pricklypear1971 Community Regular

My son had very negative behavioral/emotional reactions for a month+ after his endoscopy.

Funny enough, he mostly stopped complaining of stomach upset, c, d, etc.

But the behavior was definite. Even his teacher noticed.

We think it was a reaction to the anasthesia. He was a little "shocky" post procedure. The chills, chattering. Not unusual or unheard of-but a slight reaction.

lisa74 Newbie

When I had my endoscopy and biopsy, my symptoms stayed the same, no changes until I went gluten free. Are you feeling worse?

dilettantesteph Collaborator

Thank you for replies.  This was a follow up endoscopy while already gluten free, but suffering minor symptoms from slight gluten contamination.  I think that I just wasn't being patient enough with improvement upon finding a safer diet.  Things seem to be going better now.

Em314 Explorer

I felt reeeeeeally wiped out and kinda like I had a low grade fever for a day or two after, but I don't remember much else being wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I don't think I was any different. I started gluten-free right after it so I can't really judge.

I have several friends, probably not Celiac, whose " stomach" issues got better after and endo/ colo combo. Probably the good clean- out.

gatita Enthusiast

I felt pretty wasted after my double 'scopes last week (endo- and colono-).... my guts were all squirrelly too. It's a week later today and I'm fine now. I think the pre-colonoscopy flush-out might have been a good thing for my SIBO.

dilettantesteph Collaborator

I think the endoscopy caused some flare up for about a week here too.

 

The pediatrician thought that likely.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.