Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This.

GlutenStinks15

Recommended Posts

GlutenStinks15 Explorer
GlutenStinks15
Posted

I was diagnosed a month ago and am still somewhat reeling. I have always been a label reader, now I'm just looking for gluten/wheat/barley/rye/farina/etc in addition to everything I was looking for prior to this.

 

I purchased this book: Open Original Shared Link to use as a guide. If something's in this book, then I look to purchase it but still check the label because I know that companies change ingredients and processing equipment/procedures at the drop of a dime.

 

I have found that Outback Steakhouse and Pizzeria Uno's have good gluten free menus and Outback even has a flourless brownie (and it's yummy.)

 

Trader Joe's was always someplace I shopped, now I'm there more often.

 

My symptoms are getting better, but I'm not sure how long it will be before they are gone.

 

Finding this site and the forums has been a great help. Until now I was just a voyeur, reading posts and getting information, but today I wanted to introduce myself, say hello, and say thank you to all of you because your posts are helping me every day.

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

Welcome, nice to meet you, and congratulations on starting your journey of healing :-)

IrishHeart Veteran
IrishHeart
Posted

Welcome to the family! :)

 

May I direct you to: 

 

(1) this thread for newbies

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 

 

and  

(2)   I recommend:

 

"Find Me Gluten Free"  for dining out

 

and

 

(3) I also recommend this must-read book:

 

Real Life with Celiac Disease

by Melinda Dennis and Daniel Leffler

 

Best wishes to you! we're here for you!

1desperateladysaved Proficient
1desperateladysaved
Posted

Greetings Glutey,

 

I hope all continues going well for you!

 

Diana

mickey1975 Newbie
mickey1975
Posted

Hi guys, my name is Michael I'm 38 years old and i've known for certain I have had celiac disease for about a year. However I do not know how long I've been living with this disease nor do I know the extent of the damage done. I have been avoiding things with gluten for the better part of a year but as of recent i've gotten serious about avoiding all things with wheat. My question is; does early or moderate stages of villious atrophy reverse its self over time if strict adherance to the proper diet is maintained?

 

psawyer Proficient
psawyer
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

mamaw Community Regular
mamaw
Posted

Hello & Welcome....you  have found  a  great  place  ......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anti-soprano Apprentice
anti-soprano
Posted

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

cyclinglady Grand Master
cyclinglady
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Wow!  That's what I want to hear from my doctor in five years!!!!!  I have complete confidence that I will adhere strictly to the gluten-free diet, since I've been taking care of my gluten-free hubby for the past 12 years and I've never glutened him (restaurants have though.....)  I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

Thanks!

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

Thank you all for your replies :)

When I first got diagnosed I felt really lost until I found this forum.

 

Michael, the first thing I did was research, research, research. The more you know about gluten, and especially what ingredients it is hiding in, the better armed you are to keep it out of your stomach! I went to see a nutritionist twice, and am constantly emailing companies for information.

IrishHeart Veteran
IrishHeart
Posted

 I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

There are many of us on here who can tell you they are well and healing. Some of us came back from the "walking dead" even.

 

Hang in there. Time and patience. These two things are essential. :)  

w8in4dave Community Regular
w8in4dave
Posted

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

eers03 Explorer
eers03
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Thanks for sharing this.  VERY encouraging!

notme Experienced
notme
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....  ;)

 

welcome to the best club you never wanted to join lolz 

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

IrishHeart Veteran
IrishHeart
Posted

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

 

Yaay!! Your positive attitude will help your recovery and adaptation to this "new normal" more than anything else!! :)

IrishHeart Veteran
IrishHeart
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

 

yes, we DO know you  :lol:  and yes, "the best club you never wanted to join" --classic!!!

 

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

 

Yaay!!  :lol: hang in there, hon--it gets better and better!

HarryCat Newbie
HarryCat
Posted

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

HC,

Things really will improve. In a little over four weeks my symptoms are reduced. It can take many months for them to completely go away (I am told) but you will see and feel the change.

My stomach cramping went away rather quickly, and that was the most painful symptom for me. Sometimes I'd be doubled over...

Hang in there!!

eers03 Explorer
eers03
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

Well said.  I'm kinda feeling the same way.  It helps me a lot.

GottaSki Mentor
GottaSki
Posted

Welcome!!! 

 

I'm stealing from Notme....

 

The most awesome club you never wanted to join!!!  or something like that ;)

 

We've all been thru it...so hang out and keep laughing -- it really does make everything better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    3. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    5. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.