Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

But It's Not Gluten-Free!


bartfull

Recommended Posts

bartfull Rising Star

I just went to a farmer's market type thing right down the street from my shop. There were several vendors with baked goods for sale, quite a few of which were marked gluten-free. I questioned the people and sure enough, they were all baked in the same pans in the same kitchen with gluten foods. Some were made with regular oats. Most were even baked at the same time as the gluten foods, on the same oven rack.

 

A tourist stopped in and said she had just been there and bought a gluten-free muffin. I told her I had questioned the people (she should have too - she was diagnosed 7 years ago and should know better) but she said she was glad I told her so she could give the muffin away.

 

I wonder how many people are going to get sick today because of this. :angry:

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I just went to a farmer's market type thing right down the street from my shop. There were several vendors with baked goods for sale, quite a few of which were marked gluten-free. I questioned the people and sure enough, they were all baked in the same pans in the same kitchen with gluten foods. Some were made with regular oats. Most were even baked at the same time as the gluten foods, on the same oven rack.

 

A tourist stopped in and said she had just been there and bought a gluten-free muffin. I told her I had questioned the people (she should have too - she was diagnosed 7 years ago and should know better) but she said she was glad I told her so she could give the muffin away.

 

I wonder how many people are going to get sick today because of this. :angry:

The baker probably had good intentions and probably didn't know.

notme Experienced

 

 

I wonder how many people are going to get sick today because of this. :angry:

one less, because of you :)  

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon.  hopefully, the people who need to ask the questions will ask them.  i wish people understood this better :(  if you gluten me i lose 14 days.  four.  teen.  days.

Brandiwine Contributor

I hope they learned from your questions that its more serious than they are treating it! I am glad they are making the effort though I would love to be able to buy gluten-free baked goods at my local farmers market!

IrishHeart Veteran

one less, because of you :)

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon.  hopefully, the people who need to ask the questions will ask them.  i wish people understood this better :(  if you gluten me i lose 14 days.  four.  teen.  days.

 

 

yes, what she said!!!

 

Barty, my sweet friend...you GET IT, :)  but sadly, many who should be more aware of what they need to to do stay safe, do not.

 

Education is the key. 

bartfull Rising Star

The tourist, a confirmed and experienced celiac, was from Denver. I guess in Denver people are a lot more celiac-aware and if something is marked gluten-free, you can count on it BEING gluten-free. But one of these bakers at the market is the same lady I called a few months ago when a friend picked up a "gluten-free" muffin for me. I wasn't about to eat it until I knew how it was made. I explained CC to this baker in detail and told her (nicely) that if a celiac ate her wares, they would get sick. She's STILL hawking this stuff! Ticks me off to no end. KIDS might buy this stuff!

 

I think there should be a law. If someone made something they declared peanut-free when it really wasn't, they'd get sued at the very least, and probably arrested for endangerment or something. Why do people think celiac isn't to be taken seriously?!

IrishHeart Veteran

 Why do people think celiac isn't to be taken seriously?!

 

 

That..my friend, is the  $64, 000 question!! beats me. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CommonTater Contributor

That reminds me of our last trip to Albertson's. They carry a brand of sandwich meat and cheese that is gluten free in the deli. The girl that generally waits on us wasn't there last Wed. She is as good as gold because her Mother has celiac. A different guy was behind the counter so I made sure to tell him I had to be careful. He had just waited on another lady who bought another brand, not gluten free. I turned for a moment to look at something and when I looked back he was using the same slicer, there was another slicer that had been cleaned beside him. So I did say, excuse me, did you clean that slicer and did you change gloves? The look he gave me made me feel bad so I said, I'm sorry but if I eat that it'll make me terribly sick. He got an attitide and slung the meat in the trash. At this point I said, I'm sorry I've changed my mind, I better just pass and we decided to just leave.

Another lady walked up to me on the way out and said, he had emptied trash before the previous customer and didn't change gloves before cutting her meat. I wanted to know how she knew all this and she said she'd been waiting to get some ham and cheese but changed her mind. No, I didn't tell the manager. I should have but I just couldn't stand knowing I might have caused him to lose his job, now I feel guilty that he might make someone sick.

I get so tired of people making me feel guilty and yes embarrassing me. Some people just don't get it.

The last time I got sick from cross contamination it took me 3 weeks to start to recover!

Brandiwine Contributor

That reminds me of our last trip to Albertson's. They carry a brand of sandwich meat and cheese that is gluten free in the deli. The girl that generally waits on us wasn't there last Wed. She is as good as gold because her Mother has celiac. A different guy was behind the counter so I made sure to tell him I had to be careful. He had just waited on another lady who bought another brand, not gluten free. I turned for a moment to look at something and when I looked back he was using the same slicer, there was another slicer that had been cleaned beside him. So I did say, excuse me, did you clean that slicer and did you change gloves? The look he gave me made me feel bad so I said, I'm sorry but if I eat that it'll make me terribly sick. He got an attitide and slung the meat in the trash. At this point I said, I'm sorry I've changed my mind, I better just pass and we decided to just leave.

Another lady walked up to me on the way out and said, he had emptied trash before the previous customer and didn't change gloves before cutting her meat. I wanted to know how she knew all this and she said she'd been waiting to get some ham and cheese but changed her mind. No, I didn't tell the manager. I should have but I just couldn't stand knowing I might have caused him to lose his job, now I feel guilty that he might make someone sick.

I get so tired of people making me feel guilty and yes embarrassing me. Some people just don't get it.

The last time I got sick from cross contamination it took me 3 weeks to start to recover!

I would have felt the same way, but it doesn't sound like you were rude and you did explain yourself saying it would make you sick. It's hard knowing you may cause some one else grief by complaining, but he didn't seem to mind causing you to be ill either. It is part of his job to serve you politely. He won't learn otherwise and you shouldn't have to pass on your food, for us safe places are like gold! It would be a shame for you to have to pass every time you see him working the slicers :-/

shadowicewolf Proficient

The tourist, a confirmed and experienced celiac, was from Denver. I guess in Denver people are a lot more celiac-aware and if something is marked gluten-free, you can count on it BEING gluten-free. But one of these bakers at the market is the same lady I called a few months ago when a friend picked up a "gluten-free" muffin for me. I wasn't about to eat it until I knew how it was made. I explained CC to this baker in detail and told her (nicely) that if a celiac ate her wares, they would get sick. She's STILL hawking this stuff! Ticks me off to no end. KIDS might buy this stuff!

 

I think there should be a law. If someone made something they declared peanut-free when it really wasn't, they'd get sued at the very least, and probably arrested for endangerment or something. Why do people think celiac isn't to be taken seriously?!

Where at in Denver? I've yet to see it.

 

At any rate, the target population is probably those on the fad or those who aren't celiac but just sensitive.

RaeDawnMarie721 Newbie

This is all terrifying, in my opinion. Like someone said regarding the baked goods, a child could buy one of those muffins and end up incredibly sick! And...well, this might seem nasty but I've been working with the public for years now. The customer is always right whether the customer is right or not (which, trust me, you were right). The manager should have been informed. It's not okay to get snippy with or around the customers, and it's not okay to make people sick...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

powerofpositivethinking Community Regular

i'm one of those people who has always washed my hands...all. the. time.  pre-gluten free, and even more gluten free.  YUCK is right  :P

it's not okay to make people sick...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

frieze Community Regular

...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

 

 

lacking education, many persons in food service treat gloves as self protection only.  when I worked food service, it was well before glove wearing came into common practice....and we were taught as good or better hand hygiene than when I went to nursing school.

liko73 Newbie

good to know this, thanks.

  • 1 month later...
Renegade Contributor
The last time I got sick from cross contamination it took me 3 weeks to start to recover!

 

This is scary, how the hell can Cross contamination be so bad, you are ingesting a insanely tiny amount of gluten, eating it would be in such a bigger proportion. I don't get how cross contamination can be so bad, specially after healing has been done.

bartfull Rising Star

Renegade, it is because our immune system reads gluten as a foreign invader and attacks, but instead of attacking the gluten, it attacks US. Think about how our bodies respond to one microscopic germ or virus - all of the symptoms of a cold are caused by our immune system trying to get rid of it. In the same way, one microscopic bit of gluten makes our immune system go into full fighting mode.

mbrookes Community Regular

Renegade, as I understand it:

Ingesting gluten is not like taking poison. The more you take the stronger the reaction. Even a tiny bit of gluten sets up a physical reaction that is dependent on the fact that you ate ANY gluten, not on how much you ate. Hope that helps.

megsybeth Enthusiast

I think you could suggest to them that they label them "wheat free". For me, this is clearer that they are going for health-conscious people. Peet's Coffee carries a wheat free muffin and when you ask them about it, same thing, shared facility, bumping all around with gluten products. But there is a market that just wants to avoid wheat, so I get that it's not for me. I think the label "gluten free", should be reserved for products made by people who know what it is and why it's important.

MissyBB Explorer

 

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon. 

 

I wonder how many people were "saved" by the gluten-free fad though? Here is what I mean........at the pushing of my hubby, we started a Paleo diet in April. It was then, when I was not eating wheat, that I realized how damned GREAT I felt and how many symptoms that had plaguing me went away. And, sure enough, when I re-introduced wheat they allllll came back, but worse! Now that I have been gluten-free for nearly four months I realize how awful I had felt for years and years. I am actually convinced that, at the very least, I have NCGS and I am going to go get the antibody test. 

 

Point is, I wonder how many people this "fad" helped to open their eyes?

 

But, yes, I also understand what you mean......I hate it when fads like this come and go. It demeans the seriousness of diseases like celiac for those who really do suffer. 

 

I have run an organic co-op through the ONFC for years now and I can tell you that the number of people who have come through as a "fad" to eat organic, and then gluten-free have been many......people think it's "cool" to be into the latest and greatest eating fad.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.