Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Tests For My Daughter!

greenbeanie

Recommended Posts

greenbeanie Enthusiast
greenbeanie
Posted

Hooray! I know this is just about the only group of people on the planet who can understand why I'm so HAPPY to get positive results! After years of knowing something is very wrong with my child but having no answers, my four-year-old's blood tests all came back clearly and obviously positive:

 

TTG-IGA: 65 (over 4 positive)

DGP-IGA: 69 (over 20 positive)

DGP-IGG: 39 (over 20 positive)

 

The soonest we could get in to see the pediatric GI doctor is July 22, but that was before the blood test results came back. I'll be calling as soon as they open to see if they can get her in before then. I'm fine with them doing an endoscopy to confirm, but I have no doubt whatsoever that she really has celiac. (And this makes me even more convinced that my own blood tests were false negatives - but time will tell...)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


powerofpositivethinking Community Regular
powerofpositivethinking
Posted

so happy that you're getting answers!!  i'd say those look like pretty positive results  :) good luck, and I hope they are able to get her in sooner!

Hooray! I know this is just about the only group of people on the planet who can understand why I'm so HAPPY to get positive results! After years of knowing something is very wrong with my child but having no answers, my four-year-old's blood tests all came back clearly and obviously positive:

 

TTG-IGA: 65 (over 4 positive)

DGP-IGA: 69 (over 20 positive)

DGP-IGG: 39 (over 20 positive)

 

The soonest we could get in to see the pediatric GI doctor is July 22, but that was before the blood test results came back. I'll be calling as soon as they open to see if they can get her in before then. I'm fine with them doing an endoscopy to confirm, but I have no doubt whatsoever that she really has celiac. (And this makes me even more convinced that my own blood tests were false negatives - but time will tell...)

1desperateladysaved Proficient
1desperateladysaved
Posted

IT is so good to know you have celiac, when you do!  I am happy for you and your daughter.  Sorry about the diet, but I think it is a piece of cake compared to living with celiac and gluten!

nvsmom Community Regular
nvsmom
Posted

:)  I hope she feels better really soon! Congrats on finding out.

greenbeanie Enthusiast
greenbeanie
Posted
  • Author

They got us in for an appointment with the pediatric GI doctor in four days, and they've already scheduled the endoscopy for the day after that! Things are finally looking up. Thanks for your support, everyone. I am not worried about the difficulty of a gluten-free diet at all - I know it will be challenging when we travel, but it will be so much less of a struggle than what we've gone through to get to this point. I can't wait to get my calm, happy girl back!

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

fantastic news!!!  very happy for you and your daughter that things are moving in the right direction  :D

They got us in for an appointment with the pediatric GI doctor in four days, and they've already scheduled the endoscopy for the day after that! Things are finally looking up. Thanks for your support, everyone. I am not worried about the difficulty of a gluten-free diet at all - I know it will be challenging when we travel, but it will be so much less of a struggle than what we've gone through to get to this point. I can't wait to get my calm, happy girl back!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,515
    • Most Online (within 30 mins)
      7,748
    Scorwin
    Newest Member
    Scorwin
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.