Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushrooms

designerstubble

Recommended Posts

designerstubble Enthusiast
designerstubble
Posted

Ok... Just read this...

Open Original Shared Link

Anyone know if this is for real??!! Really? Grown on rye and wheat? I haven't had many mushrooms as my diet has been so limited because of allergies.. But I was just about to re introduce this weekend! The idea of consuming ANY gluten puts me off completely, I'm gutted, I was so excited about eating some shrooms tonight!

Anyone else eat or not eat shrooms? Be interested in anyone's opinions. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

I have no issues with them.

Adalaide Mentor
Adalaide
Posted

I eat shrooms whenever and however much I want. Never had an issue. I wash them well with a shroom brush and cut off the bottom of the stems, if I'm even using them, where they'd be touching whatever they're growing on. Different shrooms are grown in different ways and this has a lot more information about it. If we had to worry about gluten being in everything we ate that was grown in soil that glutenous grains had been tilled into we'd all be dying from ever eating any crop out of the midwest.

 

Open Original Shared Link

GFinDC Veteran
GFinDC
Posted

I eat mushrooms also, no problems from them either.  I get the whole mushrooms, not the pre-sliced ones.  That way it is simple to rinse them off and clean them.

dilettantesteph Collaborator
dilettantesteph
Posted

I have issues with them from the store.  I can eat them from a source that I know doesn't use grain derived materials.  I believe that am sensitive to very low levels of gluten and have problems with all sorts of things which I attribute to very low levels of gluten contamination.  I could be wrong about that.  I have talked to suppliers of mushroom spores to grow them myself, and all the sources I contacted said that they used gluten grain materials to grow the mushrooms.

notme Experienced
notme
Posted

I eat mushrooms also, no problems from them either.  I get the whole mushrooms, not the pre-sliced ones.  That way it is simple to rinse them off and clean them.

me, too.  but i'm also fine with the sliced ones, i just have a harder time cleaning them.  truth be told, i probably have eaten the 'dirt' more than once and do not get a gluten reaction.  even if i can't see it, my body would know - antibodies fight things as small as germs so they wouldn't miss a chance to fight gluten if there was any.  so, i guess there wasn't :)

designerstubble Enthusiast
designerstubble
Posted
  • Author

I have issues with them from the store. I can eat them from a source that I know doesn't use grain derived materials. I believe that am sensitive to very low levels of gluten and have problems with all sorts of things which I attribute to very low levels of gluten contamination. I could be wrong about that. I have talked to suppliers of mushroom spores to grow them myself, and all the sources I contacted said that they used gluten grain materials to grow the mushrooms.

thats interesting, thanks... Just wondered, what kind of issues do you experience with them? Does it feel like a glutening?
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


designerstubble Enthusiast
designerstubble
Posted
  • Author

I eat shrooms whenever and however much I want. Never had an issue. I wash them well with a shroom brush and cut off the bottom of the stems, if I'm even using them, where they'd be touching whatever they're growing on. Different shrooms are grown in different ways and this has a lot more information about it. If we had to worry about gluten being in everything we ate that was grown in soil that glutenous grains had been tilled into we'd all be dying from ever eating any crop out of the midwest.

Open Original Shared Link

Great link thanks!! Very interesting... Will go into it properly as I only had time for a quick scan... Though must admit I didn't read anything mentioning gluten grains for growing in any of it... Might have missed it though! Thanks for your help. :)
designerstubble Enthusiast
designerstubble
Posted
  • Author

Thanks everyone... I wonder just how many mushroom farms do use gluten grains? Anyway. I ate about 6-7 button cooked shrooms tonight on my salad... They were so tasty, cooked with garlic! Delish! Am waiting to see what happens to my gut. So far... So good. Keeping it crossed. I'd like to keep them in my diet. Must admit though I do worry about being contaminated without knowing (ie not displaying any symptoms) as my gi symptoms before diagnosis weren't that bad (not good, but not dreadful!)... Thanks again everyone...

psawyer Proficient
psawyer
Posted

You need to remember that plants, or fungi, can be contaminated during harvesting, but the plant/mushroom itself does not absorb the gluten as a nutrient and then store it for you to find later.

I eat mushrooms almost every day, and have done so for years and years. If you want something to worry about, consider the gal who ate a sandwich for lunch, and then shopped later. Did she pick up a mushroom from the bin and decide not to select that one, putting it back? That is a credible, although truly minimal, risk. I clean my mushrooms with a dry mushroom brush. No problems so far. Thirteen years and counting.

designerstubble Enthusiast
designerstubble
Posted
  • Author

You need to remember that plants, or fungi, can be contaminated during harvesting, but the plant/mushroom itself does not absorb the gluten as a nutrient and then store it for you to find later.

I eat mushrooms almost every day, and have done so for years and years. If you want something to worry about, consider the gal who ate a sandwich for lunch, and then shopped later. Did she pick up a mushroom from the bin and decide not to select that one, putting it back? That is a credible, although truly minimal, risk. I clean my mushrooms with a dry mushroom brush. No problems so far. Thirteen years and counting.

Thanks for that! Yes, I think you're right... And I'm glad, I love shrooms... Must admit they gave me lots of gas!! Not sure if that's normal but I'm willing to give it another go! Gonna buy myself a mushroom brush :)
dilettantesteph Collaborator
dilettantesteph
Posted

thats interesting, thanks... Just wondered, what kind of issues do you experience with them? Does it feel like a glutening?

 

It does feel like a glutening, but let me repeat that I believe that I react to very small amounts of gluten.  These amounts are way below the just under 20 ppm allowed in gluten-free foods, to which the experts say that the vast majority of celiacs don't react.  The experts would say that there is no reason to worry if you can eat those without problems.

 

These have some information that includes a mention of grains: Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

I also eat mushrooms often and have never had a problem and  I often just wipe them well with a damp cloth. 

I have a veggie brush, too.

My chef friend peels the cap when she makes stuffed 'shrooms, but I see no need for that and we have spirited "amateur vs. pro chef disputes" -all in good fun. of course.. 

and of course, no one can tell whose shrooms are "better"--peeled or unpeeled. :D

(mine are)

 

My French Canadian Grandma had an expression for when any of us whined if something we thought maybe had a teensy speck

of dirt on it from the garden....she'd say "you have to eat a peck o'dirt before you die, baby. Don't worry about it.". :)

designerstubble Enthusiast
designerstubble
Posted
  • Author

It does feel like a glutening, but let me repeat that I believe that I react to very small amounts of gluten. These amounts are way below the just under 20 ppm allowed in gluten-free foods, to which the experts say that the vast majority of celiacs don't react. The experts would say that there is no reason to worry if you can eat those without problems.

These have some information that includes a mention of grains: Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D
designerstubble Enthusiast
designerstubble
Posted
  • Author

I also eat mushrooms often and have never had a problem and I often just wipe them well with a damp cloth.

I have a veggie brush, too.

My chef friend peels the cap when she makes stuffed 'shrooms, but I see no need for that and we have spirited "amateur vs. pro chef disputes" -all in good fun. of course..

and of course, no one can tell whose shrooms are "better"--peeled or unpeeled. :D

(mine are)

My French Canadian Grandma had an expression for when any of us whined if something we thought maybe had a teensy speck

of dirt on it from the garden....she'd say "you have to eat a peck o'dirt before you die, baby. Don't worry about it.". :)

Lol, I agree with your wise granny!! She's right! It's good to hear so many celiacs eating shrooms with no probs, it's unfortunate that they can't grow all of them on logs. I wish I has the time to grow my fruit & veg, I love fresh garden produce! Maybe one day when I live in Spain again hey?! ;) thanks for your response, blighty hugs!
kareng Grand Master
kareng
Posted

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D

I consider wine a whole food.

Get your blood levels checked every year as is recommended. That should help you see if you are reacting to something on a regular basis.

IrishHeart Veteran
IrishHeart
Posted

cheers.gif ditto 

 

I consider wine a whole food.
 

come dance with me Enthusiast
come dance with me
Posted

These are the one thing I've not tried growing, but we have no problem with the store bought ones.  All I could think of is that if they were the loose ones you put in the bag, do you think someone came along with bread or biscuit crumbs on their fingers and maybe touched some that you ate?  I know it sounds unlikely, but not impossible. 

dilettantesteph Collaborator
dilettantesteph
Posted

Great links again thank you :) bloody grains though eh? Can't get away from them! I must say I have no idea if I react to gluten free products as u don't eat them. I know I react badly to corn, so avoid that also. I generally only eat whole foods except for rice cakes and occasional potato chips. And red wine! That's it tho. Just a last question... Could it be the case that someone would be internally reacting to low levels of gluten but remain symptom free? I often wonder this...(!!) my paranoia :D

 

I can appreciate that concern.  I am so symptomatic at such low levels that I have to be happy with symptom free.

 

One thing about symptom free: I don't about you, but when I got my diagnosis and went gluten free I had all sorts of symptoms resolve, not just the obvious ones that had led to the diagnosis.  I had no idea how many things were being caused by celiac disease.  I think that at least some of those "symptom free" people are not symptom free at all, they are just ignorant of their symptoms.  Now that you are educated about your own symptoms, you would likely be aware if some were to come back.  Does that reassure you a bit?

Celtic Queen Explorer
Celtic Queen
Posted

I have a reaction to mushrooms, but it's not a gluten reaction.  I'm finding the my system doesn't react well to certain foods, especially those with histamine, so I attribute it to that, not any sort of gluten.  The mushrooms give me a headache.

kareng Grand Master
kareng
Posted

My SIL is allergic to mushrooms.  Some chicken/veggie broths have mushrooms in them.  When she is coming over, I have to remember to check the broth I   use to  make food

IrishHeart Veteran
IrishHeart
Posted

I have a reaction to mushrooms, but it's not a gluten reaction.  I'm finding the my system doesn't react well to certain foods, especially those with histamine, so I attribute it to that, not any sort of gluten.  The mushrooms give me a headache.

 

I have a histamine intolerance but for some reason, those do not bother me.

Too much red wine, hard cheese and tomatoes, though....oh boy. :(

designerstubble Enthusiast
designerstubble
Posted
  • Author

Interesting stuff, thanks everyone for sharing...

Irish... what symptoms do you get with histamine intolerance??? Just wondering? Is it GI? ;)

IrishHeart Veteran
IrishHeart
Posted

I get lots of them, inclduing GI stuff.

Here, read this

 

Open Original Shared Link

Celtic Queen Explorer
Celtic Queen
Posted

For me it's more sinus related - runny nose, stuffy nose, sinus headache.  Unfortunately the wine does it to me too :( So I've had to stop drinking that.  And my cider too.  I found out by keeping a food journal on my i-phone and going to the site that Irish linked above.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748
    volivier
    Newest Member
    volivier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.  
    • trents
      Outgrow celiac?

      By trents · Posted

      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.