Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Bleeding A Thing?


BrennanaBread

Recommended Posts

BrennanaBread Rookie

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi BrennanaBread and Welcome.

 

I don't get anything as severe as yours but I do get the majority of them in the Winter.  I'm assuming you have been checked out and have ruled out anything serious?  

 

As I say to my Hubs when I can't do anything about something....Good Luck With That !  :D

 

Colleen

nvsmom Community Regular

I don't know either but I wouldn't be surprised. I used to get bad nosebleeds as a child - I remember a six hour one on Christmas once. Bleach! After that I had my nose cauterizd and that helped.

My 11 year old used to get nosebleeds a few times a week, especially in the winter, but since going gluten-free it has improved.... Could be a coincidence though.

Thrombocytopenia is related to celiac disease and can lead to nose bleeds, and it is related to celiac disease. it means your body is attacking your platelets so you aren't clotting. This could also include easy bruising, bleeding gums, petechia, anemia, and very heavy periods. It is not very common though and if you don't ave other symptoms, I wouldn't worry.

I believe, and I am not sure of this, that low potassium can lead to bleeding too.

powerofpositivethinking Community Regular

Welcome!

 

I didn't get nose bleeds, but I would end up with these random bruises, so when I got my vit/min levels tested, I expected to be anemic.  It turns out I wasn't anemic and instead was Vitamin K deficient.  Vit K deficiency can cause nose bleeds.  check out this link:

 

Open Original Shared Link

 

 

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

shadowicewolf Proficient

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

BrennanaBread Rookie

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

 

Yes, I went to an ENT up north and he refused to cauterize my nose and instead told me to put Bacitracin in my nose every day. I asked him if I could use Aquaphor (since I have a full container because that's what I heal tattoos with) and he said no, because "it's water based". It's petroleum based. Nimrod. My hematologist heard what he'd said and told me "Well, we'll find you someone....smarter."

 

I've also seen said hematologist because my mother has an autoimmune disease called aplastic anemia which causes her to bleed uncontrollably when she's injured or has a nosebleed. I was tested for a bunch of blood related diseases, and came up negative for everything. It's good to know that celiac disease can cause issues with that. Thank you for your input!

IrishHeart Veteran

actually, I do recall reading that nosebleeds are an associated condition with celiac.

 

"CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained"
found here:
 
Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

BrennanaBread Rookie

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

 

 

 

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

GretaJane Newbie

Vitamin K deficiency causes nosebleeds because its needed for clotting. Take a supplement and eat your dark leafy greens!

NoGlutenCooties Contributor

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

I'm so glad I'm not the only one who has done this!  :ph34r:

BrennanaBread Rookie

I'm so glad I'm not the only one who has done this!  :ph34r:

 

My tenth grade English teacher proudly told us of a horrible nosebleed she had as a preteen and going to the hospital and having a tampon pulled up through her throat and into her nasal passage. You're SO not the only one! If it fits and it's absorbent and sterile, it's been used!

NoGlutenCooties Contributor

Those things are darn useful.

 

I don't know if this is really true or just another urban legend that got propagated via the Internet, but someone claiming to be the mother of a soldier overseas said that they have been used to plug wounds on the battlefield in an emergency when that was all that was within reach.  :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.