Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vaccinations?


designerstubble

Recommended Posts

designerstubble Enthusiast

Any advice regarding vaccinations... Celiac UK recommends vaccinations for flu, meningitis and a few others! I'm not a great fan of injecting myself with foreign rubbish but I have had a lot of colds/infections this year...

Apparently vaccinations are imperative if your hyposplenic. How would you know if your hyposplenic?!!

Any thoughts on vaccinations for celiacs welcome thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No Celiac reason not to have the vaccinations you need.

Is it okay to get a flu shot if I have celiac disease?

Yes, it’s fine to get a flu shot. The immune system of those with celiac disease has not been compromised. You should receive the same immunizations as healthy individuals.

Open Original Shared Link

Here is the only issue they have found:

Open Original Shared Link

Do persons with celiac diseases struggle with receiving a Hepatitis B vaccine that sticks?

It’s well known that persons with celiac disease have a higher rate of non-response to the Hepatitis B vaccine. Most of them, however, typically respond to repeat injections.

nvsmom Community Regular

I don't have a spleen and I don't vaccinate myself except for the pneumonia one every five years or so. Meningitis  is also recommended.

 

My doctors do like to push that I get the flu vaccine but I stopped doing it over a decade ago, and frankly I've been much healthier since I did that. I tended to "coincidentally" get the flu immediately following the shot with fevers, aches and headaches. Now I only get the flu every few years... But that's just me. I'm not a fan of vaccinating for common diseases like the flu of chicken pox.

 

Some celiacs getan enlarged spleen which was affected by the prediagnosis autoimmune attack. When the spleen is enlarged and under attack, it tends not to works as well but that usually resolves. This is only an issue because your white bloods cells attach to things like germs, and your spleen kilss off whatever is marked when your blood passes through it.  I don't have a spleen because it was killing off parts of my blood so they took it out - one of those autoimmune diseases related to celiac disease.   :rolleyes:

 

Flu season will be ending soon. Most who do flu vaccinations tend to do it in the fall when people start going indoors again.  If you've had the flu this year, I wouldn't worry about it now.  

 

I use homeopathy to treat flus and colds and to "vaccinate" against them in the fall. We've had great success with it over the past few years and it could be something to look into, although the medical establishment is not knowledgeable in that field and tend not to be supportive of it. A homeopath would be your best bet for help with it, with a naturopath an okay second choice.

 

Best wishes.

designerstubble Enthusiast

No Celiac reason not to have the vaccinations you need.

Is it okay to get a flu shot if I have celiac disease?

Yes, it’s fine to get a flu shot. The immune system of those with celiac disease has not been compromised. You should receive the same immunizations as healthy individuals.

Open Original Shared Link

Here is the only issue they have found:

Open Original Shared Link

Do persons with celiac diseases struggle with receiving a Hepatitis B vaccine that sticks?

It’s well known that persons with celiac disease have a higher rate of non-response to the Hepatitis B vaccine. Most of them, however, typically respond to repeat injections.

Thanks for that, that's interesting stuff, I will check the links out. I didn't know that about Hep B. I wonder why that is then? It's interesting also generally because on the UK website it seems as though they are insinuating that a celiacs immunity IS compromised therefore we need to protect against via vaccination.

I guess all of my colds/flu could just be because I have caught them off my 7yr old boy?! Thanks again :-)

designerstubble Enthusiast

I don't have a spleen and I don't vaccinate myself except for the pneumonia one every five years or so. Meningitis is also recommended.

My doctors do like to push that I get the flu vaccine but I stopped doing it over a decade ago, and frankly I've been much healthier since I did that. I tended to "coincidentally" get the flu immediately following the shot with fevers, aches and headaches. Now I only get the flu every few years... But that's just me. I'm not a fan of vaccinating for common diseases like the flu of chicken pox.

Some celiacs getan enlarged spleen which was affected by the prediagnosis autoimmune attack. When the spleen is enlarged and under attack, it tends not to works as well but that usually resolves. This is only an issue because your white bloods cells attach to things like germs, and your spleen kilss off whatever is marked when your blood passes through it. I don't have a spleen because it was killing off parts of my blood so they took it out - one of those autoimmune diseases related to celiac disease. :rolleyes:

Flu season will be ending soon. Most who do flu vaccinations tend to do it in the fall when people start going indoors again. If you've had the flu this year, I wouldn't worry about it now.

I use homeopathy to treat flus and colds and to "vaccinate" against them in the fall. We've had great success with it over the past few years and it could be something to look into, although the medical establishment is not knowledgeable in that field and tend not to be supportive of it. A homeopath would be your best bet for help with it, with a naturopath an okay second choice.

Best wishes.

Thank you so much, wow, no spleen. How did you know there were problems with it? Did you have symptoms?

I also am not in favour of vaccinations unless essential. I would never have thought of it until I read this article on the UK website. And then wondered about my own illness this winter. Don't get me wrong I haven't been dreadfully ill, I've had flu and a bad cold back to back. What I have noticed is that I seem to get hit by the germs worse than my son or husband. Colds seem to wipe me out more or hit me harder. But I guess I still have healing to do so think perhaps I just need to get my vit stats up. Interesting about homeopathy, I'm a great 'alternative' medicine follower. I use the term 'alternative' hesitantly as I believe western medicine to be more alternative than natural remedies!!!

I'm so glad that you live sans spleen so successfully, well done!! :-) respect to you for managing your health so well.

Thanks again nvsmom, greatly appreciated, :-)

nvsmom Community Regular

Thank you so much, wow, no spleen. How did you know there were problems with it? Did you have symptoms?

I also am not in favour of vaccinations unless essential. I would never have thought of it until I read this article on the UK website. And then wondered about my own illness this winter. Don't get me wrong I haven't been dreadfully ill, I've had flu and a bad cold back to back. What I have noticed is that I seem to get hit by the germs worse than my son or husband. Colds seem to wipe me out more or hit me harder. But I guess I still have healing to do so think perhaps I just need to get my vit stats up. Interesting about homeopathy, I'm a great 'alternative' medicine follower. I use the term 'alternative' hesitantly as I believe western medicine to be more alternative than natural remedies!!!

I'm so glad that you live sans spleen so successfully, well done!! :-) respect to you for managing your health so well.

Thanks again nvsmom, greatly appreciated, :-)

 

Back to back cold and flu - nasty!

 

When I was about 18, I became really tired, was passing out at work (and on the bus - that was interesting LOL), and had a very heavy period that did not stop for over a cycle.  I had just started birth control pills a month or so before so I gave my symptoms more time than I should have as I thought my symptoms was related to getting used to that. Turned out I had ITP (idiopathic thrombocytopenia purpura) and my spleen was killing off my platelets so I couldn't stop bleeding. I was anemic for blood transfusions and couldn't clot for almost all bleeds. Meds and prednisone could stabalize me but I wouldn't stay stable for long, so they took out my spleen.  Luckily I was one of the 50% who that procedure works for.  :)

 

Over twenty years later, I've never had any serious problems with sickness. I tended to get sicker when I was an undiagnosed celiac, but homeopathic remedies really helped me over the last few years. For instance, When I used to get a cold, my nose would get so plugged I could not breath through it or blow it, I would get so feverish I would faint and walk into walls, and I would cough until I heaved. With remedies, my nose is not nearly as clogged, my fevers stay low or non-existent, and my cough is lessened. My whole family is helped by remedies although it varies from person to person.

 

I like mixing my medicinal styles too. I try to take the best from all worlds of medicine because I think only using one from of medicine (like allopathic) isn't addressing the whole health picture.

 

And thanks for the compliment.  :)

Gemini Experienced

Thanks for that, that's interesting stuff, I will check the links out. I didn't know that about Hep B. I wonder why that is then? It's interesting also generally because on the UK website it seems as though they are insinuating that a celiacs immunity IS compromised therefore we need to protect against via vaccination.

I guess all of my colds/flu could just be because I have caught them off my 7yr old boy?! Thanks again :-)

Actually, Celiac's have an over active immune system and the whole point of the gluten-free diet is to calm that down. I think it an advantage when you are sick because your immune system may over respond to invaders and, hopefully, kill off the virus sooner. On the rare occasion when I do get a cold, it seems to last only about 3 days.

I got all my vaccinations as a child but have not gotten any more as an adult. I never have had the flu shot but am in a very low risk group.....no kids. I do not take the pneumonia vaccine because I have never had it so why mess with a good thing? I think it all depends on the situation and your health issues. If you have lung problems, I probably would get the pneumonia vaccine. Doctors always try and scare people into having them but I know many people who do not take vaccines and live healthy lives. With young children in the house, most people have more colds or flu. And you know how deadly those kid germs are.......adults always suffer harder with the same germs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
designerstubble Enthusiast

Thanks Gemini... Yes I think you're right. Fortunately I don't catch every germ my son has, just the nasty ones... And probably because we are very close!

I like the fact that you said celiacs have an over active immunity... My recent 'flu' lasted only 5 days ( the worst of it) and I felt much better (before catching another infection!)... Everyone said it wasn't flu as I had gotten over it so quickly! But I'm sure it was, I had every symptom, chills, shivers, cough headache etc, bedridden for 3 days!

Well, fingers crossed that there's no more illness, I'm sick of being sick!!! Thanks my lovelies

Gemini Experienced

Yup...I swear I recover faster when on the rare occasion I do get sick because our immune systems are on higher alert than many others without Celiac.  It's good to give it something real to attack once in a while...... ;)

designerstubble Enthusiast

Gemini, I've been wanting to ask for 'your' celiac story for ages! You seem so well informed, and healthy now. I hope you don't mind me asking, but how did you get diagnosed, and what foods do you eat now? Do you have any intolerances or did you have any problems post dx? Hope you don't mind me asking :)

1desperateladysaved Proficient

Make sure to ask there is a paper in each vaccine batch.  Make sure there is nothing that you object to in your vaccine.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748

    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.