Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone Else Suffer After An Endoscopy?


Triomam

Recommended Posts

Triomam Rookie

Hi all

So I had an endoscopy for the first time yesterday morning after very high TTG IGA readings. I was ok afterwards...just a bit sore. Bbt I've been up all night with awful stomach pains and bloating. Today I look and feel like I've swallowed a football and am really uncomfortable and have a banging headache. I was awake,,,,,I didn't have sedation. The only thing I ate yesterday was a salad...as I couldn't eat before it and didn't want anything afterwards until tea time.

Anyone else?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

My son took a couple of weeks to recover.  It seemed to make him more symptomatic.  His symptoms were not the same as yours though.  He had reflux, vomiting, diarrhea, stomach pain, rashes, and brian fog.  I hope that you feel better soon.

NoGlutenCooties Contributor

I think if your symptoms aren't gone by today you should make sure your doctor is aware of what's going on - just to be safe.  Also, keep an eye out for any blood in your stool. 

WinterSong Community Regular

I had my endoscopy done twice (the first time they couldn't see anything because there was too much undigested food in my system :angry:). Both times I felt very sick afterwards. The first time, I remember eating a banana and feeling incredibly bloated and was unable to eat more. The second time, my appointment was later at 2:30 in the afternoon, so I didn't eat anything for about 18 hours. I think it was a combination of that and the anesthesia that made me so sick. I couldn't eat anything without feeling incredibly bloated. My mom (self diagnosed) has always reacted the same way with procedures that use anesthesia and require you to not eat for a length of time. 

 

Feel better!

Triomam Rookie

I had my endoscopy done twice (the first time they couldn't see anything because there was too much undigested food in my system :angry:). Both times I felt very sick afterwards. The first time, I remember eating a banana and feeling incredibly bloated and was unable to eat more. The second time, my appointment was later at 2:30 in the afternoon, so I didn't eat anything for about 18 hours. I think it was a combination of that and the anesthesia that made me so sick. I couldn't eat anything without feeling incredibly bloated. My mom (self diagnosed) has always reacted the same way with procedures that use anesthesia and require you to not eat for a length of time. 

 

Feel better!

Thank you all so much......

Winter song....your reply says your TTG was off the charts.what was it?

Thanks

C-Girl Contributor

Hi all

So I had an endoscopy for the first time yesterday morning after very high TTG IGA readings. I was ok afterwards...just a bit sore. Bbt I've been up all night with awful stomach pains and bloating. Today I look and feel like I've swallowed a football and am really uncomfortable and have a banging headache. I was awake,,,,,I didn't have sedation. The only thing I ate yesterday was a salad...as I couldn't eat before it and didn't want anything afterwards until tea time.

Anyone else?

Thanks

 

I was sick as a dog after mine for days. Stomach pains, I felt like I couldn't swallow - it felt like someone had tied a knot in my esophagus and/or was stabbing me in the chest. I also had a headache.

 

But, do be on the lookout for any fever - there was a rash of endoscopes last year that were still contaminated after being sterilized somehow. A bunch of people got sick.

WinterSong Community Regular

Thank you all so much......

Winter song....your reply says your TTG was off the charts.what was it?

Thanks

 

It was literally off the charts. I think my lab's top range was 300, and my tTg was somewhere higher than that. No way to determine the exact number.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Triomam Rookie

It was literally off the charts. I think my lab's top range was 300, and my tTg was somewhere higher than that. No way to determine the exact number.

Ewwww horrible thought re being contaminated coffngl!!!!

Thanks wintering......same as me.....range went to 300 and I'm somewhere over that.....struggling though to eat well gluten-free. I work long hours and am by myself with my children.....by the time they are in bed an I have to think about food usually it's bad enough...let alone trying to think if gluten-free new things...being veggie probably doesn't help .....

I'll get used to it.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    5. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
    • knitty kitty
      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.