Why Multiple Food Intolerances--Need To Vent!

[Maryw88]

Feeling a little overwhelmed and sorry for myself today. For the past 3 years I've been learning about my gluten intolerance.  I am intolerant of gluten, soy, dairy,  corn (and corn products such as vinegar and citric acid), gluten-free oats, quinoa and nightshades including tomato and potato.  This even includes liquor like potato vodka.  I know I'm SUPPOSED to be able to tolerate this....but I cant.  

 

So, basically, I've been strictly gluten free for about 1 1/2 years now.  I have severe heart burn.  Better with medication.  Most of my gluten symptoms such as numb limbs, face, etc.  and severe stomach upset and gas has gone away.  Its magic as long as I stay away from gluten and the other offenders.

 

At this point though I'm just angry.  I smile and say its no big deal.  I get by and there are lots of foods I can still eat.  I put on a brave face most days.  I am truly happy to have my health.   I keep holding out hope that some of these multiple intolerances will go away as I get better but........

 

 A part of me wants to say screw it, eat a bunch of gluten and call it a day.  I get really frustrated and sick of being "ok" with it.  Some days, it sucks!  I hate that I can't go out to eat anywhere like every other normal person.  I hate that people think I'm being picky.  I hate the sympathy I get from decent people.  Multiple intolerances SUCKKKKK!  I also hate that sometimes I get sick from foods that AREN'T gluten. Not fair!  It makes me so angry at my body.  

 

So, I just needed to b%$@# everyone. Needed to whine and throw a hissy fit!   Thanks for listening! 

[GottaSki]

You are right it does suck!

 

I have been gluten-free for nearly five years and everything else in my signature for two and half and histamines for over a year.  To make things more fun I have some okay periods of health, but then severe flare hits with no explanation -- leaving doctors continually stumped.

 

It is not fair -- when we do so much to improve our health and our body lets us down.

 

I hope you gain some of your foods back soon -- keep at it -- one day at a time and celebrate minor victories -- yep I keep telling myself that

[cahill]

Yeap it sucks big time!!! ,, right there with you .

I went into this kicking and screaming and stomping my feet .  I yelled at anyone who would listen ( and a few that did not want to listen) how unfair this was.

Still have my days   but it does get better .. may take a while but it dose get better ....Hang in there

 

I have gotten some foods back corn,  eggs , dairy ( made me  a very happy girl ) tomatoes    .......... 

 

but some foods gluten ( of course ) soy ( that stuff is in EVERYTHING !!!! )  potatoes ( I mean really potatoes ) almonds ,sesame seeds,shrimp ( really just shoot me now ) and a few others are still on the  never  to be had list

[Maryw88]

Yeap it sucks big time!!! ,, right there with you .

I went into this kicking and screaming and stomping my feet .  I yelled at anyone who would listen ( and a few that did not want to listen) how unfair this was.

Still have my days   but it does get better .. may take a while but it dose get better ....Hang in there

 

I have gotten some foods back corn,  eggs , dairy ( made me  a very happy girl ) tomatoes    ..........  but some foods gluten ( of course ) soy ( that stuff is in EVERYTHING !!!! )  potatoes ( I mean really potatoes )and a few others are on the  never  to be had list

How long did it take you to get some of those foods back?  I feel like 1 1/2 years is a long time but....well I MIGHT be impatient.    

[GottaSki]

I have gotten some foods back corn,  eggs , dairy ( made me  a very happy girl ) tomatoes   

 

Happy Dance here!!!

 

ya...i get my thrills wherever i can

[cahill]

How long did it take you to get some of those foods back?  I feel like 1 1/2 years is a long time but....well I MIGHT be impatient.  

 ,,, no sweetie you are not impatient you are being human

 

I have been gluten free since Oct 0f 2009 and soy free since Nov of 2010 ,, I truly believe my gut did not start to heal until I found and removed ALL of my intolerances and that takes time and resolve ( and one heck of a lot of screaming and foot stomping )

[bartfull]

I'm with you 100 percent!! I am intolerant to corn and soy, as well as having celiac. I haven't even TRIED gluten-free oats. I guess oats just aren't that important to me. Quinoa? I tried it once and gagged on it. Don't like it at all.

 

I lost nightshades too for a while. Now, after being away from them for a few months I have discovered that I can eat an OCCASIONAL potato, or a few potato chips as long as I don't overdo it.

 

Corn has been the biggest problem for me. Makes me sicker than gluten and it IS in everything.

 

And I hate to cook. I live on bison, rice, and broccoli for the most part. Yeah, I get sick of it, but it fills the hole in my stomach. I would LOVE to be able to eat in restaurants, but I won't do it. The closest safe places (Outback and a gluten-free pizza place) are over an hour away. So I just throw my "mush" in a bowl and live with it.

 

Like you, mostly I'm OK with it, but every once in a while it gets to me. I just keep telling myself it could be worse, I can still do the OTHER things I love, and, and, and...

 

Yeah. It sucks.

[cahill]

 

 

Corn has been the biggest problem for me. Makes me sicker than gluten and it IS in everything.

 

.

This is what soy is for me. It makes me sicker than gluten ever did and ( like corn ) is in everything.

[bartfull]

Yeah, on those VERY rare occasions I find something that is corn-free, it is sure to have soy in it.  But the problem with corn is that unlike soy, it is not one of the "big 8", so if it is used in processing they don't have to label it. That is why I have only been glutened ONCE since all this started, but I have been corned many times.

[cahill]

I have seen  posts in these forums saying things like "celiacs does not define me"  or "celiacs  does not control my life"

 

When I see these statements I am saddened and feel sorry for my self ( not an attractive thing ) . For me my body's intolerances do control my life. I cant eat out,nor can I eat something some one else prepares with out getting sick.  I am continually evaluating foods / judging my bodys reactions to those foods.My life revolves around the food that I ingest and whither or not I have a reaction to that food

 

.

Yeap this sucks !

[GottaSki]

I have seen  posts in these forums saying things like "celiacs does not define me"  or "celiacs  dose not control my life"

 

When I see these statements I am saddened and feel sorry for my self ( not an attractive thing ) . For me my body's intolerances do control my life. I cant eat out,nor can I eat something some one else prepares with out getting sick.  I am continually evaluating foods / judging my bodys reactions to those foods.My life revolves around the food that I ingest and whither or not I have a reaction to that food

 

.

Yeap this sucks !

 

Very true and I've thought the same thing often....and yes it is extremely frustrating to continually be patient...and there are days when I want to scream...yep this sucks!

 

Then I have a good day...today didn't suck as much.

[cahill]

Very true and I've thought the same thing often....and yes it is extremely frustrating to continually be patient...and there are days when I want to scream...yep this sucks!

 

Then I have a good day...today didn't suck as much.

 

 we carry on and at some point the good days do start to out number the bad days

 

 

 I did  mention that I got diary back 

I can not begin to describe  how happy this made me :D

[cyclinglady]

Ugh!  My intolerances and allergies have not improved.  Now, I need to keep to a low carb diet.  Will it ever end?  

 

I sat and drank an ice tea today while my parents munched on Chicago style Italian Beef sandwiches.  I assured them that I was happy not to be getting glutened.  The risk of even ordering a salad seemed too great.  I am glad they enjoyed themselves and I waited until I got home to have a delicious salad with chicken.  That's what I miss.  Eating out without pre-planning!  

 

I am fortunate that my husband is gluten free too.  I guess we were meant to be together!  That keeps me on track.  

[Pegleg84]

If the only thing I had to worry about was gluten, I'd be quite happy.

Instead, soy is the bane of my existence, dairy (while the least of my worries) is a no no, eggs make me all shaky, my gut just doesn't want to deal with things that should be good for me like quinoa and brown rice, or too much of anything at once, really. I'm kind of in the same boat as GottaSki (almost 5 years gluten-free, about 2 1/2 dairy free, 2 soy free). It's a pain in the ass, but when it comes down to it, I would much rather be paranoid and extra careful than end up sick for a week. It's better to focus on the good things about staying away from the stuff that bothers you, than the bad things about having to (I keep telling myself).

But when you find out that the chocolate in the trail mix you bought last time now has soy in it (!!!!!!!), and you bring your little container of stuff to the potluck rather than eat all the nice food, yep, it's tough.

 

So lets all be tough together, and keep hoping that some day we can eat some cheese on occasion without worry

[salexander421]

I would recomend either doing the GAPS diet or paleo autoimmune protocol for gut healing.

[Maryw88]

I would recomend either doing the GAPS diet or paleo autoimmune protocol for gut healing.

I tried GAPS but I couldn't tolerate all the fermented veggies.  Turns out the corn based vinegar was killing me.  Thats actually how I discovered I was corn intolerant!  Ha!  

[Maryw88]

Thanks everyone!  Sometimes you just need to know you are not the only one in this cruddy boat?  I really appreciate everyone's replys.  I totally agree, gotta be tough and gotta be positive.  I just couldn't smile about it yesterday.  Reading everyone's experiences does help though.  Maybe one day we will all get dairy back!!!  It can happen!  

[notme]

So lets all be tough together, and keep hoping that some day we can eat some cheese on occasion without worry

amen! 

 

i do brave the soy on occasion.  if i am careful not to have too much, it seems to be ok.  i avoid it most of the time, though.  no sense in Angering the Beast for No Good Reason   

[SinGlutenRocks]

Hello everyone!

 

I was diagnosed with celiac disease a year and a half ago and was just getting used to eating gluten free food and being fine with it all when suddenly the bellyaches started up again  - and guess what.. yesterday I was diagnosed with fructose intolerance on top of being celiac. 

 

I´m really desperate to find out if anybody else has the same problem and I really nead advice on how to deal with this from now on? I heard there´s lots of fructose in some of the gluten free products and I just don´t know what I can eat at all anymore. 

 

Thanks for reading this and listening, hope to talk to you soon! 

[dilettantesteph]

I think that when there are a whole bunch of food intolerances, there is likely something else going on.  Have you been working with a doctor?  Do you keep a food diary?  There are many possibilities.  In my case, I found that I could eat certain foods from my garden but not from certain other sources.  I'm not sure what the common thread is, but I'm working on it.

 

I hope that things improve for you.

[1desperateladysaved]

Yep, it can be hard.  But I think my life with gluten was very much harder.   Therefore, multiple allergies seem light.  I am becoming the detective, more cunning than all of the mystery books when I was a kid.  So, it sharpens ones mind.

 

Pretty sure my family would be without me (Or certainly wish they were) if gluten and foods I am intolerant of lived at my house.

 

I take inventory when feeling down on my limitations.  I check to see what has improved.  NO WAY do I want to go back.

[GottaSki]

Hello everyone!

 

I was diagnosed with celiac disease a year and a half ago and was just getting used to eating gluten free food and being fine with it all when suddenly the bellyaches started up again  - and guess what.. yesterday I was diagnosed with fructose intolerance on top of being celiac. 

 

I´m really desperate to find out if anybody else has the same problem and I really nead advice on how to deal with this from now on? I heard there´s lots of fructose in some of the gluten free products and I just don´t know what I can eat at all anymore. 

 

Thanks for reading this and listening, hope to talk to you soon! 

 

I'm intolerant of everything...well not everything but my food and environmental list is quite long

 

The best suggestion I have for you is ditch the processed gluten free items and eat only whole foods.  With fructose being an issue, you will have to limit fruit and other sugars.  Did you test positive on the breath test?

 

Hang in there

[w8in4dave]

No I have not read all these but I do know we are all in the same boat but dang I do feel for you guys with so much intolerants! It's not so bad with Gluten but then Corn! Seems so much has Corn in it! Then you guys get so many other intolerances! I am thankful I got Dx'd early on and didn't take 20+ or 30+ years and tear my body aprt like some of you that have suffered for so long! My thoughts and prayers are with you all! 

 

When you say fructose do you mean High Fructose Corn Syrup? Because I am intolerant to that. I went on the No processed food diet for a month! It helps your body heal! Thats for sure! 

[sarahdea]

Reading this thread has been really helpful to me, as my gluten allergy kicked in suddenly about 2.5 months ago. Thanks everyone for the venting and replies.  Sometimes ya just need to know you're not alone.    <3

[SinGlutenRocks]

I'm intolerant of everything...well not everything but my food and environmental list is quite long

 

The best suggestion I have for you is ditch the processed gluten free items and eat only whole foods.  With fructose being an issue, you will have to limit fruit and other sugars.  Did you test positive on the breath test?

 

Hang in there

 

Hi! Thank you for answering! Yes, I tested positive on the breath test and the doctor said I should avoid fructose almost completely for about a month and then slowly start integrating it back into my diet in moderate amounts. I guess I just needed someone to listen to me, since my dad doesn´t like it when I start talking about my food related issues. So, thanks!