Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Questions


ashleyld

Recommended Posts

ashleyld Rookie

We just got our daughters endoscopy results. They are positive.

Do I need to replace all the cutting boards and cooking utensils? Anything else that can potentially hide gluten I need to think about?

Silly question maybe... I know rice is gluten-free.. is there anything I need to worry about?

Anything else that is easily overlooked?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Read the newbie section under the "coping" section of this forum. Also, my husband went gluten-free 13 years before me. I think it is easier to make the entire house gluten free for a while. Better for her and for you. Testing is in order for all of you. Do not stop eating gluten until testing is complete.

Welcome!

Celiacandme Apprentice

The toaster, collanders, wooden/plastic cooking utensils, collanders, anything plastic, etc. I even replaced my canister set because the rims of the tops had plastic in order to suction/securely close. I didn't want to take a chance; I figured the flour wouldn't get out of the plastic no matter how hard I tried. You shouldn't have to worry about rice, I don't think, unless you are buying something packaged with seasoning/mix. Plain white or brown rice would be fine though.

 

The Gluten-Free Grocery Shopping Guide by Cecelia's Marketplace is a handy little book that fits in your purse which helps if you are questioning whether something is safe when grocery shopping. (There are symbols and a chart which explains which products are guaranteed gluten-free, processed in a dedicated facility, in a shared facility, etc.)

 

Don't forget to make sure chapsticks/toothpaste are all gluten-free. (if she has DH, the skin version, you'll need to make sure lotions, shampoos, etc are also gluten-free) I haven't read your previous posts so I'm sorry if this is all just repeated information for you.

 

I hope she starts to feel better before you know it.

 

~Julie

BlessedMommy Rising Star

Also, if you have cast iron pans, putting them in a self clean cycle of the oven (which gets up to 900 degrees) will burn off any gluten. Then re-season them and they should be safe for use.

 

Don't forget waffle irons! It's pretty much impossible to get the gluten off of a used waffle iron. Flour sifters should also be replaced.

BlessedMommy Rising Star

One unlikely place where gluten hides is in salad dressings. Fillers, thickeners, vinegars, and soy sauce. Always verify gluten-free status of salad dressings before using.

ashleyld Rookie

Thank you so much! How do I know if she has the skin version? Will that come out in time? It might be the cause of the weird rashes she gets every once in a while

mamaw Community Regular

Just  a note  Vinegar,,, white  distilled  or  apple  cider  vinegar  in the US  is  gluten free..... flavored  vinegars may not be....

 

Malt  products  are  also not  gluten-free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free. Shampoo might get swallowed by some people. I just look for ingredients like wheat germ oil and avoid those because , even tho I am an adult, I get shampoo in my mouth.

mommida Enthusiast

I think her daughter was getting odd skin rashes.  Her odd rashes may have been from fat malabsorption, hyperkeratosis folliculitis, or dermititus herpetiformis (DH).

 

I still think newbies should keep a food journal.  It can help track down cross contamination sources.  (we had a bottle of vanilla that I kept from kitchen clean out that must have been cross contaminated from gluten baking.)

ashleyld Rookie

^^ good idea! I'll start today with the journal!

Thanks about the vinegar I had no idea! I'm going to go home and check all the salad dressings

africanqueen99 Contributor

I ran this process in waves once we got our DX.

 

1. Had one last "Goodbye to Gluten" party!  Friends over to eat out our freezer and pantry.  It was awesome fun for the kids. :)  We had so many desserts of just gluteny goodness!

2. Got rid of all gluten containing food.  Friends, food bank, a family on Craigslist took all the expired things.  ANYTHING opened went away - spices, condiments, etc.  I wasn't chancing anything with small kids.

3. Started cooking gluten-free with my regular kitchen items - all the while I was slowly paying attention to what I was using and replacing those things leaving them in the package in another room.  Cutting boards, toaster, these gorgeous wooden/bamboo bowls, anything plastic/metal/silicone, pasta strainer, fry daddy thingy, knife block, silverware separator thingy, cupcake/cake pans.  Some things I didn't replace b/c I realize that I never used them.

4. Once I had my bearing (it took less than a week to figure out what I was using) I had the Great Kitchen Clean of 2013.  Yes, it was the cleanest my kitchen had ever been!  Everything came out, cabinets scrubbed, refrigerator scrubbed.  It was great!  Then I opened all those lovely packages and had a new kitchen!

 

About 2-3 weeks after I did the kitchen I moved to the bathrooms.  Every open medication was pitched.  Shampoos/conditioners/body wash = swapped to gluten-free products.  Toothpaste, chapsticks, hand lotions (we hit Winter shortly after this happened and finding a gluten-free hand lotion for our cracking knuckles was HORRIBLE!!).  Right now I'm looking into sunscreen and bug sprays to use for the summer - this researching mom gig never ends.

 

I've been at this a while and have a completely gluten free house and car - with the exception of some beer and my husband's shaving cream.  I am crazy, crazy about things coming in to the house.  My youngest is still a toddler and would 100% eat something off the floor so friends just aren't allowed to bring food over.  Also, I make every kid entering my house wash their hands.  This is a hugely social house and nobody complains about hand washing.

 

ETA: If you're looking at a product and just not sure if you want to allow it in your house - call the manufacturer.  Seriously, I'm the lady in the aisle at Target calling the company on my cell.  And don't ever worry about asking questions from the slew of moms here.  We totally get it! :)

africanqueen99 Contributor

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free.

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?

kareng Grand Master

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?

 

 

I think I did say that if it would get in your mouth it needs to be gluten-free and that I get shampoo in my mouth.  I am as bad as an 8 year old, I guess.   :o

 

The real point is that gluten has to be in the intestines.

africanqueen99 Contributor

^^^ Oh, I get it.  My 2 y/o was licking her arms the other day.  Why?  Heck if I know!  But lotion would end up in her intestines.

 

I'm sure you are nowhere near as bad as an 8 y/o.  At least you shower!

ashleyld Rookie

LOL Yes my daughter is 3. She doesn't put things in her mouth but it doesn't mean i don't catch her fingers in her mouth when shes eating or wiping her face. And yes.. my 6yo started sucking his fingers recently. YUCKO

BlessedMommy Rising Star

I like Seventh Generation products. Their baby lotion and their baby shampoo/body wash are both gluten free and say so on the label.

mommida Enthusiast

My daughter was really young.  (with PICA/iron deficiency that causes the individual to crave non food items)  She went to eat dog food.  So check the pet's food too.  Interesting enough there are so many pet foods labeled gluten free now. :rolleyes:

africanqueen99 Contributor

^^^ Good point. My kids are responsible for feeding the dog and providing treats. We had to switch out all that. I didn't want any chances.

FWIW, the dog's coat looks so much better on the grain free diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.